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Just diagnosed - vasculitis GPA
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
NacMacFeegle
in
Vasculitis UK
6 years ago
Anyone have ET diagnosis with normal BMB
I've posted a few times and still in no man's land (hopefully it will get better on my second haem appointment on 22nd). So far: ET possible - no secondary causes for thrombocytosis (everything normal which is great) ;platelets hovering around 500; previous pulmonary embolism at age 18 - 20 years ago
I've posted a few times and still in no man's land (hopefully it will get better on my second haem appointment on 22nd). So far: ET possible - no secondary causes for thrombocytosis (everything normal which is great) ;platelets hovering around 500; previous pulmonary embolism at age 18 - 20 years ago
RedSunrise
in
MPN Voice
6 years ago
Newly diagnosed. Rivaroxaban - In shock!
Hi, Just been diagnosed with paroxysmal atrial fibralation and on my third dose of Rivaroxaban 20mg. This is now on top of several other medical issues including really bad GERD. I was diagnosed in A&E after an hour of palpitations on Friday night followed by three hours on Saturday morning. Called 101
Hi, Just been diagnosed with paroxysmal atrial fibralation and on my third dose of Rivaroxaban 20mg. This is now on top of several other medical issues including really bad GERD. I was diagnosed in A&E after an hour of palpitations on Friday night followed by three hours on Saturday morning. Called 101
4optimistic
in
AF Association
6 years ago
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Romolo55
My GP is wanting to do a lung volume reduction surg. Has anyone heard of this.??? Please help me
My GP is wanting to do a lung volume reduction surg. Has anyone heard of this.??? Please help me
Romolo55
in
Lung Conditions Community Forum
6 years ago
Lupus Anticoagulant positive update 3
Well meeting with haematology and neurology was postponed on 21st, it's now on the 7th. As you can imagine wasn't happy. Slowly collating all the paperwork regarding my wife. Had an email back from Professor Graham Hughes, who correctly guessed my wife's INR results and suggested that she needs a higher
Well meeting with haematology and neurology was postponed on 21st, it's now on the 7th. As you can imagine wasn't happy. Slowly collating all the paperwork regarding my wife. Had an email back from Professor Graham Hughes, who correctly guessed my wife's INR results and suggested that she needs a higher
geoff0702
in
Hughes Syndrome APS Forum
6 years ago
Update on my appointment with Haematologist
To recap, this was my original thread. https://healthunlocked.com/hughes-syndrome/posts/140022450/transitioning-from-dalteparin-to-rivaroxaban So today I had my meeting with my new Hematologist, and I have to say he was absolutely fantastic. I was well prepared thanks to all your guidance, and had
To recap, this was my original thread. https://healthunlocked.com/hughes-syndrome/posts/140022450/transitioning-from-dalteparin-to-rivaroxaban So today I had my meeting with my new Hematologist, and I have to say he was absolutely fantastic. I was well prepared thanks to all your guidance, and had
LupusKaren
in
Hughes Syndrome APS Forum
6 years ago
Who should i be seeing in the UK?
Hi, Im in the Uk. was told I had lupus anticoagulant after having a clot on my brain (and a DVT whilst on warfarin) My neuro rehab told me in 2018. My GP switched me from warfarin to rivaroxaban as I was never in range of 3-4. From reading posts on here and elsewhere only warfarin is recommended and
Hi, Im in the Uk. was told I had lupus anticoagulant after having a clot on my brain (and a DVT whilst on warfarin) My neuro rehab told me in 2018. My GP switched me from warfarin to rivaroxaban as I was never in range of 3-4. From reading posts on here and elsewhere only warfarin is recommended and
debiann
in
Hughes Syndrome APS Forum
6 years ago
Appt with consultant
Hi everyone. I don’t often post but like to read all yours. I was told 8 yrs ago I had mild emphysema and given Tiotropium I have been fine all this time. 6/8 months ago I started getting more breathless until now going up stairs or uphill is a bit of a nightmare. I have a blue inhaler but it doesn’t
Hi everyone. I don’t often post but like to read all yours. I was told 8 yrs ago I had mild emphysema and given Tiotropium I have been fine all this time. 6/8 months ago I started getting more breathless until now going up stairs or uphill is a bit of a nightmare. I have a blue inhaler but it doesn’t
Looseloafers
in
Lung Conditions Community Forum
6 years ago
Discharge today
John has been at Albany Medical Center since Monday. We had a nightmare ER experience at Northern Westchester and Westchester Medical that I’ll spare the details of. Pulmonary Embolisms, multiple acute and subacute TIA’s and an elevated troponin were what was discovered. He has regained his ability
John has been at Albany Medical Center since Monday. We had a nightmare ER experience at Northern Westchester and Westchester Medical that I’ll spare the details of. Pulmonary Embolisms, multiple acute and subacute TIA’s and an elevated troponin were what was discovered. He has regained his ability
WXYZ123
in
Advanced Prostate Cancer
6 years ago
Coming off Apixiban
My partner has been on Apixiban for 18 months after having an Unprovoked Pulmonary embolism. Today he has seen a Consultant who advised him to come of it as he has no problems with lung function or heart. And only the one blood clot. He appears to be taking this decision in his stride and out of the
My partner has been on Apixiban for 18 months after having an Unprovoked Pulmonary embolism. Today he has seen a Consultant who advised him to come of it as he has no problems with lung function or heart. And only the one blood clot. He appears to be taking this decision in his stride and out of the
Cotton50
in
Anticoagulation Support
6 years ago
Transitioning from Dalteparin to Rivaroxaban
