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Pernicious anaemia
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When blood tests don't show the reality in lupus
im sure there are so many of you who have blood test after blood test that doesn't show the true and complete picture of what is going on. GPs don't give me the actual numbers bc I'm medical, instead they say normal or satisfactory which to me mean very little. And is their normal my normal? I know
im sure there are so many of you who have blood test after blood test that doesn't show the true and complete picture of what is going on. GPs don't give me the actual numbers bc I'm medical, instead they say normal or satisfactory which to me mean very little. And is their normal my normal? I know
LottieLou96
in
LUPUS UK
2 years ago
feeling like I’m on a boat… light headed dizzy after increasing b12 lozenges
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
Can buprenorphine cause augmentation
Hi I am back for help! we cannot source Temgesic in South Africa anymore so my husband is using the buprenorphine patch (sovenor) plus now adding gabapentin 900mg for the past 3 days. However he is having the most terrible time, has managed to sleep from 7:30 this morning for a few hours, up the whole
Hi I am back for help! we cannot source Temgesic in South Africa anymore so my husband is using the buprenorphine patch (sovenor) plus now adding gabapentin 900mg for the past 3 days. However he is having the most terrible time, has managed to sleep from 7:30 this morning for a few hours, up the whole
rchobby
in
Restless Legs Syndrome
2 years ago
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Advice needed
I’ve recently been diagnosed with low b12, the doctor said I haven’t got
pernicious
anaemia
as, although my intrinsic factor is low it’s ‘ok’, so he put me on b12 injections. I’m currently on the loading phase, 1a week for 4 weeks then 1 ever 3 months.
I’ve recently been diagnosed with low b12, the doctor said I haven’t got
pernicious
anaemia
as, although my intrinsic factor is low it’s ‘ok’, so he put me on b12 injections. I’m currently on the loading phase, 1a week for 4 weeks then 1 ever 3 months.
Pippepin
in
Pernicious Anaemia Society
2 years ago
Anemia
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Nanny71
in
PMRGCAuk
2 years ago
Did Anyone With Diagnosed Pernicious Anaemia or B12 Deficiency have rapid weight gain before the deficiency was found?
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
Blearyeyed
in
Pernicious Anaemia Society
2 years ago
Adrenals or Not Adrenals
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Kendrew
in
PMRGCAuk
2 years ago
Medichecks Pernicious Anaemia Test
Hi, Just wondering whether anyone here has had the medichecks test done to see if they have Pernicous Anaemia? I have Hashimotos, and my B12 level at my last blood test was 343 (180-900) I'm not getting very far with my GP at the moment, so looking at private testing. Would be interested to hear others
Hi, Just wondering whether anyone here has had the medichecks test done to see if they have Pernicous Anaemia? I have Hashimotos, and my B12 level at my last blood test was 343 (180-900) I'm not getting very far with my GP at the moment, so looking at private testing. Would be interested to hear others
Chasing-rainbows
in
Pernicious Anaemia Society
2 years ago
Iron panel results
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
Fizzyinch
in
Thyroid UK
2 years ago
Low folate without anaemia?
Hi I’ve recently had some blood tests and it’s come back with a low folate level of 3.1 ug/l (range 3.9 - 20.0). My B12 was 429 ng/L MCV 97.2 (82 - 100) RBC 4.61 [4.5 - 5.9] My question is that as I don’t seem to be anaemic (well according to MCV / RBC anyway …), would I be likely to have any symptoms
Hi I’ve recently had some blood tests and it’s come back with a low folate level of 3.1 ug/l (range 3.9 - 20.0). My B12 was 429 ng/L MCV 97.2 (82 - 100) RBC 4.61 [4.5 - 5.9] My question is that as I don’t seem to be anaemic (well according to MCV / RBC anyway …), would I be likely to have any symptoms
Edso57
in
Pernicious Anaemia Society
2 years ago
Is it all about the range?
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Souzy
in
Thyroid UK
2 years ago
Possible Pernicious Anemia
Hello all, I have been feeling ill for months now. As I write, it is August 2022, I was diagnosed with low iron stores, ferritin of 13 ug/l in March this year. I have been on tablets for the past 6 months or so. Although recently I have been experiencing, headaches, vomiting, weakness, dizzyness to name
Hello all, I have been feeling ill for months now. As I write, it is August 2022, I was diagnosed with low iron stores, ferritin of 13 ug/l in March this year. I have been on tablets for the past 6 months or so. Although recently I have been experiencing, headaches, vomiting, weakness, dizzyness to name
ae0200
in
Pernicious Anaemia Society
2 years ago
Folate level
H i everyone, hope you are all well? I had my folate checked and my level came back as 2.9ng (3.1ng - 19.9ng reference range) Doctor said not to worry about it as it was only slightly under range. My question is even though I have B12 injections should my folate be in range and should the doctor
H i everyone, hope you are all well? I had my folate checked and my level came back as 2.9ng (3.1ng - 19.9ng reference range) Doctor said not to worry about it as it was only slightly under range. My question is even though I have B12 injections should my folate be in range and should the doctor
Purplestaffie
in
Thyroid UK
2 years ago
SERUM BLOOD TESTS
Good morning, I had a blood test 4/3/22. Just checked my results online. These were tested- Serum vitamin B12 level, Serum ferritin level , Serum folate level. The result is borderline & doesnt need any further action. Shall I contact the GP and follow it up?
Good morning, I had a blood test 4/3/22. Just checked my results online. These were tested- Serum vitamin B12 level, Serum ferritin level , Serum folate level. The result is borderline & doesnt need any further action. Shall I contact the GP and follow it up?
Florah
in
Thyroid UK
2 years ago
advice please regarding my 14 year old granddaughter
Hi was looking for some advice. My daughter in law has posted the following on the B12 Facebook group. So a few months ago my daughter had what I thought was a sezure so taken her to my gp who did bloods and said her iron was really low so she had taken iron tablets for 3 months but still feels no
Hi was looking for some advice. My daughter in law has posted the following on the B12 Facebook group. So a few months ago my daughter had what I thought was a sezure so taken her to my gp who did bloods and said her iron was really low so she had taken iron tablets for 3 months but still feels no
Lincsangel1
in
Pernicious Anaemia Society
2 years ago
Starting (again)on 23rd August
Helllo MPN friends, I thought I would just give you an update after my SCT was postponed in June. My new admission date is 23rd August and of course I am nervous in case anything else goes wrong! I have felt well for the last few weeks and my blood counts have held up quite well although dropping
Helllo MPN friends, I thought I would just give you an update after my SCT was postponed in June. My new admission date is 23rd August and of course I am nervous in case anything else goes wrong! I have felt well for the last few weeks and my blood counts have held up quite well although dropping
Otterfield
in
MPN Voice
2 years ago
privet blood tests and privet specialist
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
Which Magnesium?
I have been taking magnesium glycinate for the past 3 months,, but unfortunately bought some with extra rubbish! I was looking for a better alternative and came across a 'which magnesium' site . It said magnesium glycinate was good for depression, anxiety and general well being. Well thats me! It also
I have been taking magnesium glycinate for the past 3 months,, but unfortunately bought some with extra rubbish! I was looking for a better alternative and came across a 'which magnesium' site . It said magnesium glycinate was good for depression, anxiety and general well being. Well thats me! It also
carnation
in
Thyroid UK
2 years ago
bloods vit count they claim normal ?
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
Hidden
in
Thyroid UK
2 years ago
Blood Iron results
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
rlsagain
in
Restless Legs Syndrome
2 years ago
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