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MPN ET Jak2+ HU Photo attached
Hello all I mentioned that over the past four years, at the same time I started Hydrea I gained much weight and that my eyes, mouth, skin and nose have changed dramatically. I was also very ill with an undiagnosed bacterial pneumonia. Apparently I had it for about nine months but it did scare my lung
Hello all I mentioned that over the past four years, at the same time I started Hydrea I gained much weight and that my eyes, mouth, skin and nose have changed dramatically. I was also very ill with an undiagnosed bacterial pneumonia. Apparently I had it for about nine months but it did scare my lung
Hidden
in
MPN Voice
4 years ago
Has anyone experienced loss of collagen to the face muscles? Photo included
Another example of what has happened to my face during the past four years. It was the time I started taking Hydrea but it correlates with the time I became very ill with pneumonia. Ironically the worse I feel the more the eyes drop. At first it was the left eye, now it’s the whole face. My GP has
Another example of what has happened to my face during the past four years. It was the time I started taking Hydrea but it correlates with the time I became very ill with pneumonia. Ironically the worse I feel the more the eyes drop. At first it was the left eye, now it’s the whole face. My GP has
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MPN Voice
4 years ago
Flu Vaccine
Hi all, I’ve seen the (UK) government have expanded their flu vaccine programme for this coming winter. I was wondering if having an MPN would put me in an eligible household. Can I ask if other group members receive/intend to receive the vaccination? Thanks in advance 🙂
Hi all, I’ve seen the (UK) government have expanded their flu vaccine programme for this coming winter. I was wondering if having an MPN would put me in an eligible household. Can I ask if other group members receive/intend to receive the vaccination? Thanks in advance 🙂
Rae25
in
MPN Voice
4 years ago
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Can't go outside when it's cold due to possible covid in March. Anyone else having this?
When i get cold or go outside, even on a warm day my chest is sore when i breathe in. It takes a while to recover from it so I am avoiding going outside which isn't fun. I had a virus that effected my breathing in March, it was possibly covid. Since then I have been diagnosed with costocondritus, but
When i get cold or go outside, even on a warm day my chest is sore when i breathe in. It takes a while to recover from it so I am avoiding going outside which isn't fun. I had a virus that effected my breathing in March, it was possibly covid. Since then I have been diagnosed with costocondritus, but
Shuvy
in
Lung Conditions Community Forum
4 years ago
Help
Two periods in one month? Will saw palmetto help?
Two periods in one month? Will saw palmetto help?
Bluelady-sing
in
Pelvic Pain Support Network
4 years ago
Flu Vaccination
Has the coronavirus pandemic made you more likely to get the flu vaccine later this year? It might be July but we’re already beginning to think about this year’s flu vaccination programme. You may be wondering if the flu vaccine will still be important for people with asthma this year and the answer
Has the coronavirus pandemic made you more likely to get the flu vaccine later this year? It might be July but we’re already beginning to think about this year’s flu vaccination programme. You may be wondering if the flu vaccine will still be important for people with asthma this year and the answer
Claire_ALUK
Asthma Nurse
in
Asthma Community Forum
4 years ago
Tumeric Capsule
Hi everyone, any recommendations for Tumeric capsules, thanks 🌈🤗x
Hi everyone, any recommendations for Tumeric capsules, thanks 🌈🤗x
Hidden
in
NRAS
4 years ago
First cold and Asthma
I've got a cold. It's the first one since I got diagnosed with Asthma. My chest feels like somethings sitting on it, my breathing is faster, I keep coughing, my throat hurts, I have more flam and my nose is blocked. I don't know if my blue inhaler with help and I don't have a written asthma plan yet.
I've got a cold. It's the first one since I got diagnosed with Asthma. My chest feels like somethings sitting on it, my breathing is faster, I keep coughing, my throat hurts, I have more flam and my nose is blocked. I don't know if my blue inhaler with help and I don't have a written asthma plan yet.
TailPoof
in
Asthma Community Forum
4 years ago
Thyroid cancer-
Hi everyone, I was diagnosed with thyroid cancer last year so I have had my thyroid removed, I’ve not been given the all clear as I have developed thyroid antibodies so I’m still under treatment and due to COVID it’s been postponed, however since February this year, I’ve developed a cough with pghlem
Hi everyone, I was diagnosed with thyroid cancer last year so I have had my thyroid removed, I’ve not been given the all clear as I have developed thyroid antibodies so I’m still under treatment and due to COVID it’s been postponed, however since February this year, I’ve developed a cough with pghlem
Ranisai
in
Thyroid UK
4 years ago
Firmagon - no side effects not working?
Hello! My father took a triple dose of Firmagon 3 days ago and besides feeling a bit tired and almost drunk the first day (and an itching on the injection spots) says he feel zero side effects. He even woke up the day after with an erection (which he told me about in a ”it doesnt seem to work??”-fashion
Hello! My father took a triple dose of Firmagon 3 days ago and besides feeling a bit tired and almost drunk the first day (and an itching on the injection spots) says he feel zero side effects. He even woke up the day after with an erection (which he told me about in a ”it doesnt seem to work??”-fashion
TheTopBanana
in
Advanced Prostate Cancer
4 years ago
Getting over infidelity
So after everything and all the begging and tears from him I agreed to give it another go He told me he had told me everything and it was me he wanted and all just a big mistake Nearly 2 weeks on he’s finally told me they are still in contact and she is willing to do anything to keep him He’s told me
So after everything and all the begging and tears from him I agreed to give it another go He told me he had told me everything and it was me he wanted and all just a big mistake Nearly 2 weeks on he’s finally told me they are still in contact and she is willing to do anything to keep him He’s told me
OlsonM
in
Fertility Network UK
4 years ago
UTI’s and Endo
Hello everyone, I have a telephone appointment with an endo consultant tomorrow. First appointment since being diagnosed with endometriosis through laparoscopy last October. I have lots of questions for them. But the main thing I want to ask on here is about urine infections and endo. I find that
Hello everyone, I have a telephone appointment with an endo consultant tomorrow. First appointment since being diagnosed with endometriosis through laparoscopy last October. I have lots of questions for them. But the main thing I want to ask on here is about urine infections and endo. I find that
EndoEffect
in
Endometriosis UK
4 years ago
What was or is your experience with Fibromyalgia? Please share a little. I’ve shared mine.
