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I posted about a month ago and didn't get any responses. I think it might be because I didn't have much information in the Profile section. I've updated my profile and did the best I can to describe my story. I had HDR Brachytherapy in 2018 to treat prostate cancer. The specifics are now in my Profile
I posted about a month ago and didn't get any responses. I think it might be because I didn't have much information in the Profile section. I've updated my profile and did the best I can to describe my story. I had HDR Brachytherapy in 2018 to treat prostate cancer. The specifics are now in my Profile
Jimbo47
in
Prostate Cancer Network
3 months ago
varices grade 2
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
oap74
in
British Liver Trust
6 months ago
LAST CALL: In-person Liverpool workshop tomorrow for those living with advanced liver disease (and carers/relatives)
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
BritishLiverTrust1
Partner
in
British Liver Trust
6 months ago
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PSMA PET
I am 60 years old, PSA 6.03 and diagnosed with PC after a TRUS biopsy January 22. The biopsy showed 5 of 12 samples with cancer. Of the 5 samples, 4 were on the right side and were 3 +3=6. The 5th sample was on the left and was 3+4=7. My Urologist sent me for a PSMA PET scan on February 22. The
I am 60 years old, PSA 6.03 and diagnosed with PC after a TRUS biopsy January 22. The biopsy showed 5 of 12 samples with cancer. Of the 5 samples, 4 were on the right side and were 3 +3=6. The 5th sample was on the left and was 3+4=7. My Urologist sent me for a PSMA PET scan on February 22. The
Publicservant
in
Prostate Cancer Network
3 months ago
windyway
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Windyway
in
Pernicious Anaemia Society
2 months ago
Information required
Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
welsh12
in
Thyroid UK
2 months ago
PALB2 genetic defect-Lynparza
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
Azores1
in
Advanced Prostate Cancer
6 months ago
Staring at my unopened bottle of Orgovyx
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
mababa
in
Advanced Prostate Cancer
3 months ago
Cancer Risk vs %Free PSA Ratio
Here's a plot of the Risk (probability) of getting prostate cancer versus the % Free PSA / Total PSA ratio, for three different ages: 55, 65 and 75 y.o.. Interestingly, the PCa risk decreases as the % Free PSA ratio increases. All men who have their PSA measured should ask for the
% Free PSA
Here's a plot of the Risk (probability) of getting prostate cancer versus the % Free PSA / Total PSA ratio, for three different ages: 55, 65 and 75 y.o.. Interestingly, the PCa risk decreases as the % Free PSA ratio increases. All men who have their PSA measured should ask for the
% Free PSA
janebob99
in
Prostate Cancer Network
3 months ago
Durability of Pluvicto treatment?
Just completed Pluvicto treatment #5 of 6 and extremely thankful for the good results. Had a PSMA Pet scan before #5 and it shows that PCa continues to disappear (read from right to left — pre-treatment, after two treatments, and after four treatments). Hoping for pretty much 100% remission after #6
Just completed Pluvicto treatment #5 of 6 and extremely thankful for the good results. Had a PSMA Pet scan before #5 and it shows that PCa continues to disappear (read from right to left — pre-treatment, after two treatments, and after four treatments). Hoping for pretty much 100% remission after #6
Skifanatic
in
Advanced Prostate Cancer
6 months ago
Views on study design for lupus nephritis research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
Debbie_kinsey
Administrator
in
LUPUS UK
2 months ago
Living with alcohol related cirrhosis- I know it varies but whats "normal"?
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
BoHo73
in
British Liver Trust
6 months ago
Bolt this ones for you, binaural beats and Parkinson’s tremor.
In this study, we found an improvement of resting tremor when applying BBS in the gamma frequency band OFF medication. Moreover, the positive effects of CAS underline the general positive potential for improvement of motor function by acoustically supported therapeutic approaches. https://www.ncbi.nlm.nih.gov
In this study, we found an improvement of resting tremor when applying BBS in the gamma frequency band OFF medication. Moreover, the positive effects of CAS underline the general positive potential for improvement of motor function by acoustically supported therapeutic approaches. https://www.ncbi.nlm.nih.gov
House2
in
Cure Parkinson's
6 months ago
Methotrexate and antibiotics
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
Grizzly-bear
in
Vasculitis UK
2 months ago
Hashimoto's and pain in muscles and joints
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hashiskip18
in
Thyroid UK
2 months ago
Abiraterone from 4 tabs daily to 3
Finally cracked with MO concerning high blood pressure while using Abiraterone. History of high blood pressure that has went to the ceiling while using Abiraterone. Cardiologist has changed BP meds multiple times with very little relief. Some times during day BO is 180/100 or higher. The Lupron/Abiraterone
Finally cracked with MO concerning high blood pressure while using Abiraterone. History of high blood pressure that has went to the ceiling while using Abiraterone. Cardiologist has changed BP meds multiple times with very little relief. Some times during day BO is 180/100 or higher. The Lupron/Abiraterone
85236442968
in
Advanced Prostate Cancer
3 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
2 months ago
Malar Rash
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Tonkie
in
LUPUS UK
2 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
2 months ago
Help on blood test results
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Peppermints
in
LUPUS UK
2 months ago
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