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Experiences with
Prednisone
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Avacopan side effects
Hi All, Could anyone please tell me if they are suffering from any Avacopan side effects, I’m off
prednisone
now and purely on Avacopan but getting lots of headaches, tiredness and my eyes are so sore. My cough also hasn’t alleviated which is annoying. Many thanks, Wishing you well, Robert
Hi All, Could anyone please tell me if they are suffering from any Avacopan side effects, I’m off
prednisone
now and purely on Avacopan but getting lots of headaches, tiredness and my eyes are so sore. My cough also hasn’t alleviated which is annoying. Many thanks, Wishing you well, Robert
Robstevens1970
in
Vasculitis UK
3 months ago
Kaiser Xtandi follow up post.
Xtandi is back on my formulary and zytiga-
prednisone
are gone now. Had me scared, trying to think of how I would have to try to manage
prednisone
, but all that is history now. Big relief from hefty anxiety that began back before Christmas .
Xtandi is back on my formulary and zytiga-
prednisone
are gone now. Had me scared, trying to think of how I would have to try to manage
prednisone
, but all that is history now. Big relief from hefty anxiety that began back before Christmas .
Kaliber
in
Advanced Prostate Cancer
4 months ago
progress with tapering
Hi All, I am currently at 2.25mg
prednisone
and am noticing that I have a bit more energy these days. I thought it would be interesting to review for myself my
prednisone
dosing since I started in 2021. I have been keeping a record in Excell.
Hi All, I am currently at 2.25mg
prednisone
and am noticing that I have a bit more energy these days. I thought it would be interesting to review for myself my
prednisone
dosing since I started in 2021. I have been keeping a record in Excell.
spacevoyager
in
PMRGCAuk
3 months ago
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omega 3 Vitamin D3
I currently take 1280mg Omega3 with 2000mg D3 supplements daily is this good idea with PMR I’m presently on 7-1/2mg
prednisone
and tapering I dont eat fish.
I currently take 1280mg Omega3 with 2000mg D3 supplements daily is this good idea with PMR I’m presently on 7-1/2mg
prednisone
and tapering I dont eat fish.
Januzzi
in
PMRGCAuk
2 months ago
Prednisone Tapering-what's going on?
Some of you have followed my posts for a while. Last post I spoke about yoyoing up and down, but each time I have tried to increased my dose temporarily 5mg, it seems I'm stuck there and can't even taper back down 1mg to get back to where I was previously before the temporary increase. I am currently
Some of you have followed my posts for a while. Last post I spoke about yoyoing up and down, but each time I have tried to increased my dose temporarily 5mg, it seems I'm stuck there and can't even taper back down 1mg to get back to where I was previously before the temporary increase. I am currently
RaisinBran
in
PMRGCAuk
3 months ago
new drugs
Started on new meds, Orgovix and Erleada (without
prednisone
) last month (April 2024). These are extremely powerful drugs. My PSA and testosterone dropped precipitously after only one month. But the side effects are brutal. Real serious fatigue.
Started on new meds, Orgovix and Erleada (without
prednisone
) last month (April 2024). These are extremely powerful drugs. My PSA and testosterone dropped precipitously after only one month. But the side effects are brutal. Real serious fatigue.
EchoII
in
Advanced Prostate Cancer
3 days ago
Pred side effects…memory
I have been on
Prednisone
for 5/years for PMR and GCA . I have had a pretty good run with no major side effects until this last flare 20 mg and my mind is not where it should be ..
I have been on
Prednisone
for 5/years for PMR and GCA . I have had a pretty good run with no major side effects until this last flare 20 mg and my mind is not where it should be ..
Darcy2000
in
PMRGCAuk
4 days ago
Post PMR treatment
Even though I completed
prednisone
for PMR in June 2022 & my blood work has been good. I am still on an anti inflammatory diet (basically a gluten & dairy free mediterranean diet). I find that I tire more easily & for longer periods.
Even though I completed
prednisone
for PMR in June 2022 & my blood work has been good. I am still on an anti inflammatory diet (basically a gluten & dairy free mediterranean diet). I find that I tire more easily & for longer periods.
smoothiemaker
in
PMRGCAuk
2 months ago
My recent journey in decreasing prednisone
Hello Everyone This is my 8th year having pmr. I have used the slow method many times and have used 2 different meds. to help me. Methotrexate and plaquenil. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt
Hello Everyone This is my 8th year having pmr. I have used the slow method many times and have used 2 different meds. to help me. Methotrexate and plaquenil. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt
Linny3
in
PMRGCAuk
2 months ago
Taper
I take 8mg
Prednisone
now .. I work night shift so I take 4mg at 4pm with evening meal and 4mg at 4am before going to sleep … I’m going to cut down to 7-1/2mg and wonder what dose should I cut 4 pm or 4am Thanks for you help
I take 8mg
Prednisone
now .. I work night shift so I take 4mg at 4pm with evening meal and 4mg at 4am before going to sleep … I’m going to cut down to 7-1/2mg and wonder what dose should I cut 4 pm or 4am Thanks for you help
Januzzi
in
PMRGCAuk
3 months ago
3 Abiraterone tabs in place of 4.
I owe this panel my results from the question on
Prednisone
dosage, I will post that in the b=near future. Also had my post radiation 3 month PET Scan on April 8, appointment to go over results with MO is today.
