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Experiences with
Radioactive iodine
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Advice on the treatment
Last blood test 19/05/2022 TS H < 0,014 (0,4-4,5) FT4 1,75 (0,85-1,8) FT3 5,35 (2,5 -4,4) Folate 6.2 ( > 5,38) B 12 307 (211-911) D3/Ferritin - they did not test but MCH 26.9 (27-33.5) Antiperoxidase >1300 (60) Big multinodular goiter with 4 cold nods(result of Gammagraphy 10/05/2021) Strong headaches
Last blood test 19/05/2022 TS H < 0,014 (0,4-4,5) FT4 1,75 (0,85-1,8) FT3 5,35 (2,5 -4,4) Folate 6.2 ( > 5,38) B 12 307 (211-911) D3/Ferritin - they did not test but MCH 26.9 (27-33.5) Antiperoxidase >1300 (60) Big multinodular goiter with 4 cold nods(result of Gammagraphy 10/05/2021) Strong headaches
femme12000
in
Thyroid UK
2 years ago
Can gabapentin intensify RLS?
I’ve been phasing on to gabapentin since the summer whilst I came off ropinerole (been off ropinerole for 2 months). My gabapentin dose has been at 1800mg for 3 weeks (2pm, 5pm & 8pm on Doc’s suggestion) and during the night I invariably am awake for 2-4 hours with the most intense RLS, worse than before
I’ve been phasing on to gabapentin since the summer whilst I came off ropinerole (been off ropinerole for 2 months). My gabapentin dose has been at 1800mg for 3 weeks (2pm, 5pm & 8pm on Doc’s suggestion) and during the night I invariably am awake for 2-4 hours with the most intense RLS, worse than before
Indigirl99
in
Restless Legs Syndrome
2 years ago
Fed up
Just came back from physiotherapy appointment. Spinal scan clear which is brill. Bloods, high markers being discussed with rheumatologist. Very low vitamin D and folic acid gp being advised to make prescription. After 6 years of random investigation we are back at fibromyalgia, discussion about management
Just came back from physiotherapy appointment. Spinal scan clear which is brill. Bloods, high markers being discussed with rheumatologist. Very low vitamin D and folic acid gp being advised to make prescription. After 6 years of random investigation we are back at fibromyalgia, discussion about management
Coffeemum
in
Fibromyalgia Action UK
2 years ago
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Night time Codeine.
Hi - I have been been on prescription 2x30mg Codeine Phosphate for about 18 months (for my RLS). They now do not work as efficiently as when I first started but I absolutely do not want to increase my dose. In fact, I would like to reduce down to 30mg a night. My tablets are so tiny, that it is impossible
Hi - I have been been on prescription 2x30mg Codeine Phosphate for about 18 months (for my RLS). They now do not work as efficiently as when I first started but I absolutely do not want to increase my dose. In fact, I would like to reduce down to 30mg a night. My tablets are so tiny, that it is impossible
coconutty5
in
Restless Legs Syndrome
2 years ago
What’s my Options
I am finding it very difficult as whenever I have consultations, I am being leaned on/pushed to have
Radioactive
Iodine
right now while I am stable, even though I have said several times this is not the treatment I want for myself.
I am finding it very difficult as whenever I have consultations, I am being leaned on/pushed to have
Radioactive
Iodine
right now while I am stable, even though I have said several times this is not the treatment I want for myself.
Kjones64
in
Thyroid UK
2 years ago
Post op catheter and bowel movement
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
Saffie123
in
Endometriosis UK
2 years ago
OFF TOPIC:,20 year old daughter in acute psychiatric clinic today due to increasing intrusive and suicidal thoughts.
Dear all, just needing a listening ear today, hope that’s ok with all you lovely and helpful people on this forum. We are understandably very upset today as our 20 year old daughter has voluntarily entered a psychiatric clinic today on the advice of her psychiatrist, due to increasing intrusive and
Dear all, just needing a listening ear today, hope that’s ok with all you lovely and helpful people on this forum. We are understandably very upset today as our 20 year old daughter has voluntarily entered a psychiatric clinic today on the advice of her psychiatrist, due to increasing intrusive and
Swissgirl
in
Thyroid UK
2 years ago
Constantly high white blood cells and raised CRP
hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs are 4.5-10 also raised CRP 18-25 cut off lab 0-9, They now never come down to the normal range and I’m feeling pretty poorly constantly, I have
hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs are 4.5-10 also raised CRP 18-25 cut off lab 0-9, They now never come down to the normal range and I’m feeling pretty poorly constantly, I have
Steph0077
in
Pernicious Anaemia Society
2 years ago
Kelp Powder - Barley grass powder - Spirulina -Organic Atlantic Dulce bad for thyroid!?
Hi there everyone 😊 So I have started adding a teaspoon of all 4 of the above 👆 to my breakfast smoothie… As they contain iodine is this safe to take!?… Iv never been tested for iodine deficiency, but started these powders after reading the medical medium book….
Hi there everyone 😊 So I have started adding a teaspoon of all 4 of the above 👆 to my breakfast smoothie… As they contain iodine is this safe to take!?… Iv never been tested for iodine deficiency, but started these powders after reading the medical medium book….
ThyroidObsessed
in
Thyroid UK
2 years ago
An Unusual False-Positive Uptake of Radioiodine Caused by Breast Implants
If the issue applies, make sure you discuss properly with anyone who wants to give you
radioactive
iodine
. I suspect it will be at the obscure end of the scale. [i]Clin Nucl Med. 2022 Mar 30. doi: 10.1097/RLU.0000000000004165. Online ahead of print.
