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Experiences with
Radical hysterectomy
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Pain is killing me
Hi, I had a quadruple heart bypass just before my 51st birthday 4 years ago, I have since been left with nerve damage in my torso. They said it would have happened from an underlying issue ok. Then just over a year ago I had womb cancer and had a total hysterectomy but now with my nerve damage I am in
Hi, I had a quadruple heart bypass just before my 51st birthday 4 years ago, I have since been left with nerve damage in my torso. They said it would have happened from an underlying issue ok. Then just over a year ago I had womb cancer and had a total hysterectomy but now with my nerve damage I am in
Pabala
in
Pain Concern
2 years ago
contraception medication Advice for symptoms
Hi Quick question, I have an appointment with my GP tomorrow to talk about my Gynae issues and I was thinking about asking to try a Progestogen only pill. I had my tubes tied 14 years ago and had the coil twice but it fell out. While I wait for my hysterectomy I was think would the pill help
Hi Quick question, I have an appointment with my GP tomorrow to talk about my Gynae issues and I was thinking about asking to try a Progestogen only pill. I had my tubes tied 14 years ago and had the coil twice but it fell out. While I wait for my hysterectomy I was think would the pill help
Bassem1979
in
Endometriosis UK
2 years ago
old scars flaring up!
I’m just putting it out there as I am not sure that I may have read something on this forum but I could be wrong. I had a hysterectomy 20 years ago but today an area of the scar felt a bit tender and on further investigation it appears that a small area has hardened and is red! I take Peg injections
I’m just putting it out there as I am not sure that I may have read something on this forum but I could be wrong. I had a hysterectomy 20 years ago but today an area of the scar felt a bit tender and on further investigation it appears that a small area has hardened and is red! I take Peg injections
Grendall
in
MPN Voice
2 years ago
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Legal action against all this medical negligence... How to go about it?
Has anyone ever tried to take legal action against medical negligence?? I was never mentioned the possibility that my ovarian cyst and fibroid might have been endometriosis. Was never diagnosed with it despite my many years of suffering with PMS and heavy bleeding etc. I was totally against surgery
Has anyone ever tried to take legal action against medical negligence?? I was never mentioned the possibility that my ovarian cyst and fibroid might have been endometriosis. Was never diagnosed with it despite my many years of suffering with PMS and heavy bleeding etc. I was totally against surgery
CofG
in
Endometriosis UK
2 years ago
Timing of pills!
I had no idea that I shouldn’t be taking all my pills, prednisolone, aspirin, atorvastatin, omeprazole and adcal -D3 at the same time each morning…… Having now read some comments I will review my timings. I now understand why I don’t feel good in the mornings….
I had no idea that I shouldn’t be taking all my pills, prednisolone, aspirin, atorvastatin, omeprazole and adcal -D3 at the same time each morning…… Having now read some comments I will review my timings. I now understand why I don’t feel good in the mornings….
Ancestry1234
in
PMRGCAuk
2 years ago
Prednisolone and when to take Adcal
I was very interested to read the recent postings on this subject as I was quite unaware of the need and why to have a 2 hour interval. I have been on this combination for 4 years yet no doctor has ever mentioned this to me. I further checked with my local pharmacy and they to were also ignorant of this
I was very interested to read the recent postings on this subject as I was quite unaware of the need and why to have a 2 hour interval. I have been on this combination for 4 years yet no doctor has ever mentioned this to me. I further checked with my local pharmacy and they to were also ignorant of this
Blacksley
in
PMRGCAuk
2 years ago
Changes in Vision - blurs, floaters flashes, CRP & ESR Markers changed, How to manage Prednisolone?
Background Diagnosed PMR April 2019 ESR 90 CRP 42 initial 20mg Prednisolone, ADCal D3 1 tab twice a day , every 3 wks reduction 17.5, 15, 12.5, 10mg, then recommended 1mg per month. Followed DSNS taken slower taper to Jan 2022 2mg , Sep 22 1mg. Im 54, returned to work following Occupational Health
Background Diagnosed PMR April 2019 ESR 90 CRP 42 initial 20mg Prednisolone, ADCal D3 1 tab twice a day , every 3 wks reduction 17.5, 15, 12.5, 10mg, then recommended 1mg per month. Followed DSNS taken slower taper to Jan 2022 2mg , Sep 22 1mg. Im 54, returned to work following Occupational Health
maxistar
in
PMRGCAuk
2 years ago
Menopause and endometriosis
Good Afternoon Hope you are all well I am 50 years old and going through the menopause I have not had an hysterectomy so still have everything in tact My doctor has put me on oestrogel 2 pumps one on each arm. She also gaveme Utrogestan 100 mg tablet I also have an implant in my arm for contraception
Good Afternoon Hope you are all well I am 50 years old and going through the menopause I have not had an hysterectomy so still have everything in tact My doctor has put me on oestrogel 2 pumps one on each arm. She also gaveme Utrogestan 100 mg tablet I also have an implant in my arm for contraception
harryhonda25
in
Endometriosis UK
2 years ago
Lutetium treatment in Turkey - Anadolu Clinic
I have just started Lutetium-177 at the Anadolu clinic in Istanbul. I was referred to Dr. Kezban Berberoglu by Dr. Eugene Kwon of the Mayo Clinic, who has overseen my treatment for the past five years. She is a very capable specialist and I hold her in high regard. I would certainly recommend
I have just started Lutetium-177 at the Anadolu clinic in Istanbul. I was referred to Dr. Kezban Berberoglu by Dr. Eugene Kwon of the Mayo Clinic, who has overseen my treatment for the past five years. She is a very capable specialist and I hold her in high regard. I would certainly recommend
Arcticfox44
in
Advanced Prostate Cancer
2 years ago
Endometriosis in lungs, does anyone else experiencing this?
