I've posted a few times and still in no man's land (hopefully it will get better on my second haem appointment on 22nd).
So far: ET possible - no secondary causes for thrombocytosis (everything normal which is great) ;platelets hovering around 500; previous pulmonary embolism at age 18 - 20 years ago; jak 2 negative ;awaiting CALR and MPL results; spleen normal;BMB stated as morphologically normal - shows no blasts (<1%), normal maturation of all myeloid cells and no atypical megakaryocytes but notes say 70% cellular (seems slightly high given age is 40?) and grade 1 fibrosis normal. I'm wondering where on earth this will go with diagnosis and wondered if anyone else with normal BMB had an ET diagnosis? Also, I thought grade 1 fibrosis is minor changes not normal per se but I guess it depends what grade classification they use for fibrotic changes (some start at 0 and some start at 1). I've left messages for haem to have some confirmation before appointment but don't seem keen to get back to me. The waiting is horrible.
Sorry for rant - any comments welcome (I also realise that all considered I'm very lucky)