PN guy

[Virginiapn]

had pudendal neuralgia for 5 years . It went away but everything I tried was not helping. Best help was tramadol by far. Those tricyclics were awful and did nothing. Caused irregular heart beat . Cymbalta felt like I was nuts. All the pt and injections did nothing including rf blocks. Now after 7 years the pudendal pain is back. I’m on gabapentin 1800 mg. Some days it seems to help. But I still use 100 mg tramadol on a bad day. Doc says there are other gaba drugs to try but I’m not so sure. I did one week of prednisone and it was miraculous. But can’t stay on it. Once off pain came right back. It’s a struggle. I try to think about friends with pancreatic cancer or Parkinson’s. Still no one gets it when you says pudendal neuralgia including most doctors. Hang in friends. You are not alone. David 70🙂

[SouthernSally]

Some people recommend PEA and magnesium glycinate supplements. PEA didn't help me but I'm trying again with the Mirica brand. I've heard Taurine can be effective too.

[pizon]

I have had p/n for 7 years the more the dr.’s messed with me (thru many different drugs treatments) the worst I got…I read the book “Healing Pelvic Pain” by Amy Stein and yoga dvd by Dustine Miller Your Pace Yoga “Reliving Pelvic Pain”I also work with an herbalist and take the herbs Valerian root and hops..although I am not cured I am now able to live life I hope this is helpful

[Karen1954]

Hi PN guy!!! What were your symptoms of PN? I’ve done SO much with different therapies and procedures and nothing has helped!!! NOTHING!!!!! I feel like I have a ball in my rectum and perineum and it’s annoying as hell!!!!! I just tried red light therapy and adjustments with a chiropractor and it made me worse!!!!!! I think I’m done with everything!!!!! Any thoughts? I would appreciate anything u could tell me!!! Can’t wait to hear from u!!!! Take care!!