MPN ET Jak2+ HU Photo attached: Hello all I... - MPN Voice

MPN Voice

11,289 members15,769 posts

MPN ET Jak2+ HU Photo attached

5 Replies

Hello all

I mentioned that over the past four years, at the same time I started Hydrea I gained much weight and that my eyes, mouth, skin and nose have changed dramatically. I was also very ill with an undiagnosed bacterial pneumonia. Apparently I had it for about nine months but it did scare my lung. The were difficult years and it was a Doctor who I went to see because of severe shoulder pain. The Doctor diagnosed me with his eyes. My GP was closed for Christmas. This remarkable human being told me what he thought was the issue with my shoulder, and he was correct.

He politely asked me if I would mind if he took an Xray and a scan and I said 'yes'. And after so long of trying to find out what was going on this man did it. I don't Dr Jump and I never returned to him but I have never forgotten him, During all this time all my bloods were on the high side, there was no indication of an infection.

Regards

Anna

Read more about...
5 Replies
Tertia3 profile image
Tertia3

Dear Anna,

I hope you don't mind me asking, but have you ever had your thyroid function tested?

Go to Thyroid UK's website to find a list of signs and symptoms of hypothyroidism and see if any of them correspond with yours.

They also have a presence on Health Unlocked too. It is very informative forum just like this one.

I hope you find an answer to your problems,

Best Wishes

in reply toTertia3

Hi Tertia

I have had it tested but it has been a while so I plan to ask for a test next Specialist visit. Thanks for bringing that up.

Regards

Anna

Hi

Just wandering have you seen a dermatologist. I had a bad rash on my arm and feet. Saw three doctors all said something different prescribed meds no effect. Then l saw a dermatologist made up a solution for me via the pharmacy applied it for six weeks but was solved

hunter5582 profile image
hunter5582

Don't really know if you have a good relationship with your usual GP, but it sounds like you had an experience with very good doctor. When you find a better provider, switching is not doctor-jumping. It is advocating for your own medical care. You have a fundamental right to do what is in your own best interests when it comes to medical care. If your regular GP is a great doc, by all means stay there. If this other doc really is better, then switch. Always go with the better provider. They work for you - not the other way around.

Ale the best yo you. Hope you get answers soon.

Thank you for all your help. I wish you all the best with your own health.

Not what you're looking for?

You may also like...

Just saw MPN Specialist | ET+CALR

Last week I saw an MPN Specialist at Stanford in Palo Alto, CA (Dr. Gotlib) and it was nothing...
Zeppelin11 profile image

ET diagnosis JAK2 positive

Hi I’m new here and last week received a diagnosis that I was jak2 positive and have ET. Came as...
Cb1001 profile image

Dealing with ET of a parent

Hi All, I hope you don’t mind me being part of this group...my dad was diagnosed with ET a couple...
KatieA18 profile image

New Dx of splenic cyst. I am ET, JAK2+ on HU and 81mg aspirin 2x daily.

I fired my previous dr. Found new one at Ochsner in New Orleans. Seems knowledgeable. He was...
Wewo01 profile image

ET /Hydroxycarbamide Low JAK2 levels

Morning everyone, Help! I was diagnosed with ET in 2013 and my platelet levels were stable and...
Cassandra61 profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.