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Prednisone
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GCA and Vision update
I was given 120 mg of
prednisone
intravenously in the emergency room. That was on a Saturday. No visual symptoms. The next day, Sunday, through the following Thursday I was only on my usual 10 mg of
prednisone
.
I was given 120 mg of
prednisone
intravenously in the emergency room. That was on a Saturday. No visual symptoms. The next day, Sunday, through the following Thursday I was only on my usual 10 mg of
prednisone
.
Lenore58
in
PMRGCAuk
5 months ago
Reduce or Not Reduce Prednisone
I have had a very difficult time over the past two years to get below 1.5 mg. Using the dead slow method for the past year i have been able to drop from 3mg to 1.5mg. While still feeling very fatigued, I'm experiencing my leg muscles while sleeping, wanting to develop into a full blown cramp, but not
I have had a very difficult time over the past two years to get below 1.5 mg. Using the dead slow method for the past year i have been able to drop from 3mg to 1.5mg. While still feeling very fatigued, I'm experiencing my leg muscles while sleeping, wanting to develop into a full blown cramp, but not
RaisinBran
in
PMRGCAuk
7 months ago
Break from ADT or not?
Should my Dad continue with all 3 Lupron/Zytiga/
Prednisone
or should he continue only with Lupron or should he take a break from all 3? Thank you SO MUCH ❤️
Should my Dad continue with all 3 Lupron/Zytiga/
Prednisone
or should he continue only with Lupron or should he take a break from all 3? Thank you SO MUCH ❤️
Simonapo
in
Advanced Prostate Cancer
5 months ago
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Tetanus booster while on prednisone?
Has anyone had the tetanus booster (I'm due for a 10-year one) while on
prednisone
? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Has anyone had the tetanus booster (I'm due for a 10-year one) while on
prednisone
? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Spartans1
in
PMRGCAuk
7 months ago
skin lesions that are not typical bruising from prednisone
My GP said it is vasculitis and immediately put me on what we hope is a short course of 40 mg
prednisone
… very disappointing as I had got down to 5mg. This has been Thanksgiving weekend in the US so cant get in touch with my rheumatologist.
My GP said it is vasculitis and immediately put me on what we hope is a short course of 40 mg
prednisone
… very disappointing as I had got down to 5mg. This has been Thanksgiving weekend in the US so cant get in touch with my rheumatologist.
Kt1943
in
PMRGCAuk
6 months ago
Update and about to start Radiation
I am going to come off
prednisone
. I have been down to 1 pill daily (from 2 daily) for a couple weeks now and MO says to take 1 pill only every 2nd day for a week then stop.
I am going to come off
prednisone
. I have been down to 1 pill daily (from 2 daily) for a couple weeks now and MO says to take 1 pill only every 2nd day for a week then stop.
Yzinger
in
Advanced Prostate Cancer
2 months ago
PN guy
I did one week of
prednisone
and it was miraculous. But can’t stay on it. Once off pain came right back. It’s a struggle. I try to think about friends with pancreatic cancer or Parkinson’s. Still no one gets it when you says pudendal neuralgia including most doctors. Hang in friends.
I did one week of
prednisone
and it was miraculous. But can’t stay on it. Once off pain came right back. It’s a struggle. I try to think about friends with pancreatic cancer or Parkinson’s. Still no one gets it when you says pudendal neuralgia including most doctors. Hang in friends.
Virginiapn
in
Pelvic Pain Support Network
4 months ago
By how should I increase my prednisone?
Hi All,I have had PMR since 2011 when diagnosed. I had got down to 5mg of pred and was on this dosage for many years until I had a massive flare at the beginning of 2023 and I increased my dosage, then gradually came down to 8 and 3/4mg. I am a 72 year old fit male. I have been going to my physiotherapist
Hi All,I have had PMR since 2011 when diagnosed. I had got down to 5mg of pred and was on this dosage for many years until I had a massive flare at the beginning of 2023 and I increased my dosage, then gradually came down to 8 and 3/4mg. I am a 72 year old fit male. I have been going to my physiotherapist
Buenavista
in
PMRGCAuk
6 months ago
Update Castrate Resistant Metastatic Cancer
On November 10 I started Abiraterone +
prednisone
. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to 0.34 today. That is the drop has slowed down somewhat, in the first 22 days a drop by about 50% in the next 35 days a drop by about 25%.
On November 10 I started Abiraterone +
prednisone
. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to 0.34 today. That is the drop has slowed down somewhat, in the first 22 days a drop by about 50% in the next 35 days a drop by about 25%.
dac500
in
Advanced Prostate Cancer
4 months ago
Enhertu side effect: pneumonitis (lung inflammation)
Unfortunately this means I have to abandon Enhertu and wait to start any new chemo until the lungs are stabilized through a course of high-dose steroids (60 mg
Prednisone
/day) that will gradually taper off over several weeks.