5 years ago, life changed. It started with a skin rash, that I was told was eczema. I started to have body aches, hair loss, ringing in the ears, skin changes, mood changes, and memory loss. Last July it was walking double pneumonia, and things haven’t been the same since. Anyone else experience such
5 years ago, life changed. It started with a skin rash, that I was told was eczema. I started to have body aches, hair loss, ringing in the ears, skin changes, mood changes, and memory loss. Last July it was walking double pneumonia, and things haven’t been the same since. Anyone else experience such
Newme2022
in
Fibromyalgia Action UK
4 years ago
CORONA VIRUS / COVID-19/SARS COV-2 And Some Potential Help
Pine
Bark
Extract
/Grape seed Extract - IL-6 inhibitors that have overall similar effect and also on other inflammatory mediators. 4. Amla - is definitely an IL-6 inhibitor as well as a glutathione increaser and anti-inflammatory. I have written about the potential value of Amla in another post.
Pine
Bark
Extract
/Grape seed Extract - IL-6 inhibitors that have overall similar effect and also on other inflammatory mediators. 4. Amla - is definitely an IL-6 inhibitor as well as a glutathione increaser and anti-inflammatory. I have written about the potential value of Amla in another post.
chartist
in
Cure Parkinson's
4 years ago
Flu jab- yes or no?
Just had a message from the school office that our flu jabs will be available as per when the team are in to immunise the children in Novemver. Advice seems to be conflicting. Has anyone got the difinitive answer - I'm guessing it's a no.
Just had a message from the school office that our flu jabs will be available as per when the team are in to immunise the children in Novemver. Advice seems to be conflicting. Has anyone got the difinitive answer - I'm guessing it's a no.
artisam
in
PMRGCAuk
4 years ago
Role of Liothyronine and Desiccated Thyroid Extract in Hypothyroidism
Here is an article in Endocrinology Advisor. It, at least, acknowledges that the above can be helpful. I thought it might be interesting. https://www.endocrinologyadvisor.com/home/topics/thyroid/levothyroxine-and-combination-therapy-in-patients-with-hypothyroidism/?utm_source=newsletter&utm_medium=email
Here is an article in Endocrinology Advisor. It, at least, acknowledges that the above can be helpful. I thought it might be interesting. https://www.endocrinologyadvisor.com/home/topics/thyroid/levothyroxine-and-combination-therapy-in-patients-with-hypothyroidism/?utm_source=newsletter&utm_medium=email
buddy99
in
Thyroid UK
4 years ago
Worried about Breast Scan
Hi. I had a breast biopsy last year on a lump which turned out to be a fibroadenoma. I had another lump in January which was nothing and now just had another scan as I am worried about a different lump. I'm so worried about the results. Has anyone else had similar problems with breasts and having so
Hi. I had a breast biopsy last year on a lump which turned out to be a fibroadenoma. I had another lump in January which was nothing and now just had another scan as I am worried about a different lump. I'm so worried about the results. Has anyone else had similar problems with breasts and having so
Hashm
in
Thyroid UK
4 years ago
Is there a limit on Dopaboost intake?
My dad is on a surgery waitlist for DBS here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily. Mucuna is much more effective than his Sinemet, which barely works anymore
My dad is on a surgery waitlist for DBS here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily. Mucuna is much more effective than his Sinemet, which barely works anymore
pdkid
in
Cure Parkinson's
4 years ago
Mucus crackley cough for months now
Hi all Hope you are keeping safe in these crazy times, so for months now I have had a mucus cough with a crackle if that makes sense. I've had antibiotics etc but I did start smoking again a few months ago and I'm struggling to quit and with covid my gp isnt doing the stop smoke clinic. I do cough up
Hi all Hope you are keeping safe in these crazy times, so for months now I have had a mucus cough with a crackle if that makes sense. I've had antibiotics etc but I did start smoking again a few months ago and I'm struggling to quit and with covid my gp isnt doing the stop smoke clinic. I do cough up
ash6
in
Asthma Community Forum
4 years ago
Swyer-James syndrome
Anyone else been diagnosed with swyer-James syndrome? I have been diagnosed with swyer-James syndrome along with bronchiectasis which leaves my lung function at around 30% total. Curious if anyone else has been diagnosed with it to see how they cope with it and learn more about it. Thank you
Anyone else been diagnosed with swyer-James syndrome? I have been diagnosed with swyer-James syndrome along with bronchiectasis which leaves my lung function at around 30% total. Curious if anyone else has been diagnosed with it to see how they cope with it and learn more about it. Thank you
Aronjay1
in
Lung Conditions Community Forum
4 years ago
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