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PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
9 months ago
Zytiga after failing nubeqa ?
Has anyone had any luck with Zytiga after nubeqa fails to hold down PSA? I have been mCRPC for a few years now and Im curious if there is any chance Zytiga would work after the combination of Orgovyx/Nubeqa failed. I had some good results years ago when I was still nmCRPC with Firmagon/Xtandi, but had
Has anyone had any luck with Zytiga after nubeqa fails to hold down PSA? I have been mCRPC for a few years now and Im curious if there is any chance Zytiga would work after the combination of Orgovyx/Nubeqa failed. I had some good results years ago when I was still nmCRPC with Firmagon/Xtandi, but had
joeguy
in
Advanced Prostate Cancer
8 months ago
Side Effects at 1 year
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
TMcgee
in
Advanced Prostate Cancer
8 months ago
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Locally Advanced PC - should I accept offer of docetaxel?
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
TsarskoMomche
in
Advanced Prostate Cancer
8 months ago
Effects of fenbendazole and vitamin E succinate on the growth and survival of prostate cancer cells
As I mentioned in a previous reply , here is an article on Fenben and VES.I added the VES (400mg} to my Fenben protocol few weeks age taken along with Tudca and Bovine Lactoferrin for my morning dosing. Mid afternoon it's Fenben/DMSO , Evening is Ivermectin / Tudca / Lactoferrin. Herbs etc in between
As I mentioned in a previous reply , here is an article on Fenben and VES.I added the VES (400mg} to my Fenben protocol few weeks age taken along with Tudca and Bovine Lactoferrin for my morning dosing. Mid afternoon it's Fenben/DMSO , Evening is Ivermectin / Tudca / Lactoferrin. Herbs etc in between
85745
in
Advanced Prostate Cancer
10 months ago
Thinking about stopping Xgeva
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
Professorgary
in
Advanced Prostate Cancer
5 months ago
On treating micro-metastatic disease
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
John347
in
Advanced Prostate Cancer
5 months ago
beta sitosterol
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Nowhereman9
in
Advanced Prostate Cancer
10 months ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
9 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
9 months ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
5 months ago
Pluvicto pain
my father has undergone 3 infusions of Pluvicto. He has psma and fdg completed with no significant discordance. I understand tumour flare tends to occur within the first week after infusion but he tends to have more discomfort towards the end of the cycle. We aren’t sure if it’s bone pain or muscle
my father has undergone 3 infusions of Pluvicto. He has psma and fdg completed with no significant discordance. I understand tumour flare tends to occur within the first week after infusion but he tends to have more discomfort towards the end of the cycle. We aren’t sure if it’s bone pain or muscle
Shanelle07
in
Advanced Prostate Cancer
5 months ago
Enzalutamide + Lupron
There was a new study released last week to show Enzalutamide + Lupron for high risk patients after RP or Radiation. I had RP 3/22 and PSA rising to .14 by 8/22 when I started Orgovyx and then later Zytiga. I've been having neuropathy side effects from Zytiga and interested if this might be better.
There was a new study released last week to show Enzalutamide + Lupron for high risk patients after RP or Radiation. I had RP 3/22 and PSA rising to .14 by 8/22 when I started Orgovyx and then later Zytiga. I've been having neuropathy side effects from Zytiga and interested if this might be better.
VanHalen84
in
Advanced Prostate Cancer
8 months ago
Scientists identify 11 new genes linked to aggressive prostate cancer
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
V10fanatic
in
Advanced Prostate Cancer
10 months ago
More about new therapies for us...I hope it helps to stay positive
I don't like this morning...so I try at least to stay positive by looking around the web... https://www.prnewswire.com/news-releases/first-patient-treated-with-cu-67-sar-bombesin-in-theranostic-prostate-cancer-trial-301945053.html https://www.renalandurologynews.com/home/news/urology/prostate-cancer
I don't like this morning...so I try at least to stay positive by looking around the web... https://www.prnewswire.com/news-releases/first-patient-treated-with-cu-67-sar-bombesin-in-theranostic-prostate-cancer-trial-301945053.html https://www.renalandurologynews.com/home/news/urology/prostate-cancer
Maxone73
in
Advanced Prostate Cancer
10 months ago
First post and learning as much as possible
Hi My husband is 59 and I have added as much info to my Bio as possible about him and this journey. We just found out yesterday that he is BRCA2 positive from blood germline testing. This is the first time I have posted but I have been reading everything several times a day for a few months now. He
Hi My husband is 59 and I have added as much info to my Bio as possible about him and this journey. We just found out yesterday that he is BRCA2 positive from blood germline testing. This is the first time I have posted but I have been reading everything several times a day for a few months now. He
positive-thinking
in
Advanced Prostate Cancer
5 months ago
What Helps Me With Hypochondria
Like many of you, my OCD often takes the form of hypochondria. I can't tell you the number of times I thought I was dying or the number of times I went to see a doctor because of some minor symptom. I've developed some coping strategies which helped me. I thought I'd share them here. 1. No checking
Like many of you, my OCD often takes the form of hypochondria. I can't tell you the number of times I thought I was dying or the number of times I went to see a doctor because of some minor symptom. I've developed some coping strategies which helped me. I thought I'd share them here. 1. No checking
Worrier1960
in
Anxiety and Depression Support
5 months ago
History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
9 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
5 months ago
Prostap - FET
Hi all Today I had my prostap injection in preparation for my FET. However I’ve been having slight cramps which I thought is probably due to my period being 5 days away (this will probably be delayed due to Prostap) but now I’m worrying because we had intercourse on 22nd Dec which would have been just
Hi all Today I had my prostap injection in preparation for my FET. However I’ve been having slight cramps which I thought is probably due to my period being 5 days away (this will probably be delayed due to Prostap) but now I’m worrying because we had intercourse on 22nd Dec which would have been just
TurquoiseWater
in
Fertility Network UK
2 years ago
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