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interesting article
Financial Toxicity Common, Stressful in Metastatic Prostate Cancer Natasha Persaud Share on Facebook Share on Twitter Share on LinkedIn Share on Reddit Print Share by Email More than half of men with metastatic prostate cancer report at least some financial toxicity related to
Financial Toxicity Common, Stressful in Metastatic Prostate Cancer Natasha Persaud Share on Facebook Share on Twitter Share on LinkedIn Share on Reddit Print Share by Email More than half of men with metastatic prostate cancer report at least some financial toxicity related to
RCOG2000
in
Advanced Prostate Cancer
9 months ago
PSA still undectable
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
Brysonal
in
Fight Prostate Cancer
3 months ago
Radiation PSA, Orgovyx, Bone density Update
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.85 on 1/29/24. Disappointing to say the least I see MO next week and presume we start the Plarify scan to identify source and possibly more radiation to kill it. Switch from Eligard to Orgovyx since
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.85 on 1/29/24. Disappointing to say the least I see MO next week and presume we start the Plarify scan to identify source and possibly more radiation to kill it. Switch from Eligard to Orgovyx since
alperk
in
Advanced Prostate Cancer
3 months ago
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ED & zero libido
Three years on from diagnosis and nearly three year of no sexual function. A big loss between my wife and I thought we don’t really talk about it. My GP prescribes viagra but without the desire, little effect. Also given a pump but something makes me resistant to try it. Having said all this I have
Three years on from diagnosis and nearly three year of no sexual function. A big loss between my wife and I thought we don’t really talk about it. My GP prescribes viagra but without the desire, little effect. Also given a pump but something makes me resistant to try it. Having said all this I have
FortyWinks
in
Advanced Prostate Cancer
7 months ago
Update on dads visit with his MO today
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Radtech40
in
Advanced Prostate Cancer
3 months ago
Retzius Sparing surgeon recommendations
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
UnexpectedPC
in
Prostate Cancer Network
3 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
3 months ago
Is EBRT effective for right pelvic bone prostate cancer? What are the side effects?
please let me know your experience as to side effects. Is it a good ideal to use EBRT for the right pelvic bone prostate cancer? So far I have had no bone pain.
please let me know your experience as to side effects. Is it a good ideal to use EBRT for the right pelvic bone prostate cancer? So far I have had no bone pain.
tarzantass
in
Advanced Prostate Cancer
9 months ago
I wonder if anyone knows why or has experienced a rise on PSA level (from 70 to 274), 6 months after radiation therapy (VMAT x 26 sessions)?
Before and after radiation therapy, dad was taking Bicalutamide 50 mg and Alfuzosin50 mg together with a quarterly Leuprorelin injection. This month (October), after receiving his Leuprorelin injection, Urologist advised to stop taking Bicalutamide as it is no longer effective due to hormone resistance
Before and after radiation therapy, dad was taking Bicalutamide 50 mg and Alfuzosin50 mg together with a quarterly Leuprorelin injection. This month (October), after receiving his Leuprorelin injection, Urologist advised to stop taking Bicalutamide as it is no longer effective due to hormone resistance
Iloveyoudad
in
Advanced Prostate Cancer
7 months ago
Just joined the club no one wants to be a member of in April 2023 - can Gleason 9 be cured ?
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
68Guitar
in
Advanced Prostate Cancer
7 months ago
Xtandi vs Orgovyx
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Captj440
in
Advanced Prostate Cancer
8 months ago
CT urogram
Hi all, when my husband first had symptoms synonymous with Pca he was sent for a CT urogram, we never knew his PSA result, this came back OK. 9 months later an MRI and a subsequent biopsy showed he was Gleason 9 with widespread bone metastasis. Has anyone else had a CT urogram which picked up Pca because
Hi all, when my husband first had symptoms synonymous with Pca he was sent for a CT urogram, we never knew his PSA result, this came back OK. 9 months later an MRI and a subsequent biopsy showed he was Gleason 9 with widespread bone metastasis. Has anyone else had a CT urogram which picked up Pca because
NLondon43
in
Advanced Prostate Cancer
3 months ago
I am still struggling with treatment decisions - Help please.
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
Nordman
in
Advanced Prostate Cancer
3 months ago
Gleason 10 Stage 4 Metastatic Responding Well to Treatment
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
Brad70
in
Advanced Prostate Cancer
8 months ago
Orchiectomy and Psa
Can anyone who has had Bilateral Ochiectomy tell me if there is a certain psa level required before surgery can be done. Thanks Guys Knittingque
Can anyone who has had Bilateral Ochiectomy tell me if there is a certain psa level required before surgery can be done. Thanks Guys Knittingque
Knittingque
in
Advanced Prostate Cancer
3 months ago
Psa doubled in less than a month
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
spencoid2
in
Advanced Prostate Cancer
7 months ago
Just had My Monthly Injection of Firmagon Monthly Labs PSA is Up <0.06 to 0.09
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
liver Mets, Pluvicto failed
diagnosed 2021, spread to distant lymph nodes. Castrate resistant within 6 months. Had platinum based chemo. Stabilized for bit. 4 Pluvicto treatments. PSA went from 4 to 70. Latest scans show new mets to liver. Genetic testing shows ATM mutation. Where to go from here?
diagnosed 2021, spread to distant lymph nodes. Castrate resistant within 6 months. Had platinum based chemo. Stabilized for bit. 4 Pluvicto treatments. PSA went from 4 to 70. Latest scans show new mets to liver. Genetic testing shows ATM mutation. Where to go from here?
mysticmini
in
Advanced Prostate Cancer
3 months ago
Update on PSA spike after radiation.
A quick update. Was diagnosed April 2023 PSA of 9. Had Cyberknife in November. 1st PSA (at 60 days was 11.96). This alarmed me. They told me to wait another 6weeks and test. Today it was 9.1. I'm considering this a win for now. Am I wrong?
A quick update. Was diagnosed April 2023 PSA of 9. Had Cyberknife in November. 1st PSA (at 60 days was 11.96). This alarmed me. They told me to wait another 6weeks and test. Today it was 9.1. I'm considering this a win for now. Am I wrong?
Chasbearcat999
in
Prostate Cancer Network
3 months ago
some not great news/ still a lot unknown
I’ve posted before about my first introductions to prostate cancer: primarily significantly increased PSA yr to yr (3 to 6+). Did the EXODX urine test and score came back 25.9 out of 100 (15.9 being the cut off to keep from proceeding with biopsy, so I figured I’d at least need to do that. ) Finally
I’ve posted before about my first introductions to prostate cancer: primarily significantly increased PSA yr to yr (3 to 6+). Did the EXODX urine test and score came back 25.9 out of 100 (15.9 being the cut off to keep from proceeding with biopsy, so I figured I’d at least need to do that. ) Finally
Willie51
in
Prostate Cancer And Gay Men
3 months ago
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