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No Cominarty Vaccine!!
I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out a heart arrhythmia that seemed to have been triggered by it. My cardiologist said he'd seen a really significant number of new patients, all
I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out a heart arrhythmia that seemed to have been triggered by it. My cardiologist said he'd seen a really significant number of new patients, all
Kendrew
in
PMRGCAuk
5 months ago
reaction to Spikevax XBB 1.5Moderna
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Larks0ng
in
LUPUS UK
5 months ago
Do I need an ablation?
i’ve been on the waiting list for an ablation and the appointment has finally come up however I am really having second thoughts about having this procedure as I’ve finally been feeling very well lately after three years of highly symptomatic long Covid. Also I’ve only had one episode of AF in the last
i’ve been on the waiting list for an ablation and the appointment has finally come up however I am really having second thoughts about having this procedure as I’ve finally been feeling very well lately after three years of highly symptomatic long Covid. Also I’ve only had one episode of AF in the last
Midnight2022
in
Atrial Fibrillation Support
5 months ago
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From Prednisone to Morphine
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
Chelseadog
in
PMRGCAuk
5 months ago
Headaches / update, also Spring Covid Vaccine update.
I was grateful for everyone’s’ replies to my recent post and I telephoned my Haematologist who advised a blood test and to see a doctor as soon as possible If I couldn’t see my GP the Haematologist said they’d fit me in at the hospital clinic. However, I had a full blood test that day at my G.P’s and
I was grateful for everyone’s’ replies to my recent post and I telephoned my Haematologist who advised a blood test and to see a doctor as soon as possible If I couldn’t see my GP the Haematologist said they’d fit me in at the hospital clinic. However, I had a full blood test that day at my G.P’s and
azaelea
in
MPN Voice
5 months ago
Covid booster
I had my Covid booster jab yesterday,my ibs was settling down ,but has got worse since I had it.Has anybody else experienced this ?
I had my Covid booster jab yesterday,my ibs was settling down ,but has got worse since I had it.Has anybody else experienced this ?
mousey1
in
IBS Network
5 months ago
First time COVID
I got really poorly on the 7th September last year, I phoned the doctors and they wouldn't see me at all, don't really blame them, they are under so much strain.I phoned 111 and when I told them me my illnesses, they wanted to send an ambulance, three different people I talked to all wanted to send an
I got really poorly on the 7th September last year, I phoned the doctors and they wouldn't see me at all, don't really blame them, they are under so much strain.I phoned 111 and when I told them me my illnesses, they wanted to send an ambulance, three different people I talked to all wanted to send an
Itsmeok
in
Lung Conditions Community Forum
5 months ago
Reactions to COVID boosters
Hi, I've been getting the COVID boosters in the UK on a regular basis, but my reaction each time has gotten worse. With the one six months ago and the one last week, I was wiped out for 24 hours afterward, which hadn't happened with the previous boosters. The pharmacist last week was surprised at my
Hi, I've been getting the COVID boosters in the UK on a regular basis, but my reaction each time has gotten worse. With the one six months ago and the one last week, I was wiped out for 24 hours afterward, which hadn't happened with the previous boosters. The pharmacist last week was surprised at my
SAT_poet
in
CLL Support
5 months ago
trauma after icu stay
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
ZoeH1974
in
ICUsteps
7 months ago
Tinnitus and Meniere's
Has anyone ever received Intratympanic steroid injection in their ear(s) for Tinnitus or Meniere's? I was just curious if it was worth it and made matters better. Is the injection painful or create other issues? My ENT has recommended it for my left ear which has a variety of issues. Thanks.
Has anyone ever received Intratympanic steroid injection in their ear(s) for Tinnitus or Meniere's? I was just curious if it was worth it and made matters better. Is the injection painful or create other issues? My ENT has recommended it for my left ear which has a variety of issues. Thanks.
MrGC314
in
Tinnitus UK
5 months ago
Finally a little light!
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
HeadInASpin
in
NRAS
5 months ago
Upcoming hospital appointment
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
EssEmBee
in
Acoustic Neuroma Support
5 months ago
Covid vaccine
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
Main1234
in
Vasculitis UK
5 months ago
PMR and covid vaccination
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
Freshairfiend
in
PMRGCAuk
5 months ago
A return of the dreaded mongrel .......... ?????
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
BenHall1
in
Atrial Fibrillation Support
5 months ago
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV?
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Shewulf
Administrator
in
LDN Research Trust
7 months ago
do I need the spring Covid shot?
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
Claybuster
in
CLL Support
5 months ago
Awful repeated behaviours of hospital staff
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
HilsK
in
Restless Legs Syndrome
5 months ago
covid shot
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
Grandmajoanie
in
CLL Support
5 months ago
Arnica cream for jab reactions
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
ClaireWF1346
in
Pernicious Anaemia Society
3 months ago
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