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DIPNECH diagnosis.
DIPNECH - carcinoid lung nodules. Has anybody had this recognised as cancer by DWP when there is minimal cancel active, although present? I was told by an ILD consultant at Rbh that they don’t? Even though it requires regular Pet CT scans. Bella.
DIPNECH - carcinoid lung nodules. Has anybody had this recognised as cancer by DWP when there is minimal cancel active, although present? I was told by an ILD consultant at Rbh that they don’t? Even though it requires regular Pet CT scans. Bella.
Bellaowl
in
Lung Conditions Community Forum
2 months ago
Eliquis
This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor
This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor
Vmarti
in
Hughes Syndrome APS Forum
2 months ago
Advice about experts at London Bridge Hospital
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
Annslack
in
Hughes Syndrome APS Forum
4 months ago
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Warfarin
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Willow7733
in
Hughes Syndrome APS Forum
4 months ago
Interferon: Short of Breath?
According to reported side effects data, about 4 % of people on interferon experience shortness of breath for one reason or another. I have been on interferon (Pegasys) for Jak2 ET since March of 2021. In 2021 I also noted that I was breathing heavily with minor exertion (walking). As I was a smoker
According to reported side effects data, about 4 % of people on interferon experience shortness of breath for one reason or another. I have been on interferon (Pegasys) for Jak2 ET since March of 2021. In 2021 I also noted that I was breathing heavily with minor exertion (walking). As I was a smoker
Planti
in
MPN Voice
5 days ago
How Long Does it Take Lungs to Heal After Quitting Smoking?
How Long Does it Take Lungs to Heal After Quitting Smoking?
Time is the biggest factor when it comes to lung repair after quitting smoking.
Just 12 hours after your last cigarette the carbon monoxide levels in your blood return to normal. This helps get your body the oxygen it needs
How Long Does it Take Lungs to Heal After Quitting Smoking?
Time is the biggest factor when it comes to lung repair after quitting smoking.
Just 12 hours after your last cigarette the carbon monoxide levels in your blood return to normal. This helps get your body the oxygen it needs
jillygirl
Administrator
in
Quit Support
29 days ago
A Lot Has Been Going On Since I Last Posted
I think it is about 10 months since I last posted here - and a lot has been happening! My previous posts were all connected with my quest to discover why I always feel so tired and unwell and especially why I wake up after just a few hours sleep feeling really unwell. Last November, I bought a Wellue
I think it is about 10 months since I last posted here - and a lot has been happening! My previous posts were all connected with my quest to discover why I always feel so tired and unwell and especially why I wake up after just a few hours sleep feeling really unwell. Last November, I bought a Wellue
Channeal
in
British Heart Foundation
1 month ago
Lung volume test
My appointment for my Feno test finally arrived on Friday but I didn't know that it included a whole range of other tests too including a lung volume test. I didn't realise how badly my respiratory failure back in April had affected me but as soon as they closed the door of the compartment I felt sheer
My appointment for my Feno test finally arrived on Friday but I didn't know that it included a whole range of other tests too including a lung volume test. I didn't realise how badly my respiratory failure back in April had affected me but as soon as they closed the door of the compartment I felt sheer
Coughingalltheway
in
Lung Conditions Community Forum
1 month ago
Shock diagnosis
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Atrial Fibrillation Support
7 months ago
Diagnosed last Friday AF
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Anticoagulation Support
7 months ago
Niraparib
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
Berryporridgr
in
My Ovacome
7 months ago
Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
7 months ago
clotting whilst on warfarin for clots in lungs.
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
130396
in
MPN Voice
8 months ago
8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
8 months ago
A simple life with Acalabrutinib?
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Fogey
in
CLL Support
8 months ago
Had the ablation.
Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to intubate my throat is sore for days but my ears-especially the right one are achy. I was debating why aching now; pollen count is moderate,and my jaw
Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to intubate my throat is sore for days but my ears-especially the right one are achy. I was debating why aching now; pollen count is moderate,and my jaw
Karenjaninaz
in
PMRGCAuk
5 months ago
Taking Rivaroxaban to prevent DVT.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
Pomelokhaoyai
in
AF Association
8 months ago
Lung Volume Reduction
https://gofund.me/d9593044 If I get offered NHS surgery, great and all monies raised on my gofundme will be donated to lung Disease charities
https://gofund.me/d9593044 If I get offered NHS surgery, great and all monies raised on my gofundme will be donated to lung Disease charities
Trevor6
in
COPD Friends
7 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
10 months ago
Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
10 months ago
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