If the issue applies, make sure you discuss properly with anyone who wants to give you
radioactive
iodine
. I suspect it will be at the obscure end of the scale. [i]Clin Nucl Med. 2022 Mar 30. doi: 10.1097/RLU.0000000000004165. Online ahead of print.
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Iodine in Oat milk
Hi I have started using Oatly oat milk and there is 22.5ug or Iodine per 100ml. Should I be worried about this and the effect it may have on my Thyriod and medication? Thanks Lindsay
Hi I have started using Oatly oat milk and there is 22.5ug or Iodine per 100ml. Should I be worried about this and the effect it may have on my Thyriod and medication? Thanks Lindsay
Lindsayf
in
Thyroid UK
2 years ago
new to lupus and diagnosis: pain and what to do!
Hello, I have been diagnosed with lupus from a skin rash I get with the sun. However I am currently waiting for a Rheumatology appointment as I have chronic pain in lumbar spin, SI joint, and cervical pain. I am currently in a massive flare and I can’t find comfort. Walking gentle is ok, sitting is agony
Hello, I have been diagnosed with lupus from a skin rash I get with the sun. However I am currently waiting for a Rheumatology appointment as I have chronic pain in lumbar spin, SI joint, and cervical pain. I am currently in a massive flare and I can’t find comfort. Walking gentle is ok, sitting is agony
M0wnt
in
LUPUS UK
2 years ago
Atrophied Kidney
Hi there I had a CT scan of my lower back as I keep getting sharp back pain that is relieved after a bowel movement. No sign of kidney stones I have small scared kidneys and life time uti's (age 49) It says my left kidney is Atrophied. My doctor had said that my kidney function of 66 is fine
Hi there I had a CT scan of my lower back as I keep getting sharp back pain that is relieved after a bowel movement. No sign of kidney stones I have small scared kidneys and life time uti's (age 49) It says my left kidney is Atrophied. My doctor had said that my kidney function of 66 is fine
Hidden
in
Kidney Disease
2 years ago
Chemo side effects and opioid intolerance
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Demelzatheseagull
in
My Ovacome
2 years ago
Thyroid test results with a total thyroidectomy
Can anyone answer my question - I had overactive thyroid in my teens then in 20’s had
radioactive
iodine
followed by a ‘partial’ thyroidectomy about 2 years later. I had cause to need an ultrasound on my throat about 30 years ago and this showed I had no thyroid tissue there at all.
Can anyone answer my question - I had overactive thyroid in my teens then in 20’s had
radioactive
iodine
followed by a ‘partial’ thyroidectomy about 2 years later. I had cause to need an ultrasound on my throat about 30 years ago and this showed I had no thyroid tissue there at all.
Poppyred300
in
Thyroid UK
2 years ago
Iodine supplements
Hi. I have been on thyroxine for several years and generally well but still suffer with hair loss. My blood tests are fine including B vits and Iron I found a thyroid support formula which seemed to help but it has iodine in it. Can anyone explain why iodine supplementation is not recommended.
Hi. I have been on thyroxine for several years and generally well but still suffer with hair loss. My blood tests are fine including B vits and Iron I found a thyroid support formula which seemed to help but it has iodine in it. Can anyone explain why iodine supplementation is not recommended.
janeballoo
in
Thyroid UK
2 years ago
ropinerole
I have suffered from rls on and off for 40 years. 5 years ago it became unbearable. The doctor prescribed 1mg ropinerole at night. A miracle! From the first dose I had a full night's sleep. However, within a few months my legs were aching badly and keeping me awake at night. Spoke to a pharmacist
I have suffered from rls on and off for 40 years. 5 years ago it became unbearable. The doctor prescribed 1mg ropinerole at night. A miracle! From the first dose I had a full night's sleep. However, within a few months my legs were aching badly and keeping me awake at night. Spoke to a pharmacist
Tryffan1
in
Restless Legs Syndrome
2 years ago
Reducing dose
10 years ago i had a large toxic nodule on my thyroid so was hyper active. I had RAI and so became hypo. Levo did nothing for me and still felt bad a d gained weight, tired etc, no diet worked. Started ndt (thiroyd) for years and e erything improved. My endo was not happy about this and since thiroyd
10 years ago i had a large toxic nodule on my thyroid so was hyper active. I had RAI and so became hypo. Levo did nothing for me and still felt bad a d gained weight, tired etc, no diet worked. Started ndt (thiroyd) for years and e erything improved. My endo was not happy about this and since thiroyd
thyroidnodules
in
Thyroid UK
2 years ago
Long term Carbimazole
I was diagnosed with Graves in December 2020, this caused AF so medicated for both successfully. Eventually down to 5 mg of Carbimazole and no other meds. Feeling good and then Tom by Endo, I would need to come off Carbimazole to see if I was in remission. Bloods on 5mg TSH 1.34 Bloods after 8 weeks
I was diagnosed with Graves in December 2020, this caused AF so medicated for both successfully. Eventually down to 5 mg of Carbimazole and no other meds. Feeling good and then Tom by Endo, I would need to come off Carbimazole to see if I was in remission. Bloods on 5mg TSH 1.34 Bloods after 8 weeks
Boaby
in
Thyroid UK
2 years ago
Thyroidectomy
Radioactive
iodine
is not suitable for me so iv been told to think about completely removing my thyroid , I’m not keen on this but my endo says I cannot be on 15mg of my drug for life! Can anyone tell me there experience with this surgery ? Thank you in advance x
Radioactive
iodine
is not suitable for me so iv been told to think about completely removing my thyroid , I’m not keen on this but my endo says I cannot be on 15mg of my drug for life! Can anyone tell me there experience with this surgery ? Thank you in advance x
Busyy
in
Thyroid UK
2 years ago
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