Unfortunately this means I have to abandon Enhertu and wait to start any new chemo until the lungs are stabilized through a course of high-dose steroids (60 mg
Prednisone
/day) that will gradually taper off over several weeks.
LDR1
in
SHARE Metastatic Breast Cancer
3 months ago
Stopping abiraterone
I know that I have the taper off the
prednisone
slowly, but I do have LupronMemory and I don't recall what it felt like, not taking Abiraterone. Can anyone relate their experience in stopping this drug? I will remain on Lupron.
I know that I have the taper off the
prednisone
slowly, but I do have LupronMemory and I don't recall what it felt like, not taking Abiraterone. Can anyone relate their experience in stopping this drug? I will remain on Lupron.
chickgreen
in
Advanced Prostate Cancer
8 months ago
Seizures
I am being treated like I have vasculitis and am on high doses of
prednisone
. Could that alter bloodwork? How do I find out more about seizures and management? They suspended my license until I see a neurologist. I saw one in Mexico in February but have yet to see one in Canada.
I am being treated like I have vasculitis and am on high doses of
prednisone
. Could that alter bloodwork? How do I find out more about seizures and management? They suspended my license until I see a neurologist. I saw one in Mexico in February but have yet to see one in Canada.
Schnoodlelover
in
Neuro Support
27 days ago
Sleep Cycles on Prednisone
I am on 40 mg
prednisone
for CGA. My sleep has not improved from the lower dosage. When I get sleepy, I lie down and sleep for 2 hours. Wake up very alert and 4 hours later am sleepy again. I lie down again for another 2 hours and the same cycle goes on all day and night.
I am on 40 mg
prednisone
for CGA. My sleep has not improved from the lower dosage. When I get sleepy, I lie down and sleep for 2 hours. Wake up very alert and 4 hours later am sleepy again. I lie down again for another 2 hours and the same cycle goes on all day and night.
Groda
in
PMRGCAuk
8 months ago
pain beneath right shoulder
I thought at first that it was the start of a flare of PMR so upped my
prednisone
by 5mg (I’m currently on 4.5mg) for 5 days however this made no difference so I’ve gone back to 4.5mg. Any thoughts greatfully received. Thank you xx
I thought at first that it was the start of a flare of PMR so upped my
prednisone
by 5mg (I’m currently on 4.5mg) for 5 days however this made no difference so I’ve gone back to 4.5mg. Any thoughts greatfully received. Thank you xx
Fishponds50
in
PMRGCAuk
4 months ago
Increase dosage and taper
I have been managing my PMR for seven years, and on
prednisone
for five of those years after thinking I could manage it withou meds. Dumb idea. I can taper down to 4mg or 5mg, but have to then increase to a higher dosage to address a reoccurring pain and numbness in arms.
I have been managing my PMR for seven years, and on
prednisone
for five of those years after thinking I could manage it withou meds. Dumb idea. I can taper down to 4mg or 5mg, but have to then increase to a higher dosage to address a reoccurring pain and numbness in arms.
outdoornut
in
PMRGCAuk
4 months ago
Use of CDB 10 mg pills
I am currently on 12 mg
prednisone
and 20 mg methotrexate a week for PsA and maybe PMR. I have heard that taking CDB can help with relaxing, sleeping and general feeling down due to the way this illness makes you feel. Is this safe?
I am currently on 12 mg
prednisone
and 20 mg methotrexate a week for PsA and maybe PMR. I have heard that taking CDB can help with relaxing, sleeping and general feeling down due to the way this illness makes you feel. Is this safe?
Seal49
in
PMRGCAuk
7 months ago
Diagnosed under 55
Currently on Lupron twice a year, Zytiga,
prednisone
and Evenity (bone strengthening injection). We are in Israel treated at Hadassah. We have four kids ages 12-18.
Currently on Lupron twice a year, Zytiga,
prednisone
and Evenity (bone strengthening injection). We are in Israel treated at Hadassah. We have four kids ages 12-18.
Vegasborn
in
Advanced Prostate Cancer
3 months ago
EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx),
prednisone
5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84.
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx),
prednisone
5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84.
JazzMan42
in
Advanced Prostate Cancer
1 month ago
How long do you wait to up prednisone with GCA pain
I upped my
prednisone
from 12 to 15 this morning but the pain in my temple area is getting worse. I just upped it again by 5 mg so I am at 20 now. Should I up it more or just give this amount time to work? I have been having a terrible time with the flares.
I upped my
prednisone
from 12 to 15 this morning but the pain in my temple area is getting worse. I just upped it again by 5 mg so I am at 20 now. Should I up it more or just give this amount time to work? I have been having a terrible time with the flares.
Plains
in
PMRGCAuk
6 months ago
abiraterone instructions
Prednisone
WITH food complicates things as well. Thanks
Prednisone
WITH food complicates things as well. Thanks
Tommyj2
in
Advanced Prostate Cancer
7 months ago
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