I owe this panel my results from the question on
Prednisone
dosage, I will post that in the b=near future. Also had my post radiation 3 month PET Scan on April 8, appointment to go over results with MO is today.
85236442968
in
Advanced Prostate Cancer
1 month ago
Nearing the end.......maybe.
I've spent the last 17 weeks extremely slowly reducing my
prednisone
dose from .5 mg to zero. I'm so close after 8 years, but am always mindful of PMRpro's mantra, "the lowest EFFECTIVE dose".
I've spent the last 17 weeks extremely slowly reducing my
prednisone
dose from .5 mg to zero. I'm so close after 8 years, but am always mindful of PMRpro's mantra, "the lowest EFFECTIVE dose".
Raven1955
in
PMRGCAuk
1 month ago
Xtandi side effect full body rash
taking
prednisone
pack and Triamcinolone cream fir relief but not getting much relief.
taking
prednisone
pack and Triamcinolone cream fir relief but not getting much relief.
Gern
in
Advanced Prostate Cancer
2 months ago
Quick question about blood tests
Diagnosed in early November; struggling with flares so I am presently alternating between 17 and 16mg
prednisone
. Blood tests this week (Sed rate and C-reactive) came back normal. Is that odd? I have a first appointment with rheumatologist on Monday next week. Thanks for advice.
Diagnosed in early November; struggling with flares so I am presently alternating between 17 and 16mg
prednisone
. Blood tests this week (Sed rate and C-reactive) came back normal. Is that odd? I have a first appointment with rheumatologist on Monday next week. Thanks for advice.
Trinka13
in
PMRGCAuk
3 months ago
Update on severe skin lesions
She stopped the infusions and had me on an increased dose of
prednisone
30 for 5 days, 20 for 5, 10 for 5 days and back to my 5mg
prednisone
that I had tapered to. I also stopped taking Colchicine which we had started to counteract continual mouth ulcers.
She stopped the infusions and had me on an increased dose of
prednisone
30 for 5 days, 20 for 5, 10 for 5 days and back to my 5mg
prednisone
that I had tapered to. I also stopped taking Colchicine which we had started to counteract continual mouth ulcers.
Charkha
in
PMRGCAuk
4 months ago
5mg reduction in prednisone a day!
Recently I had another GCA scare and the doctor raised my pred from 5mg a day to 30mg. - however, when the scare was over I was told to come down 5mg a day. 30 - 25 - 20 - 15 etc. I felt dreadful. Has anyone else come down so sharply - my entire system is still going through it - even though I’
Recently I had another GCA scare and the doctor raised my pred from 5mg a day to 30mg. - however, when the scare was over I was told to come down 5mg a day. 30 - 25 - 20 - 15 etc. I felt dreadful. Has anyone else come down so sharply - my entire system is still going through it - even though I’
Saintmalo
in
PMRGCAuk
2 months ago
Tapering experience
I had a poor response to 15mg of
prednisone
. GCA was considered and I was referred to a rheumatologist. My GP increased the
prednisone
to 50mg. I had no symptoms for GCA and a Temporal Artery ultrasound was negative. As you would expect I responded well to 50mg and slowly started reducing.
I had a poor response to 15mg of
prednisone
. GCA was considered and I was referred to a rheumatologist. My GP increased the
prednisone
to 50mg. I had no symptoms for GCA and a Temporal Artery ultrasound was negative. As you would expect I responded well to 50mg and slowly started reducing.
Specialised
in
PMRGCAuk
19 days ago
weight and breakfast
Hi me againI was wondering wat ya guys ate with your
prednisone
due to work hours I often don't eat till 10/11 am and am struggling to take the pills due to taste be ok if they were chocolate flavoured.. also any tips on diet food I'm over weight and have bèn told to watch this due to meds ..
Hi me againI was wondering wat ya guys ate with your
prednisone
due to work hours I often don't eat till 10/11 am and am struggling to take the pills due to taste be ok if they were chocolate flavoured.. also any tips on diet food I'm over weight and have bèn told to watch this due to meds ..
Alliekat65
in
PMRGCAuk
3 months ago
Alendronic Acid tablets
these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet not to be taken with
prednisone
these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet not to be taken with
prednisone
Chrisbaird
in
Advanced Prostate Cancer
24 days ago
Prednisone vs Acterma with steroid induced diabetes. Really terrified
He assured me everything that
prednisone
will eventually definitely end up doing to the body are the same side effects that may happen with the Acterma. I had a very dangerous reaction when my
prednisone
was increased from 15 to 20 mg in February.
He assured me everything that
prednisone
will eventually definitely end up doing to the body are the same side effects that may happen with the Acterma. I had a very dangerous reaction when my
prednisone
was increased from 15 to 20 mg in February.
JanetGarrettN
in
PMRGCAuk
14 days ago
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