Experiences with

Pulmocare

Has anyone experiencing blood in their urine a few years after radiation therapy? My doctor attributes it to Radiation Proctitis, which affects the blood vessels in the bladder neck. If any of you are or have experienced this, was there anything specific that seemed to cause it (i.e. bowel movement

Good morning ladies My wife was was diagnosed with HGOC in 2020. She received the usual treatment Chemo including debunking she's never been NED. Earlier this year it was found the disease had spread to supraclavicular nodes and she was advised watch and wait until they progressed which unfortunately

DIPNECH - carcinoid lung nodules. Has anybody had this recognised as cancer by DWP when there is minimal cancel active, although present? I was told by an ILD consultant at Rbh that they don’t? Even though it requires regular Pet CT scans. Bella.

This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor

I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because

Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this

My MO--whom I trust--has recommended Pluvicto as my "next best step", after 6 cycles of docetaxel didn't knock down my cancer growth. I was OK with her rec until today, when I had the consult with the nuclear medicine doc. He says they strictly follow the procedure in the VISION study and he hasn't

According to reported side effects data, about 4 % of people on interferon experience shortness of breath for one reason or another. I have been on interferon (Pegasys) for Jak2 ET since March of 2021. In 2021 I also noted that I was breathing heavily with minor exertion (walking). As I was a smoker

How Long Does it Take Lungs to Heal After Quitting Smoking? Time is the biggest factor when it comes to lung repair after quitting smoking. Just 12 hours after your last cigarette the carbon monoxide levels in your blood return to normal. This helps get your body the oxygen it needs

I think it is about 10 months since I last posted here - and a lot has been happening! My previous posts were all connected with my quest to discover why I always feel so tired and unwell and especially why I wake up after just a few hours sleep feeling really unwell. Last November, I bought a Wellue

My appointment for my Feno test finally arrived on Friday but I didn't know that it included a whole range of other tests too including a lung volume test. I didn't realise how badly my respiratory failure back in April had affected me but as soon as they closed the door of the compartment I felt sheer

Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know

Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know

I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125

So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching

I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged

Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to intubate my throat is sore for days but my ears-especially the right one are achy. I was debating why aching now; pollen count is moderate,and my jaw

I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any

Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what

Good morning, I have recently been diagnosed with Hypoxaemia & awaiting home oxygen, 3 months waiting list I've been told il have to at least wait, I have COPD, ENLARGED HEART & PULMONARY OEDEMA yet nobody will explain what these diagnosis are or what medication the doctor/consultant should be prescribing