My Hematology team have decided to take me off Dalteparin 15,000 IU/0.6 ml to Rivaroxaban 15 mg, this is because a recent DEXA scan has shown I have severe Osteoporosis in spine and hip, and they say Dalteparin can worsen Osteoporosis. They said I have to take both Dalteparin and Rivaroxaban together
My Hematology team have decided to take me off Dalteparin 15,000 IU/0.6 ml to Rivaroxaban 15 mg, this is because a recent DEXA scan has shown I have severe Osteoporosis in spine and hip, and they say Dalteparin can worsen Osteoporosis. They said I have to take both Dalteparin and Rivaroxaban together
LupusKaren
in
Hughes Syndrome APS Forum
6 years ago
Vitafusion (gorgeous hair, skin & nails) multivitamin pkus biotin & antioxidants
Hello I just bought this vitamins last night and just started my second dose and just like last night i got really sleepy after taking them... I felt tired and relaxed and didnt wanna do anything but sleep and it recommended taking 3 gummies daily... Anyone tired gummy vitamins or any other multivitamin
Hello I just bought this vitamins last night and just started my second dose and just like last night i got really sleepy after taking them... I felt tired and relaxed and didnt wanna do anything but sleep and it recommended taking 3 gummies daily... Anyone tired gummy vitamins or any other multivitamin
Destinyweathers
in
Healthy Evidence
6 years ago
Update 3 months since Ablation
Hi Everyone, just thought I’d update you all on where I am up too. So good news is I’ve been AF free since my few blips after my ablation in early November. I finish my rivaroxaban today 31/01/19 as instructed from my EP. So today is exactly 3 months post procedure. I’m a bit nervous about coming off
Hi Everyone, just thought I’d update you all on where I am up too. So good news is I’ve been AF free since my few blips after my ablation in early November. I finish my rivaroxaban today 31/01/19 as instructed from my EP. So today is exactly 3 months post procedure. I’m a bit nervous about coming off
Amy2805
in
AF Association
6 years ago
Pulmonary Function Tests
Has anyone had a pulmonary function test with results ranging from 50 to 48? What treatments are you on? What did your doctor recommend? I have lung scarring.
Has anyone had a pulmonary function test with results ranging from 50 to 48? What treatments are you on? What did your doctor recommend? I have lung scarring.
Dermatray15
in
Asthma Community Forum
6 years ago
Advancing emphysema help
Please help got told im suffering from advancing emphysema!45years old and petrified. Its the pains i get at top of body up beside my shoulders and i took a deep breath one day to get a pain that felt like a sml stone falling down my lung .get panic attacks when i get pains but got the most unhelpful
Please help got told im suffering from advancing emphysema!45years old and petrified. Its the pains i get at top of body up beside my shoulders and i took a deep breath one day to get a pain that felt like a sml stone falling down my lung .get panic attacks when i get pains but got the most unhelpful
Nevergiveup73
in
Lung Conditions Community Forum
6 years ago
Pulmonary hypertension
Good Evening. Does anyone have out of proportion pulmonary hypertension. My husband emphysema which seems stable but the problem seems to be The pulmonary hypertension. He overnight oxygen 2.5 and 7 ambulatory. The respiratory nurse at the hospital seams to know more than the community team which he
Good Evening. Does anyone have out of proportion pulmonary hypertension. My husband emphysema which seems stable but the problem seems to be The pulmonary hypertension. He overnight oxygen 2.5 and 7 ambulatory. The respiratory nurse at the hospital seams to know more than the community team which he
alyvonne
in
Lung Conditions Community Forum
6 years ago
The waiting room.
Sat here in the waiting room, Watching for my name. To go and see the doctor Well that is why I came. Not to watch the silver screen, For it to show my name. I watch TV at home not here That was not my aim. But now I keep my eyes glued, Cos my hearings not too good. I need to see my name on screen,
Sat here in the waiting room, Watching for my name. To go and see the doctor Well that is why I came. Not to watch the silver screen, For it to show my name. I watch TV at home not here That was not my aim. But now I keep my eyes glued, Cos my hearings not too good. I need to see my name on screen,
Hidden
in
Lung Conditions Community Forum
6 years ago
Stents
Hubby has APS and was on warfarin but was removed from it to insert 2 stents. They stopped the warfarin, and then put him on aspirin after stents inserted. He then, within days, had clots block the stents. They then inserted some sort of puffer machine to ‘puff’ out clots and put him on iv heparin. Now
Hubby has APS and was on warfarin but was removed from it to insert 2 stents. They stopped the warfarin, and then put him on aspirin after stents inserted. He then, within days, had clots block the stents. They then inserted some sort of puffer machine to ‘puff’ out clots and put him on iv heparin. Now
Debbiesue63
in
Hughes Syndrome APS Forum
6 years ago
Copd and iron deficiency
Hi,I have just been put on ferrous sulphate iron tablets as my GP said I have iron deficiency. Is anyone else with copd on these and do they help? Thank you
Hi,I have just been put on ferrous sulphate iron tablets as my GP said I have iron deficiency. Is anyone else with copd on these and do they help? Thank you
Lusciouslynda
in
Lung Conditions Community Forum
6 years ago
Lung volume reduction surgery
I have been proposed to have a LVR by keyhole surgery at the Brompton, has anyone had this proceedure and how did they get on with it? Was it succesfull, did it improve, any complications?
I have been proposed to have a LVR by keyhole surgery at the Brompton, has anyone had this proceedure and how did they get on with it? Was it succesfull, did it improve, any complications?
peter06
in
Lung Conditions Community Forum
6 years ago
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