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History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
9 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
5 months ago
Provenge
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
dhccpa
in
Advanced Prostate Cancer
8 months ago
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how long typically does it take from diagnosis to treatment?
Hello, my father was just diagnosed with advanced aggressive prostate cancer Gleason 9-10 (TBC). Bone scan and CT scan are next to check for spread (please God it hasn’t), but the scans are not for another 2.5 weeks! Then follow-up to discuss results a full week after that. Which seems insane that we
Hello, my father was just diagnosed with advanced aggressive prostate cancer Gleason 9-10 (TBC). Bone scan and CT scan are next to check for spread (please God it hasn’t), but the scans are not for another 2.5 weeks! Then follow-up to discuss results a full week after that. Which seems insane that we
LDC2024
in
Advanced Prostate Cancer
5 months ago
Psa is back
Well I made it to 27 months of upsa testing after my surgery and went from <0.01 to my first detectable of 0.01. Don’t know what this means but I guess the next few upsa tests will be telling. Maybe a lab variation maybe not.
Well I made it to 27 months of upsa testing after my surgery and went from <0.01 to my first detectable of 0.01. Don’t know what this means but I guess the next few upsa tests will be telling. Maybe a lab variation maybe not.
Blackholes
in
Advanced Prostate Cancer
5 months ago
My initial MRI and wait time for biopsy
Just got my MRI. PSA rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a pi-Rad level 4 lesion 10 ml, well defined with no infiltration. Either base peripheral zone 11 to 12 o clock or transitional mid gland zone 11 to 12 o clock. Will get the location cleared up. I have an MRI fusion
Just got my MRI. PSA rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a pi-Rad level 4 lesion 10 ml, well defined with no infiltration. Either base peripheral zone 11 to 12 o clock or transitional mid gland zone 11 to 12 o clock. Will get the location cleared up. I have an MRI fusion
jethrotullag
in
Prostate Cancer Network
5 months ago
Switch from Lupron/abi to Orgovyx/abi?
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
jackwfrench
in
Prostate Cancer Network
5 months ago
Being Thankful----Year 6
Greetings FPC members: Each year, I try and post at holiday times of reasons to be thankful regarding PCa developments, and I am thankful for so many things that I have, but we can all be thankful for : 1) NCI and it's support of clinical trials ( including the trials of cancer drugs like RRX-001
Greetings FPC members: Each year, I try and post at holiday times of reasons to be thankful regarding PCa developments, and I am thankful for so many things that I have, but we can all be thankful for : 1) NCI and it's support of clinical trials ( including the trials of cancer drugs like RRX-001
NPfisherman
in
Fight Prostate Cancer
8 months ago
MOST RECENT PSA and TESTOSTERONE TEST
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
GMan-62
in
Advanced Prostate Cancer
9 months ago
Order of treatment?
My husband has been on Abiraterone for 5 months during which time his PSA has risen,. Before that he had had 6 rounds of Docetaxel which also saw his PSA rise. Having waited for 6 weeks to have a biopsy and get the results for neuroendocrine PC (he didn’t have it) his oncologist has said he can either
My husband has been on Abiraterone for 5 months during which time his PSA has risen,. Before that he had had 6 rounds of Docetaxel which also saw his PSA rise. Having waited for 6 weeks to have a biopsy and get the results for neuroendocrine PC (he didn’t have it) his oncologist has said he can either
NLondon43
in
Advanced Prostate Cancer
8 months ago
https://www.oncogen.org/full-text/the-suppression-of-prolactin-is-required-for-the-treatment-of-advanced-prostate-cancer
After diagnosis of prostate cancer I found the U of Marylands success terminating cancer with clioquinol + zinc. They emphasis treatment for prolactin dependent cancer that my doctors didn't seem to know existed. Anyone else find that to be true?
After diagnosis of prostate cancer I found the U of Marylands success terminating cancer with clioquinol + zinc. They emphasis treatment for prolactin dependent cancer that my doctors didn't seem to know existed. Anyone else find that to be true?
agnut
in
Fight Prostate Cancer
10 months ago
low dose abiraterone and possible pain
Hello everyone, i am new here for my dad and found this community very helpful. Does anybody here find low dose protocol of abiraterone effective? Also, how do you treat bone pain? Or how do you determine if pain is coming from the bone or some other factors like chronic pelvic-prostate syndrome?
Hello everyone, i am new here for my dad and found this community very helpful. Does anybody here find low dose protocol of abiraterone effective? Also, how do you treat bone pain? Or how do you determine if pain is coming from the bone or some other factors like chronic pelvic-prostate syndrome?
dnmrk
in
Advanced Prostate Cancer
10 months ago
Some recent info on PSMA PET from "Urology Times"
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
NPfisherman
in
Fight Prostate Cancer
10 months ago
Treatment decision made
Decided to go the treatment route, took me a while but AS is no good mentally, PSA has crept up from 4.2 to 5.1 in 18 months, awaiting appt date with oncologist.Presumably SBRT as per discussion when diagnosed in autumn '22, will be at Christies Manchester. Will keep folk posted. Removal of the offending
Decided to go the treatment route, took me a while but AS is no good mentally, PSA has crept up from 4.2 to 5.1 in 18 months, awaiting appt date with oncologist.Presumably SBRT as per discussion when diagnosed in autumn '22, will be at Christies Manchester. Will keep folk posted. Removal of the offending
pd63
in
Prostate Cancer Network
5 months ago
seeking feedback on my case
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
tmscat
in
Advanced Prostate Cancer
9 months ago
Happy Thanksgiving Eve
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
dockam
in
Advanced Prostate Cancer
8 months ago
hypertension due to Lupron and Zytega
I was diagnosed in 2018 psa 87 Gleason 9 3 Mets low burden invasion to Vesicles Imrt radiation that caused calcification damage to bladder neck that has been resolved by hbot . I’m still have frequent urination at nigh due to thickening of bladder wall. I use top doctor vascular surgeon at penn
I was diagnosed in 2018 psa 87 Gleason 9 3 Mets low burden invasion to Vesicles Imrt radiation that caused calcification damage to bladder neck that has been resolved by hbot . I’m still have frequent urination at nigh due to thickening of bladder wall. I use top doctor vascular surgeon at penn
fredyworks
in
Advanced Prostate Cancer
5 months ago
Long Journey
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
MJCA
in
Prostate Cancer And Gay Men
5 months ago
Dalidoman
Newly diagnosed stage 4 prostate cancer, age 77, PSA in low 20 range. PSMA (type of PET scan) revealed metastasis to 7 bone sites, with intermittent hip pain alleviated with Tylenol. Occasionally short of breath because, I think, below normal hemoglobin, platelet and iron levels consistent with bone
Newly diagnosed stage 4 prostate cancer, age 77, PSA in low 20 range. PSMA (type of PET scan) revealed metastasis to 7 bone sites, with intermittent hip pain alleviated with Tylenol. Occasionally short of breath because, I think, below normal hemoglobin, platelet and iron levels consistent with bone
DAR1890
in
Advanced Prostate Cancer
5 months ago
Dad with Stage 4 PCa - Need some words of wisdom...again please!
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
kikinini
in
Advanced Prostate Cancer
8 months ago
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