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Appreciate feedback on my going forward plan & timing
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
Murk
in
Prostate Cancer Network
9 months ago
Cytoreductive Prostatectomy & Oligometastatic PCa.
New meta-analysis below [1]. The day that I had a prostatectomy, my surgeon had another operation. The man was found to have cancer in a lymph node, so was stapled-up with his prostate intact. This was in 2004 & debulking was considered to be pointless since the patient would be receiving systemic
New meta-analysis below [1]. The day that I had a prostatectomy, my surgeon had another operation. The man was found to have cancer in a lymph node, so was stapled-up with his prostate intact. This was in 2004 & debulking was considered to be pointless since the patient would be receiving systemic
pca2004
in
Fight Prostate Cancer
11 months ago
Full Pelvic Radiation
My doc stopped the orgovyx I was taking because after just 2 weeks my PSA started to rise 10 points, then the second month it had risen another 10 points.. So now I just got my first Lupron injection. I chose once a month injections to see how well it works. If it works I'll increase it to 3 month injections
My doc stopped the orgovyx I was taking because after just 2 weeks my PSA started to rise 10 points, then the second month it had risen another 10 points.. So now I just got my first Lupron injection. I chose once a month injections to see how well it works. If it works I'll increase it to 3 month injections
woppaginny
in
Advanced Prostate Cancer
7 months ago
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Revisiting Intermittent Therapy in Metastatic Prostate Cancer
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
skiingfiend
in
Advanced Prostate Cancer
9 months ago
Genomic testing
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
runtrails
in
Advanced Prostate Cancer
7 months ago
Finding Support Groups
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
gbpmdjd
in
Advanced Prostate Cancer
10 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
7 months ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
10 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
7 months ago
Indomethacin - resenisitize to Enza
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
Hidden
in
Fight Prostate Cancer
9 months ago
ARX517: mCRPC treatment, if you want to know about it live via a webcast
22 october...if weather forecast says it will rain, if you are done painting the fence, if you think the Browns are will lose anyway, if you really have nothing better to do: https://lifescievents.com/event/ambrx/ results from arx517 will be presented, it looks promising, it had basically a 100% success
22 october...if weather forecast says it will rain, if you are done painting the fence, if you think the Browns are will lose anyway, if you really have nothing better to do: https://lifescievents.com/event/ambrx/ results from arx517 will be presented, it looks promising, it had basically a 100% success
Maxone73
in
Advanced Prostate Cancer
7 months ago
Post EBRT notes
So Im 3 weeks out from 33 fractions of 66GY to Pelvic and lymph nodes. Just got my monthly labs!! PSA is still <0.1. RO, and MO still refuse ultra sensitive!!! Had PSA done a month into radiation, and just now, but never raised. I thought dead PCa cells would give off PSA. My Lymphocytes are getting
So Im 3 weeks out from 33 fractions of 66GY to Pelvic and lymph nodes. Just got my monthly labs!! PSA is still <0.1. RO, and MO still refuse ultra sensitive!!! Had PSA done a month into radiation, and just now, but never raised. I thought dead PCa cells would give off PSA. My Lymphocytes are getting
Hidden
in
Advanced Prostate Cancer
10 months ago
Waiting for PSA Rise Post-Surgery Before Obtaining PSMA-PET– waiting too long can put some patients at risk, MedPage Today, July 6, 2023.
[i]
Anthony D'Amico, MD, on Waiting for PSA Rise Post-Surgery Before Obtaining PSMA-PET – Study suggests that waiting too long before obtaining PSMA-PET can put some patients at risk, MedPage Today, ASCO > Prostate Cancer, by Jeff Minerd , Contributing Writer, July 6, 2023
[/i]. After radical
[i]
Anthony D'Amico, MD, on Waiting for PSA Rise Post-Surgery Before Obtaining PSMA-PET – Study suggests that waiting too long before obtaining PSMA-PET can put some patients at risk, MedPage Today, ASCO > Prostate Cancer, by Jeff Minerd , Contributing Writer, July 6, 2023
[/i]. After radical
cujoe
in
Fight Prostate Cancer
10 months ago
Update
just an update from my last post. Martins prostate cancer which has now spread to his liver showed 4 small mets on the latest scan. 1 was large enough to do a biopsy. It is now showing small cell prostate cancer which we understand is quite aggressive. We are still waiting to see if the biopsy shows
just an update from my last post. Martins prostate cancer which has now spread to his liver showed 4 small mets on the latest scan. 1 was large enough to do a biopsy. It is now showing small cell prostate cancer which we understand is quite aggressive. We are still waiting to see if the biopsy shows
Believeit
in
Advanced Prostate Cancer
11 months ago
Experiances with Kaiser SF?
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
trregan
in
Prostate Cancer Network
7 months ago
Testosterone Vs. Testosterone Replacement Therapy
Need Feedback please RE: Natural Testosterone & TRT
Just spoke to my MO (a very well known Oncologist -here in LA) about my Testosterone.
Have been off Orgovyx now for 4 & half Months.
Latest Blood labs are Testosterone 79.
Oncologist says T probably will come back
Need Feedback please RE: Natural Testosterone & TRT
Just spoke to my MO (a very well known Oncologist -here in LA) about my Testosterone.
Have been off Orgovyx now for 4 & half Months.
Latest Blood labs are Testosterone 79.
Oncologist says T probably will come back
JWS13
in
Advanced Prostate Cancer
7 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
7 months ago
ADT duration
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
SimMartin
in
Advanced Prostate Cancer
9 months ago
Optimal ADT length of time along with radiation for a recurrence 5 years post surgery-research or studies please.
I know there are folks on here that can put their fingers on this quicker than I. There was a gentleman in the prostate cancer support group that I facilitate last evening with a recurrence of Gleason 4 + 5 , five years post-surgery. Could you please provide me with research studies or data indicating
I know there are folks on here that can put their fingers on this quicker than I. There was a gentleman in the prostate cancer support group that I facilitate last evening with a recurrence of Gleason 4 + 5 , five years post-surgery. Could you please provide me with research studies or data indicating
wilcoxsaw
in
Advanced Prostate Cancer
11 months ago
Sulforaphane to lower PSA?
Hi all, curious here if anyone onboard has had any positive PSA lowing results, (in the 40-60 mg doses), especially it is interesting in the Ultra-ranges, using ‘Sulforaphane’, a suppliment that uses the certain positive extracts of raw broccoli, there apparently are some good indicators of it being
Hi all, curious here if anyone onboard has had any positive PSA lowing results, (in the 40-60 mg doses), especially it is interesting in the Ultra-ranges, using ‘Sulforaphane’, a suppliment that uses the certain positive extracts of raw broccoli, there apparently are some good indicators of it being
Cetma
in
Prostate Cancer Network
7 months ago
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