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Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
5 months ago
Finally got my Neurosurgeon appointment!
Hi all, Well after waiting almost a year, I saw the neurosurgeons at Sheffield Royal Hallamshire. The consultant offered me some bleak options, have cervical spine surgery or my symptoms will get worse and I won’t be able to get back to how I am now! I have cervical myelopathy and spinal stenosis,
Hi all, Well after waiting almost a year, I saw the neurosurgeons at Sheffield Royal Hallamshire. The consultant offered me some bleak options, have cervical spine surgery or my symptoms will get worse and I won’t be able to get back to how I am now! I have cervical myelopathy and spinal stenosis,
Kati66
in
NRAS
5 months ago
Recent diagnosis - What was your radiation experience?
Hello, I was just diagnosed with stage 1, non-small cell. I'm debating between the open surgery (the nodule is not in an easy location) or targeting radiation. I'm scared of recovery from the surgery, but I'm also scared of potential long-term side effects from radiation. I'd appreciate hearing your
Hello, I was just diagnosed with stage 1, non-small cell. I'm debating between the open surgery (the nodule is not in an easy location) or targeting radiation. I'm scared of recovery from the surgery, but I'm also scared of potential long-term side effects from radiation. I'd appreciate hearing your
Hidden
in
Lung Cancer Support
5 months ago
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bilateral oophorectomy at 34
Hi all, I am looking to hear from real people (you folks on this forum) about your experiences for a bilateral oophorectomy. I have been suffering with debilitating endometriosis symptoms for more than a decade and on Monday March 4th I saw a consultant about my treatment steps. She was the surgeon
Hi all, I am looking to hear from real people (you folks on this forum) about your experiences for a bilateral oophorectomy. I have been suffering with debilitating endometriosis symptoms for more than a decade and on Monday March 4th I saw a consultant about my treatment steps. She was the surgeon
HomebodyFig
in
Endometriosis UK
5 months ago
tricuspid and mitral
I had my TOE yesterday and it was painless although a little uncomfortable but I did have sedation and was pleased that I had. The nurses and doctors were very sweet and informative without being alarmist. It turns out that I have two moderately severe leaky valves, mitral and tricuspid, both parachute
I had my TOE yesterday and it was painless although a little uncomfortable but I did have sedation and was pleased that I had. The nurses and doctors were very sweet and informative without being alarmist. It turns out that I have two moderately severe leaky valves, mitral and tricuspid, both parachute
Gillph
in
British Heart Foundation
5 months ago
Fears confirmed
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
I posted previously on this long and tortuous journey to ( almost) a diagnosis. Almost because my concierge PCP gave me a heads up on the biopsy report which hasn’t been posted on my digital chart and I haven’t yet heard from my Urologist/ Onocologist. It’s been 4 mos since my annual checkup said my
Willie51
in
Prostate Cancer And Gay Men
5 months ago
Confused
Just had a message from my GP surgery and as my TSH is 0.13 they want to lower my dose from 75 to 50. What do I do?
Just had a message from my GP surgery and as my TSH is 0.13 they want to lower my dose from 75 to 50. What do I do?
foamfollower
in
Thyroid UK
5 months ago
Worsening Stress Incontinence 20 Months After Surgery?
I had my Robotic Prostatectomy 20 months ago at age 54 and everything went really well. Good post surgery pathology (no positive margins or extracapular extension). I didn't need pads about 5 months after surgery. I of course experienced stress incontinence after but at 1 year it was virtually non-existent
I had my Robotic Prostatectomy 20 months ago at age 54 and everything went really well. Good post surgery pathology (no positive margins or extracapular extension). I didn't need pads about 5 months after surgery. I of course experienced stress incontinence after but at 1 year it was virtually non-existent
jazj
in
Prostate Cancer Network
5 months ago
Surgery tomorrow 🙏 can't wait to get this tumour out!
3 chemos done, & surgery is tomorrow! Almost half way there in my treatment plan. Met my surgeon yesterday, quite alot to remove. Any tips? 🤞😊
3 chemos done, & surgery is tomorrow! Almost half way there in my treatment plan. Met my surgeon yesterday, quite alot to remove. Any tips? 🤞😊
Kazzh
in
My Ovacome
5 months ago
epiphysiodesis ( surgery about femur shortening)
Hello, I have JIA since birth (got diagnosed at 6+ months). My one leg is shorter than other one and is making my hips, spine its unevenly ( i do have scoliosis).My rheumotologist is offering me an epiphysiodesis, I would like to know do they break femur, how is after surgery. (actually English is not
Hello, I have JIA since birth (got diagnosed at 6+ months). My one leg is shorter than other one and is making my hips, spine its unevenly ( i do have scoliosis).My rheumotologist is offering me an epiphysiodesis, I would like to know do they break femur, how is after surgery. (actually English is not
Ramuniux
in
JIA-at-NRAS
5 months ago
confused whether to go ahead with laparoscopy
31 year old female Hi everyone I am due to have a diagnostic laparoscopy in 2.5 weeks. I am so nervous about the procedure and unsure whether to go ahead. My pain over the last few months has been manageable and my periods are ok. I don’t know whether I’m getting used to the pain. I have changed my
31 year old female Hi everyone I am due to have a diagnostic laparoscopy in 2.5 weeks. I am so nervous about the procedure and unsure whether to go ahead. My pain over the last few months has been manageable and my periods are ok. I don’t know whether I’m getting used to the pain. I have changed my
Penguinpal
in
Endometriosis UK
5 months ago
Had appt with urologist, although already stated no surgery
Had appt and the urologist seemed to he trying to persuade me to have prostatectomy although I was clear at diagnosis no surgery primarily due to incontinence issues.He said permanent incontinence occurred in less than 5% of cases, I disagreed and said 10/15% is nearer the mark am I correct?
