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Radium 223
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To Trial or not to Trial?
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
SunnyCA
in
CLL Support
6 months ago
Desperately need help pls
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
Lisamarsh
in
Headway
6 months ago
EU introduces valproate measures
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
6 months ago
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My response to WinnieThePoo.
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
SilentEchoes
in
Cure Parkinson's
9 months ago
Switch diet to Vegetarian - save your kidneys
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
geewhiz
in
Kidney Disease
9 months ago
anxiety and depression causing nausea?
How can I get a rough idea if anxiety and depression is causing my nausea and constipation? I was a heavy drinker for a few years and benzodiazepines for a year but stopped 6 months ago and that’s when I started having problems I have been suffering from nausea for 6 months and constipation for 3 months
How can I get a rough idea if anxiety and depression is causing my nausea and constipation? I was a heavy drinker for a few years and benzodiazepines for a year but stopped 6 months ago and that’s when I started having problems I have been suffering from nausea for 6 months and constipation for 3 months
Luke1993
in
Anxiety and Depression Support
19 days ago
barium swallow
hello I had an endoscopy done today as I have near enough constant nausea it’s been going on for 5 months and I’m also suffering from constipation. Nothing was found today anyway and have been told it would be good to get a barium swallow. I’m just extremely worried about side effects I have very bad
hello I had an endoscopy done today as I have near enough constant nausea it’s been going on for 5 months and I’m also suffering from constipation. Nothing was found today anyway and have been told it would be good to get a barium swallow. I’m just extremely worried about side effects I have very bad
Luke1993
in
IBS Network
21 days ago
barium swallow side effects
hello I had an endoscopy done today as I have near enough constant nausea it’s been going on for 5 months and I’m also suffering from constipation. Nothing was found today anyway and have been told it would be good to get a barium swallow. I’m just extremely worried about side effects I have very bad
hello I had an endoscopy done today as I have near enough constant nausea it’s been going on for 5 months and I’m also suffering from constipation. Nothing was found today anyway and have been told it would be good to get a barium swallow. I’m just extremely worried about side effects I have very bad
Luke1993
in
Acid Reflux Support
21 days ago
Sodium cromoglicate - GP won't supply any more
Good afternoon everyone and thank you in advance for any help anyone might be able to offer. I have MCAS and POTS (as well as autoimmune, ME/CFS, histamine intolerance and a raft of other conditions) and recently started on sodium cromoglicate. The outcome has been almost miraculous - the first medication
Good afternoon everyone and thank you in advance for any help anyone might be able to offer. I have MCAS and POTS (as well as autoimmune, ME/CFS, histamine intolerance and a raft of other conditions) and recently started on sodium cromoglicate. The outcome has been almost miraculous - the first medication
PurpleNel
in
The UK Mastocytosis Support Group
6 months ago
Pain killers and Hip replacement
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Hildrethbird
in
MPN Voice
9 months ago
Dry eyes
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Groda
in
PMRGCAuk
9 months ago
constipation help
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
Radars
in
Bone Health and Osteoporosis UK
9 months ago
Jardiance Approved for CKD
Article from Drugs.com FDA Clears Jardiance for Use in Chronic Kidney Disease (CKD) In September, the FDA cleared Jardiance (empagliflozin), from Boehringer Ingelheim and Eli Lilly, to reduce the risk of further worsening of kidney disease, end-stage kidney disease (ESKD), death due to cardiovascular
Article from Drugs.com FDA Clears Jardiance for Use in Chronic Kidney Disease (CKD) In September, the FDA cleared Jardiance (empagliflozin), from Boehringer Ingelheim and Eli Lilly, to reduce the risk of further worsening of kidney disease, end-stage kidney disease (ESKD), death due to cardiovascular
orangecity41
NKF Ambassador
in
Kidney Disease
10 months ago
Mercury Pharma Levothyroxine ingredients
Would anyone know if the ingredients of Mercury Pharma’s Levothyroxine have changed at all of the past few years? I’ve been taking 25 mcg for a few years now, always the same brand. I’ve been experiencing severe bloating and heartburn. Doctors can’t find the cause so I’m looking into a potential change
Would anyone know if the ingredients of Mercury Pharma’s Levothyroxine have changed at all of the past few years? I’ve been taking 25 mcg for a few years now, always the same brand. I’ve been experiencing severe bloating and heartburn. Doctors can’t find the cause so I’m looking into a potential change
PinkCat2023
in
Thyroid UK
6 months ago
My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
10 months ago
Swallowing difficulty, have to chew meds.
About a year ago, I began getting my thyroid meds stuck in my throat. All my other meds, vits and minerals, being much larger, seem to go down ok, as they seem to have sufficient "weight" behind them. My magnesium capsule is the size of a suppository 🤣 and I can swallow [i]that[/i] without a problem
About a year ago, I began getting my thyroid meds stuck in my throat. All my other meds, vits and minerals, being much larger, seem to go down ok, as they seem to have sufficient "weight" behind them. My magnesium capsule is the size of a suppository 🤣 and I can swallow [i]that[/i] without a problem
grumpyold
in
Thyroid UK
2 months ago
Swallowing problems
HiDoes anyone have an issue with swallowing. I've been told my muscles in my throat spasm causing me to vomit 2/3 times a week. I am hardly eating anything and what I get down is a liquid diet and 8 months on I'm fed up. This has caused a pharyngeal pouch. I've seen an ENT specialist for this and I've
HiDoes anyone have an issue with swallowing. I've been told my muscles in my throat spasm causing me to vomit 2/3 times a week. I am hardly eating anything and what I get down is a liquid diet and 8 months on I'm fed up. This has caused a pharyngeal pouch. I've seen an ENT specialist for this and I've
Loobyloo1966
in
FND Action
2 months ago
alergies
hello all. Apologies it’s been a while. Hope you all had a good (and healthy) Xmas This time of year can be challenging for us asthmatics. & a Happy new year 🥳 So I was lucky enough to travel around Brazil with my adult daughter for 2mths returning on 14/12. A major first for me. Since being back
hello all. Apologies it’s been a while. Hope you all had a good (and healthy) Xmas This time of year can be challenging for us asthmatics. & a Happy new year 🥳 So I was lucky enough to travel around Brazil with my adult daughter for 2mths returning on 14/12. A major first for me. Since being back
Pantha44
in
Asthma Community Forum
7 months ago
CLL and Lupus labs
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
JerrysGirl3
in
CLL Support
10 months ago
radium 223
I am now into my 2nd. treatment of
radium
223
. So far I have experienced the pain flair but very little pain relief which is why im going through this treatment. Can anyone who has had
Radium
223
pass on their experience. I have 4 treatments to go, wondering if its worth it.
I am now into my 2nd. treatment of
radium
223
. So far I have experienced the pain flair but very little pain relief which is why im going through this treatment. Can anyone who has had
Radium
223
pass on their experience. I have 4 treatments to go, wondering if its worth it.
tonmead
in
Advanced Prostate Cancer
2 years ago
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