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Introduction to our newer members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
28 days ago
Wednesday's Word
[u][i]
fibrosis
[/i][/u] https://liverfoundation.org/about-your-liver/how-liver-diseases-progress/fibrosis-scarring/#:~:text=Fibrosis%20can%20be%20reversed%20if,to%20cirrhosis%20and%20liver%20cancer. Just click on the link that appears next for the entire posting from The American Liver
[u][i]
fibrosis
[/i][/u] https://liverfoundation.org/about-your-liver/how-liver-diseases-progress/fibrosis-scarring/#:~:text=Fibrosis%20can%20be%20reversed%20if,to%20cirrhosis%20and%20liver%20cancer. Just click on the link that appears next for the entire posting from The American Liver
DonnaBoll
Administrator
in
PBC Foundation
28 days ago
SPARX3 study of treadmill exercise for Parkinson’s recruiting at 24 sites
Participants in the study, who must have a disease duration shorter than three years, will be randomly assigned to 18 months of treadmill exercise, for 30 minutes four times per week. This aerobic workout will be done either at high intensity — to keep patients’ heart rates at 80% to 85% of maximum
Participants in the study, who must have a disease duration shorter than three years, will be randomly assigned to 18 months of treadmill exercise, for 30 minutes four times per week. This aerobic workout will be done either at high intensity — to keep patients’ heart rates at 80% to 85% of maximum
Farooqji
in
Cure Parkinson's
29 days ago
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Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
7 months ago
Milk thistle
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Hidden
in
British Liver Trust
29 days ago
Not Eating
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
MissS_Zebra9
in
British Liver Trust
29 days ago
Liver stent
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Gweans
in
British Liver Trust
30 days ago
Has xtandi failed?
I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago PSA was 0.06. I asked my doctor if xtandi has failed, he told me not necessarily. He told me once your PSA reached its lowest point it fluctuates up and down until it stabilized. I will have PSA checked again in 6 weeks
I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago PSA was 0.06. I asked my doctor if xtandi has failed, he told me not necessarily. He told me once your PSA reached its lowest point it fluctuates up and down until it stabilized. I will have PSA checked again in 6 weeks
Echotango51
in
Advanced Prostate Cancer
7 months ago
fell kt/v test
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
Beachgirl32
in
Kidney Dialysis
1 month ago
organizing
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
blood test results for liver. Advice welcome please
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
Doraflora
in
British Liver Trust
1 month ago
Just a touch away: CT-optimal touch perception and its influence on pain and itch
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Psychologist Larissa Meijer has discovered that gentle caresses from a partner can provide relief from chronic pain. This treatment has no side effects and can be done at home. It should normally be free too 🙂 Meijer has demonstrated the effect of light stroking on pain and itchiness in Parkinson's
Esperanto
in
Cure Parkinson's
1 month ago
Sourcing levothyroxine without prescription in the UK
Hello, As per my reply to another post earlier, the endo that I saw regarding adrenal insufficiency recently included a throw-away line in the subsequent letter to my GP recommending that the levothyroxine that I have been taking for 12 years be stopped. Unfortunately, the GP instantly removed levothyroxine
Hello, As per my reply to another post earlier, the endo that I saw regarding adrenal insufficiency recently included a throw-away line in the subsequent letter to my GP recommending that the levothyroxine that I have been taking for 12 years be stopped. Unfortunately, the GP instantly removed levothyroxine
JumpJiving
in
Thyroid UK
1 month ago
Bang for your buck
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
1 month ago
Heart Disease and Abiraterone/Zytiga
Hello Warriors My husband had a calcium score done and it shows atherosclerotic disease. Dr wants to increase statin dose but the Zytiga side effects are giving him increase joint pain and discomfort.We will see his cardiologist in April. Have any of you seen any increase in heart related issues( calcification
Hello Warriors My husband had a calcium score done and it shows atherosclerotic disease. Dr wants to increase statin dose but the Zytiga side effects are giving him increase joint pain and discomfort.We will see his cardiologist in April. Have any of you seen any increase in heart related issues( calcification
Keeper70
in
Advanced Prostate Cancer
3 months ago
requesting a IgA anti-TTG test in the UK
I have coeliac disease. The other day I talked to a doctor (over the phone, of course) to discuss results of my blood test. I then said that I would like to request a IgA anti-TTG test for my son (as you know, this is done through a blood test). I was told that now doctors can no longer request this
I have coeliac disease. The other day I talked to a doctor (over the phone, of course) to discuss results of my blood test. I then said that I would like to request a IgA anti-TTG test for my son (as you know, this is done through a blood test). I was told that now doctors can no longer request this
angelias
in
Gluten Free Guerrillas
1 month ago
Ivermectin may help with cancer treatments
Studies of various chronic myeloid leukemia cell lines show that ivermectin kills these lines by inducing mitochondrial dysfunction and the production of free radicals. In mice with leukemia, ivermectin increases the influx of chloride ions in the cells, promoting cell death. When ivermectin is combined
Studies of various chronic myeloid leukemia cell lines show that ivermectin kills these lines by inducing mitochondrial dysfunction and the production of free radicals. In mice with leukemia, ivermectin increases the influx of chloride ions in the cells, promoting cell death. When ivermectin is combined
craterlake
in
CLL Support
1 month ago
documentary one in 37 by Cure Parkinson’s NZ
https://www.cureparkinsonsnz.org.nz/one-in-37-documentary/ ”Our full-length, 60-min documentary tells the personal stories of five individuals living with Parkinson’s disease and highlights the New Zealand research effort to develop therapies that can stop or slow disease progression. It also breaks
https://www.cureparkinsonsnz.org.nz/one-in-37-documentary/ ”Our full-length, 60-min documentary tells the personal stories of five individuals living with Parkinson’s disease and highlights the New Zealand research effort to develop therapies that can stop or slow disease progression. It also breaks
LAJ12345
in
Cure Parkinson's
1 month ago
He lived a wonderful life
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
Merlot1
in
Advanced Prostate Cancer
7 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
8 months ago
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