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Some good news yesterday
I’m 66, dealing with PCa for 6 years, have had surgery and radiation 2x. Things were quiet for a year and a half. After a rapid rise in psa this spring, the docs at Duke put me on Lupron and Xtandi. The three month check up shows t level is down to 18, psa is 0.23, a decline of 96.5%. Thank God and
I’m 66, dealing with PCa for 6 years, have had surgery and radiation 2x. Things were quiet for a year and a half. After a rapid rise in psa this spring, the docs at Duke put me on Lupron and Xtandi. The three month check up shows t level is down to 18, psa is 0.23, a decline of 96.5%. Thank God and
CousinGrandpa
in
Advanced Prostate Cancer
1 month ago
on exercise again
not randomized, but still a very interesting study that wants to check the relation between PSA decline and quantity of exercise per week in men with localized prostate cancer https://jamanetwork.com/journals/jamaoncology/article-abstract/2821207
not randomized, but still a very interesting study that wants to check the relation between PSA decline and quantity of exercise per week in men with localized prostate cancer https://jamanetwork.com/journals/jamaoncology/article-abstract/2821207
Maxone73
in
Advanced Prostate Cancer
1 month ago
diarrhea flares ?
My dad had radiation that ended in January. Currently on Lupron. Had his last shot July 7th and his PSA was .02. He had a lot of issues post radiation, with diarrhea and gas, but that subsided and he has been good for a while. All the sudden these symptoms are happening again. When he had his last Lupron
My dad had radiation that ended in January. Currently on Lupron. Had his last shot July 7th and his PSA was .02. He had a lot of issues post radiation, with diarrhea and gas, but that subsided and he has been good for a while. All the sudden these symptoms are happening again. When he had his last Lupron
alysona828
in
Advanced Prostate Cancer
1 month ago
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I’d like to trBAT a but Dr. Danmeade requires a visit to Maryland. I live in SoCal and this does not work for me at this point
Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally one recent SBRT to hit five spots from my upper spine, ribs and hip. My PSA is still low. but starting to go up from 1.2 to currently 2.5. Dr
Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally one recent SBRT to hit five spots from my upper spine, ribs and hip. My PSA is still low. but starting to go up from 1.2 to currently 2.5. Dr
SViking
in
Advanced Prostate Cancer
1 month ago
Is this decision right for me
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
old64horn
in
Advanced Prostate Cancer
1 month ago
Chemotherapy- to do or not at 82 years ?
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
Simpson80
in
Advanced Prostate Cancer
1 month ago
Psma-pet scan results
PCa Warriors: I am on Active Surveillance(AS )with one core GL6 at 10%. I am part of a clinical trial that uses PSMA-pet scan to track progression. I guess the goal is to catch progression early and maybe avoid biopsies. The results are given below. Two things grabbed my attention from the report.
PCa Warriors: I am on Active Surveillance(AS )with one core GL6 at 10%. I am part of a clinical trial that uses PSMA-pet scan to track progression. I guess the goal is to catch progression early and maybe avoid biopsies. The results are given below. Two things grabbed my attention from the report.
witantric
in
Prostate Cancer Network
6 months ago
PSMA PET 7/17/2024 vs. Axumin PET 1/3/2024
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
dhccpa
in
Advanced Prostate Cancer
1 month ago
Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
1 month ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
1 month ago
My MSK Precise / SBRT Journey -- 2.5 Years Post-Treatment
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
Hope4Happiness
in
Prostate Cancer Network
1 month ago
Prostate Cancer PSA is detectible again
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
DLetterman
in
Prostate Cancer Network
1 month ago
What treatment next as PSA increasing on Daroludamide & Lupron
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
mklc
in
Advanced Prostate Cancer
1 month ago
Appointment with Provenge doctor
Finally found a local doctor to talk with about Provenge. Appointment is early Monday morning. For anyone familiar with Provenge, can you suggest questions for me to ask? My PSA has been rising after six years on Lupron only. 1.92 in June, all-time lows .5 3/2021.
Finally found a local doctor to talk with about Provenge. Appointment is early Monday morning. For anyone familiar with Provenge, can you suggest questions for me to ask? My PSA has been rising after six years on Lupron only. 1.92 in June, all-time lows .5 3/2021.
dhccpa
in
Advanced Prostate Cancer
1 month ago
Patient Stress and Anxiety Test
Ive been off of Abiraterone over 2 months now due to Afib. Was on it 21 months Only on Lupron starting 3rd year. Did full pelvic radiation. I treated myself to a Us PSA test, and Im at <0.02. MO agreed to let me stay off Abi, and retest in 3 months, Fingers crossed.
Ive been off of Abiraterone over 2 months now due to Afib. Was on it 21 months Only on Lupron starting 3rd year. Did full pelvic radiation. I treated myself to a Us PSA test, and Im at <0.02. MO agreed to let me stay off Abi, and retest in 3 months, Fingers crossed.
Still_in_shock
in
Advanced Prostate Cancer
1 month ago
PET Scan Results 030424
New PSMA avid sclerotic lesions in the left inferior pubic ramus, and bilateral symphysis pubis. Additional new small foci in the left acetabulum and supra-acetabular region. Index focus in the left symphysis pubis with a maximum SUV 20.4. RO will radiate but suggests change from Zytiga to Xtandi.
New PSMA avid sclerotic lesions in the left inferior pubic ramus, and bilateral symphysis pubis. Additional new small foci in the left acetabulum and supra-acetabular region. Index focus in the left symphysis pubis with a maximum SUV 20.4. RO will radiate but suggests change from Zytiga to Xtandi.
alperk
in
Advanced Prostate Cancer
6 months ago
Introduction and asking for help interpreting latest scan results and thoughts on future treatment plan please.
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
APCFighter
in
Advanced Prostate Cancer
1 month ago
Can Fenbendazole be taken along with Orgovyx?
My husband has just been diagnosed with advanced prostate cancer. The doctor plans to do a scan to see if it has spread and then put him on Orgovyx. I am concerned about side effects (he is 86) and was hoping fenbendazole could be used at the same time to help things along. Does anyone have experience
My husband has just been diagnosed with advanced prostate cancer. The doctor plans to do a scan to see if it has spread and then put him on Orgovyx. I am concerned about side effects (he is 86) and was hoping fenbendazole could be used at the same time to help things along. Does anyone have experience
chochip4
in
Prostate Cancer Network
6 months ago
Low Testosterone reduces Survival by a huge amount.
This plot compares prostate cancer specific mortality probability versus time for two different levels of testosterone: Low and Normal. The low testosterone has a median value of 162 ng/dL [120-236] and the average normal T = 680 ng/dL. The cohort is 58 men with unfavorable intermediate risk who underwent
This plot compares prostate cancer specific mortality probability versus time for two different levels of testosterone: Low and Normal. The low testosterone has a median value of 162 ng/dL [120-236] and the average normal T = 680 ng/dL. The cohort is 58 men with unfavorable intermediate risk who underwent
janebob99
in
Prostate Cancer Network
6 months ago
Next step after completed Oligometastatic prostate cancer treatment..
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
Maxi54
in
Advanced Prostate Cancer
4 months ago
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