Hi everyone, I came on here hoping to find other women how have experienced endo in their lungs, i have suffered with severe pain and organs glued together for years before i had a hysterectomy 3 years ago with only 1 ovary left, for a while everything was great, but the ovary started burning and feeling
Hi everyone, I came on here hoping to find other women how have experienced endo in their lungs, i have suffered with severe pain and organs glued together for years before i had a hysterectomy 3 years ago with only 1 ovary left, for a while everything was great, but the ovary started burning and feeling
Jendn83
in
Endometriosis UK
2 years ago
Endo and duplex kidney?
Hi, My gyne has agreed to do a hysterectomy but wanted me to have a scan so he could see what was occurring since my last lap a year ago. He said along with the endo, I have hydrosalpinx and that my womb is blobby and swollen. The pictures he showed me just looked weird and lumpy. During my scan
Hi, My gyne has agreed to do a hysterectomy but wanted me to have a scan so he could see what was occurring since my last lap a year ago. He said along with the endo, I have hydrosalpinx and that my womb is blobby and swollen. The pictures he showed me just looked weird and lumpy. During my scan
roobiedoobie
in
Endometriosis UK
2 years ago
Timing of calcium supplements
I know that it is a no-no to take Adcal, Accrete etc within 2 hours of pred because the resultant 'soup' impedes the pred from being absorbed. But is this the case with gastric-coated pred? I notice that on the PIL it says it should be taken within 1 1/2 hours of a meal. Gets tricky when you have to
I know that it is a no-no to take Adcal, Accrete etc within 2 hours of pred because the resultant 'soup' impedes the pred from being absorbed. But is this the case with gastric-coated pred? I notice that on the PIL it says it should be taken within 1 1/2 hours of a meal. Gets tricky when you have to
Sharitone
in
PMRGCAuk
2 years ago
Do women with endo still go through the menopause despite the high levels of oestrogen?? and medical negligence...
Hi, does anyone know if women with endo continue to have high levels of oestrogen even through the menopause?? I have so many menopausal symptoms yet my levels of oestrogen are believed to be very high so experts say that I have oestrogen dominance which can also lead to symptoms similar to the menopause
Hi, does anyone know if women with endo continue to have high levels of oestrogen even through the menopause?? I have so many menopausal symptoms yet my levels of oestrogen are believed to be very high so experts say that I have oestrogen dominance which can also lead to symptoms similar to the menopause
CofG
in
Endometriosis UK
2 years ago
Seeking Data ???
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Advanced Prostate Cancer
2 years ago
Seeking Data ????
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Prostate Cancer Network
2 years ago
Endo and oestrogen and risk for blood clots
Hi I suffer with endometriosis. It was discovered during my hysterectomy in 2019. I developed a PE 6 days after surgery and I am now on blood thinners for life. I have been suffering with horrible brain fog, difficulty concentrating and remembering. I get confused because I don't remember things sharply
Hi I suffer with endometriosis. It was discovered during my hysterectomy in 2019. I developed a PE 6 days after surgery and I am now on blood thinners for life. I have been suffering with horrible brain fog, difficulty concentrating and remembering. I get confused because I don't remember things sharply
CofG
in
Endometriosis UK
2 years ago
stage 4
hi everyone. I got diagnosed with stage 4 endo in may after I had a laparoscopy to remove a 4cm endometrioma. I didn’t know I had it. I had been having heavy periods for a few days a month but put it down to my age 45. I did occasionally have pain going number 2 and other random pains but didn’t think
hi everyone. I got diagnosed with stage 4 endo in may after I had a laparoscopy to remove a 4cm endometrioma. I didn’t know I had it. I had been having heavy periods for a few days a month but put it down to my age 45. I did occasionally have pain going number 2 and other random pains but didn’t think
Starry1977
in
Endometriosis UK
2 years ago
AUS Effectiveness: Will it make you "Dry"
Was asked to repost this in this forum...I have USI (urinary stress incontinence) from my RP (Radical Prost) plus sRT (salvage radiation treatment)...leak about 25-50 gr per day...just enough to piss me off but my Dr says not enough to risk the 25% chance I have as a post-sRT patient of developing urethan
Was asked to repost this in this forum...I have USI (urinary stress incontinence) from my RP (Radical Prost) plus sRT (salvage radiation treatment)...leak about 25-50 gr per day...just enough to piss me off but my Dr says not enough to risk the 25% chance I have as a post-sRT patient of developing urethan
RMontana
in
Advanced Prostate Cancer
2 years ago
stage 4 endo bowel 100pc worse after Mirena coil
Hello everyone, first time poster here I’m going to try and keep it succinct.. I’ve had endo for 15 years. Lived with the pain, had two laps 6 months in zoladax and watch what I eat. Wasn’t really monitored over covid endo got worse. In April suspected cervical cancer (thankfully negative). In august
Hello everyone, first time poster here I’m going to try and keep it succinct.. I’ve had endo for 15 years. Lived with the pain, had two laps 6 months in zoladax and watch what I eat. Wasn’t really monitored over covid endo got worse. In April suspected cervical cancer (thankfully negative). In august
Ess1982
in
Endometriosis UK
2 years ago
Told fibro but wasnt
Ive found out recently for sure that my so called fibromyalgia was a lack of estrogen caused first by the menopause, giving me many debiliating symptoms, and then when I had a hysterectomy it suddenly got far far worse, dangerously so. What worries me is that none of the doctors thought about what was
Ive found out recently for sure that my so called fibromyalgia was a lack of estrogen caused first by the menopause, giving me many debiliating symptoms, and then when I had a hysterectomy it suddenly got far far worse, dangerously so. What worries me is that none of the doctors thought about what was
amberbrown
in
Fibromyalgia Action UK
2 years ago
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