Hey Guys,
I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising fast. Brought an MO into the mix. I was placed on Lupron, Xgeva and Erleada (apalutamide). That worked for 5.5 years until we figured out Erleada was making me dizzy.
Tried Zytiga, S/E were too much. My Dad passed 5/22. One month later had my first PSMA PET. Found out I had mets to my bones. I freaked out. Had Provenge. Tried getting onto a clinical trial; I had to cease taking a med that was crucial to my wellbeing. Next up, in 2023, I was hoping to start to do a lot of travel, instead I had 8 rounds of docetaxel. The S/E were not fun. Chemo failed. A new PSMA PET indicated mets to more bones and lymph nodes; PSA was rising quickly. I started Pluvicto a couple of weeks ago. The S/E are bad. In a short time, my PSA dropped from 30 to 23; it’s promising.
I’m tired, lonely and scared at times. No partner, parents or siblings. All my first cousins are on the East Coast , I’m in California. Most good friends have moved away. Own my house with a distant cousin (who is somewhere on the spectrum) and his partner. We live separate lives. The other day I had to go to the ER, I drove myself. My parents left me comfortable, but I can’t do anything. I do see a therapist weekly. But, lately I am wondering - what’s the point? If the meds were extending my life so I could enjoy it - that would be great. But, I am NOT enjoying life. I do belong to some online support groups, lately I just don’t care to hear the problems of other people. I just needed a forum to vent. Thanks for reading.
Another setback
Post ADT testosterone
Cancer undetectable but PSA is rising.