Had appt and the urologist seemed to he trying to persuade me to have prostatectomy although I was clear at diagnosis no surgery primarily due to incontinence issues.He said permanent incontinence occurred in less than 5% of cases, I disagreed and said 10/15% is nearer the mark am I correct?
pd63
in
Prostate Cancer Network
5 months ago
Crisis!
I've just spent 50 minutes waiting on the phone to speak to a real human being at my doctor's surgery to try and make an appointment to speak to the respiratory nurse, to book a blood test for suspected diabetes and to get my heart checked out. After 50 minutes and being told I was in position number
I've just spent 50 minutes waiting on the phone to speak to a real human being at my doctor's surgery to try and make an appointment to speak to the respiratory nurse, to book a blood test for suspected diabetes and to get my heart checked out. After 50 minutes and being told I was in position number
caryhug
in
Lung Conditions Community Forum
5 months ago
Severe degenerative discs
I have many issues with lower back, spinal stenosis, arthritis, buldging discs, had nerve root impingement L2 L3 , last May, treated with decompression therapy can only take ttlenol as still on pred since 2016 for PMR at that time, started physio last week for glute and hamstring tear, happened 2 mos
I have many issues with lower back, spinal stenosis, arthritis, buldging discs, had nerve root impingement L2 L3 , last May, treated with decompression therapy can only take ttlenol as still on pred since 2016 for PMR at that time, started physio last week for glute and hamstring tear, happened 2 mos
arvine
in
Pain Concern
5 months ago
painful cramping when urinating
Hey guys! I had a diagnostic laparoscopy a week ago and I keep experiencing pain in my bladder and sharp cramping when trying to wee. Is this a normal thing for after surgery? This is my op so I’m just unsure.
Hey guys! I had a diagnostic laparoscopy a week ago and I keep experiencing pain in my bladder and sharp cramping when trying to wee. Is this a normal thing for after surgery? This is my op so I’m just unsure.
Moll2309
in
Endometriosis UK
5 months ago
Surgery for fallopian tubes removal
Hi Has anyone had fallopian tubes removed but ovaries and uterus left intact? I've been advised to have this surgery through keyhole , ct scan shows abscesses in tubes. Although six months ago another scN showed abscess near uterus and one doctor mentioned hysterectomy. The doctor I saw this morning
Hi Has anyone had fallopian tubes removed but ovaries and uterus left intact? I've been advised to have this surgery through keyhole , ct scan shows abscesses in tubes. Although six months ago another scN showed abscess near uterus and one doctor mentioned hysterectomy. The doctor I saw this morning
Hannah818
in
Pelvic Pain Support Network
5 months ago
Endo in Csection scar
Hi all, I've finally been put onto the waiting list for surgery!! I could not be happier, it's been a long fight to finally get this cut out of me.. I live in pain, some days mild others I can't even walk. A lump formed deep inside my lower right tummy just behind my csection scar on the right. This
Hi all, I've finally been put onto the waiting list for surgery!! I could not be happier, it's been a long fight to finally get this cut out of me.. I live in pain, some days mild others I can't even walk. A lump formed deep inside my lower right tummy just behind my csection scar on the right. This
ItsMeBe
in
Endometriosis UK
5 months ago
Just spoke to my parathyroid /thyroid surgeon 😁
Morning all💗 Well just got off the phone with the surgeon in Liverpool, who I'm under for primary hyperparathyroidism, I had the 4D CT scan done last Wed as I mentioned in a few posts recently 🤦 She as the scan photos but not the written report yet, but she as said 2 things have shown up one on the
Morning all💗 Well just got off the phone with the surgeon in Liverpool, who I'm under for primary hyperparathyroidism, I had the 4D CT scan done last Wed as I mentioned in a few posts recently 🤦 She as the scan photos but not the written report yet, but she as said 2 things have shown up one on the
birkie
in
Thyroid UK
5 months ago
Early embryo transfer (Day 1 transfer) 2WW
Hi everyone, I don’t hear a lot online about embryo transfers that are done early on. So it’s hard to know whether I should be expecting an early pregnancy test to work or not. This round of IVF I ended up with 1 embryo so my clinic put it straight back in the day it fertilised. The cycle before
Hi everyone, I don’t hear a lot online about embryo transfers that are done early on. So it’s hard to know whether I should be expecting an early pregnancy test to work or not. This round of IVF I ended up with 1 embryo so my clinic put it straight back in the day it fertilised. The cycle before
Hidden
in
Fertility Network UK
6 months ago
Flare Strategy?
After having a flare 4 months ago and going from 4.5 mg to 10 for a week, then dropping back to 5.5 for 5 weeks, I have now tapered down to 5mg, where I have been for 10 weeks. My doctor seems fine with my staying at 5 for awhile longer. Three days ago and coinciding with much colder weather, I experienced
After having a flare 4 months ago and going from 4.5 mg to 10 for a week, then dropping back to 5.5 for 5 weeks, I have now tapered down to 5mg, where I have been for 10 weeks. My doctor seems fine with my staying at 5 for awhile longer. Three days ago and coinciding with much colder weather, I experienced
Donna5658
in
PMRGCAuk
6 months ago
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