Search
Search
About
Log in
Join
Experiences with
Prialt
Posts
Communities
5,215 public posts
Filter results
Homeward bound...soon
Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses, and clinicians all together to make our lives better while educating others about our rare disease. There were several topics of "what if " that
Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses, and clinicians all together to make our lives better while educating others about our rare disease. There were several topics of "what if " that
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Have taken the plunge full Thyroid test!
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Ontherun81
in
Thyroid UK
3 months ago
follow up post laparoscopy?
hello all, I hope you’re having a comfortable day. Can I ask what others have had experience of post lap with regards to appointments to discuss findings/treatment/recovery etc? (UK/NHS) I had my first laparoscopy last Tuesday. Confirmed endo and merina replaced. I am in a clinical trial so I
hello all, I hope you’re having a comfortable day. Can I ask what others have had experience of post lap with regards to appointments to discuss findings/treatment/recovery etc? (UK/NHS) I had my first laparoscopy last Tuesday. Confirmed endo and merina replaced. I am in a clinical trial so I
JEWM
in
Endometriosis UK
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cancer takes another brave man
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
Judymin
in
Advanced Prostate Cancer
3 months ago
Autovaccination seems a hot topic lately: Mt. Sinai autovaccination technique to turn cold prostate cancer hot (Phase 1)
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
Maxone73
in
Advanced Prostate Cancer
3 months ago
Thyroid nodules surgery survey (BTF)
Posting this because helping with research is often a good idea. However, there are only three days to go! I've only just noticed it and have not gone through what they are asking for. [i]
Thyroid nodules surgery survey
[/i] [i]Complete a survey sharing your experiences of thyroid nodule surgery
Posting this because helping with research is often a good idea. However, there are only three days to go! I've only just noticed it and have not gone through what they are asking for. [i]
Thyroid nodules surgery survey
[/i] [i]Complete a survey sharing your experiences of thyroid nodule surgery
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
3 months ago
Report Back from SGO: What’s New in Uterine Cancer (research)? IMPORTANT WEBINAR!
Friday, April 5 at 1-2pm ET If you haven't signed up for this, now's the time! It's good to sign up even if you can't attend at the webinar because SHARE will send you the link to the recording. https://www.sharecancersupport.org/report-back-from-sgo-whats-new-in-uterine-cancer-feb-2024/ Doctors
Friday, April 5 at 1-2pm ET If you haven't signed up for this, now's the time! It's good to sign up even if you can't attend at the webinar because SHARE will send you the link to the recording. https://www.sharecancersupport.org/report-back-from-sgo-whats-new-in-uterine-cancer-feb-2024/ Doctors
Merma
Moderator
in
SHARE Uterine Cancer Support
3 months ago
PSMA PET Results - don’t know what to do next (more tests?)
Hi everyone, For those who have been following my dad was diagnosed with PCa on Jan 18th, PI-RADS 5, Gleason 8, PSA 10.4. He started 50mg of Casodex on March 8, and had Eligard 30mg injection March 26th. He has had bone scan (nothing notable), CT (nothing notable), MRI showed one of his pelvic
Hi everyone, For those who have been following my dad was diagnosed with PCa on Jan 18th, PI-RADS 5, Gleason 8, PSA 10.4. He started 50mg of Casodex on March 8, and had Eligard 30mg injection March 26th. He has had bone scan (nothing notable), CT (nothing notable), MRI showed one of his pelvic
Cafu6
in
Advanced Prostate Cancer
3 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Prostate Cancer Network
3 months ago
Meta analysis of Eastern Cooperative Oncology Group(ECOG) PS predicts OS regardless of category, previous chemotherapy, and mPC population
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
Graham49
in
Advanced Prostate Cancer
3 months ago
Diabetes drug may help slow progression of Parkinson’s – study
https://www.oxfordmail.co.uk/news/national/24230038.diabetes-drug-may-help-slow-progression-parkinsons---study
A diabetes drug may help slow the progression of Parkinson’s, according to a recent study.
A diabetes drug may be able to slow the progression of Parkinson’s disease, representing a
https://www.oxfordmail.co.uk/news/national/24230038.diabetes-drug-may-help-slow-progression-parkinsons---study
A diabetes drug may help slow the progression of Parkinson’s, according to a recent study.
A diabetes drug may be able to slow the progression of Parkinson’s disease, representing a
Sun_and_flowers
in
Cure Parkinson's
3 months ago
Lutetium at earlier stage, clinical trial is enrolling
The second trial provides men with metastatic prostate cancer access to prostate-specific membrane antigen (PSMA)-targeted therapy prior to chemotherapy. Currently, PSMA-targeted therapy is only available after chemotherapy. However, phase III clinical trials have shown that PSMA-targeted therapies are
The second trial provides men with metastatic prostate cancer access to prostate-specific membrane antigen (PSMA)-targeted therapy prior to chemotherapy. Currently, PSMA-targeted therapy is only available after chemotherapy. However, phase III clinical trials have shown that PSMA-targeted therapies are
Maxone73
in
Advanced Prostate Cancer
3 months ago
Starting clinical trial of AVR-766
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
rsgdmd
in
Advanced Prostate Cancer
4 months ago
ACTOv clinical trial
HiWonder if anyone is taking part in the ACTOv, trial for patients with high-grade serous and endometrioid ovarian cancer. My wife is facing a reoccurrence and further carboplatin treatment
HiWonder if anyone is taking part in the ACTOv, trial for patients with high-grade serous and endometrioid ovarian cancer. My wife is facing a reoccurrence and further carboplatin treatment
Cardiff05
in
My Ovacome
4 months ago
Improved Posts and Replies
Responding to ChatGPT charging $20 per month to use the advanced versions of Cancer Copilot and Clinical Trial Navigator: We found a way where you won't have to pay. Starting this month, "Advanced Prostate Cancer" will be power-charged by our AI engine…for free. We know many people have been shy about
Responding to ChatGPT charging $20 per month to use the advanced versions of Cancer Copilot and Clinical Trial Navigator: We found a way where you won't have to pay. Starting this month, "Advanced Prostate Cancer" will be power-charged by our AI engine…for free. We know many people have been shy about
Darryl
Partner
in
Advanced Prostate Cancer
4 months ago
CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
AussieNeil
Partner
in
CLL Support
4 months ago
NCT04662580 - All about ARX517 as Monotherapy
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Photopharmics kickstarts phototherapy trial for Parkinson’s disease
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
Farooqji
in
Cure Parkinson's
4 months ago
Anecdotal, but running could boost immunity
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
PeggySusi
Graduate
in
Couch to 5K
4 months ago
1
...
6
7
8
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
1297 results
Cure Parkinson's
651 results
CLL Support
627 results
View top 10 communities
Sort by
Most Relevant
Newest