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Another notice of passing that prompt me to update my profile.
Updating my profile made me remember this quote from a comment on a post a few days ago. I want to share it because I agree, especially with the last paragraph. But before judging me, please read my newly updated profile.This quote comes from a discussion on a video ( of which I forgot to copy the YouTube
Updating my profile made me remember this quote from a comment on a post a few days ago. I want to share it because I agree, especially with the last paragraph. But before judging me, please read my newly updated profile.This quote comes from a discussion on a video ( of which I forgot to copy the YouTube
Blueribbon63
in
Advanced Prostate Cancer
4 months ago
2nd Prostap Injection and still heavy bleeding....
i had my 2nd
Prostap
SR
injection last week and have been bleeding heavily since, the same as after my 1st injection, has anyone else come across this? Did anyone's periods actually stop? I am starting to loose faith in this 'miracle' injection....
i had my 2nd
Prostap
SR
injection last week and have been bleeding heavily since, the same as after my 1st injection, has anyone else come across this? Did anyone's periods actually stop? I am starting to loose faith in this 'miracle' injection....
Kya1410
in
Women's Health
2 years ago
What remains?
My husband's PSA count is 3631. He's had every treatment bar Lutetium and immunotherapy and he doesn't have the BRCA gene. Are we at EOL? He, although emaciated, believes that it's not over yet.
My husband's PSA count is 3631. He's had every treatment bar Lutetium and immunotherapy and he doesn't have the BRCA gene. Are we at EOL? He, although emaciated, believes that it's not over yet.
Eala
in
Advanced Prostate Cancer
4 months ago
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PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
8 months ago
Whats high PSA? ( when you havent been diagnosed with prostate cancer)
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
Daddysgirl83
in
Advanced Prostate Cancer
8 months ago
PSA level six months Eligard
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
toyman79912
in
Advanced Prostate Cancer
8 months ago
Blood work question
My husband just got round # 4 of chemo yesterday and bloodwork was done the day before. Doctor not concerned with anything on the blood work and did say that it is expected to change with each round of chemo. Everything looked good and hardly any changes but one flag I see was the Red cell distribution
My husband just got round # 4 of chemo yesterday and bloodwork was done the day before. Doctor not concerned with anything on the blood work and did say that it is expected to change with each round of chemo. Everything looked good and hardly any changes but one flag I see was the Red cell distribution
positive-thinking
in
Advanced Prostate Cancer
5 months ago
Moved from Abi to Nubeqa and saw a PSA increase
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
Steel67
in
Advanced Prostate Cancer
8 months ago
Seeking help with Radiation Therapy
Im 62 and had RP back in 2015. My PSA started rising bout a year ago. Its now .28. Im scheduled to have Salvage Radiation in 2 weeks Id like to ask individuals whove had RP and done Salvage Radiation at least 2 yrs ago. Please answer the following questions 1 Age when taking the radiation 2 PSA
Im 62 and had RP back in 2015. My PSA started rising bout a year ago. Its now .28. Im scheduled to have Salvage Radiation in 2 weeks Id like to ask individuals whove had RP and done Salvage Radiation at least 2 yrs ago. Please answer the following questions 1 Age when taking the radiation 2 PSA
Drago101
in
Advanced Prostate Cancer
5 months ago
deciding whether to do pluvicto with hemoglobin around 8
Metastatic prostate cancer to multiple lymph nodes, lungs, bone Mets to spine, ribs, pelvis, femur. PSA 22. Gleason 9. ADT for 7 years, failed zytiga after being on it for 3 years, failed 3 rounds of doxetaxol this past fall. Radiation treatments to pelvis in 2021 and spine, hip in 2023. Had BRCA mutations
Metastatic prostate cancer to multiple lymph nodes, lungs, bone Mets to spine, ribs, pelvis, femur. PSA 22. Gleason 9. ADT for 7 years, failed zytiga after being on it for 3 years, failed 3 rounds of doxetaxol this past fall. Radiation treatments to pelvis in 2021 and spine, hip in 2023. Had BRCA mutations
LJGD
in
Advanced Prostate Cancer
5 months ago
Slowly Rising PSA - Getting Nervous
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
raisin123
in
Advanced Prostate Cancer
8 months ago
Fears confirmed
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
Willie51
in
Prostate Cancer And Gay Men
5 months ago
How soon after stopping Zoladex, prostap etc did you get your period ? And how soon after stopping did you stop using HRT?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Amber83
in
Endometriosis UK
2 years ago
PSA still undetectable?
Prostatectomy September 2022. PSA since op 0.01 latest PSA 0.03 Urologist states will check it again in 3 months rather then 6. 0.03 still very low but why the rise. Could the cause be micro prostate cancer cells hiding somewhere? PSMA pet scan pre op all clear apart from the two lesions in Prostate
Prostatectomy September 2022. PSA since op 0.01 latest PSA 0.03 Urologist states will check it again in 3 months rather then 6. 0.03 still very low but why the rise. Could the cause be micro prostate cancer cells hiding somewhere? PSMA pet scan pre op all clear apart from the two lesions in Prostate
Aussieguy1
in
Prostate Cancer And Gay Men
5 months ago
Looking for Estrogen users...
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
janebob99
in
Prostate Cancer Network
5 months ago
Looking for Estrogen Users...
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
janebob99
in
Advanced Prostate Cancer
5 months ago
New therapy (I hope I am not repeating myself)
https://www.urologytimes.com/view/antibody-drug-conjugate-plus-docetaxel-shows-promise-in-metastatic-prostate-cancer The novel antibody-drug conjugate PDS0301 (M9241) in combination with docetaxel demonstrated promising safety and immune response signals in patients with metastatic castration-sensitive
https://www.urologytimes.com/view/antibody-drug-conjugate-plus-docetaxel-shows-promise-in-metastatic-prostate-cancer The novel antibody-drug conjugate PDS0301 (M9241) in combination with docetaxel demonstrated promising safety and immune response signals in patients with metastatic castration-sensitive
Maxone73
in
Advanced Prostate Cancer
9 months ago
Scans other than PSMA for PC
My husband’s PSA continues to rise yet his PSMA scans are all clear. His last PSMA was late October with a PSA of 4.7 His PSA today was 6.5 It seems I have noted on this forum some other type scans should be done besides PSMA. His ALK PHOSPHATE is 85 (normal) Calcium levels all normal. Thanks
My husband’s PSA continues to rise yet his PSMA scans are all clear. His last PSMA was late October with a PSA of 4.7 His PSA today was 6.5 It seems I have noted on this forum some other type scans should be done besides PSMA. His ALK PHOSPHATE is 85 (normal) Calcium levels all normal. Thanks
JolleySprings
in
Advanced Prostate Cancer
8 months ago
Should I be concerned about a PSA of 0.53 after SBRT treatment for one spot.
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
VCinTx
in
Advanced Prostate Cancer
8 months ago
Stopping Abi?
I meet with my MO Thursday. We will likely discuss coming off Abiraterone, as my 2 year anniversary is upcoming. Probably continue on Eligard for another year, following stampede trial. PSA reached undetectable early in my treatment and remains undetectable. SE. aren’t fun, but manageable. Don’t
I meet with my MO Thursday. We will likely discuss coming off Abiraterone, as my 2 year anniversary is upcoming. Probably continue on Eligard for another year, following stampede trial. PSA reached undetectable early in my treatment and remains undetectable. SE. aren’t fun, but manageable. Don’t
Gatodd
in
Advanced Prostate Cancer
8 months ago
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