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Pernicious anaemia
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what do the different parts of my iron test mean?
A short while ago, I read a brilliant description from one of the admins (I think) explaining what all the different parts of the iron panel (serum iron, tibc, uibc, transferrin saturation, and ferritin) meant and how to interpret the results. I thought I’d saved it, but can’t find it so wondered if
A short while ago, I read a brilliant description from one of the admins (I think) explaining what all the different parts of the iron panel (serum iron, tibc, uibc, transferrin saturation, and ferritin) meant and how to interpret the results. I thought I’d saved it, but can’t find it so wondered if
Mazes
in
Thyroid UK
2 years ago
Test Result Comments Welcomed Pre Endo Appt
Dear Unlockers, I’ve got a telephone consultation with my endo this Friday and am writing to ask for your views on my test results in advance. I had a lot of blood work done in April in preparation for an endo appt which was rearranged, so I had to repeat the thyroid panel this month. There was very
Dear Unlockers, I’ve got a telephone consultation with my endo this Friday and am writing to ask for your views on my test results in advance. I had a lot of blood work done in April in preparation for an endo appt which was rearranged, so I had to repeat the thyroid panel this month. There was very
PDS1
in
Thyroid UK
2 years ago
DIO2 Homozygous CC
I got the test results from Regenerus today and I am homozygous CC which means 'CC infers a lower than average response and that tri-iodothyroxine (T3) perhaps should be considered'. I saw my new Endo for the first time very recently (Saturday) and he increased my levo dose from 93mcg to 100mcg, re-test
I got the test results from Regenerus today and I am homozygous CC which means 'CC infers a lower than average response and that tri-iodothyroxine (T3) perhaps should be considered'. I saw my new Endo for the first time very recently (Saturday) and he increased my levo dose from 93mcg to 100mcg, re-test
Pearlteapot
in
Thyroid UK
2 years ago
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Blood tests
Hi All. Can someone tell me what blood tests I should be asking for . I have PA and atrophic gastritis and not had any tests for about 5 years. I think my iron might be low but wondering what else I should get checked . I’m in Portugal so not sure if they know much about PA and requires blood tests.
Hi All. Can someone tell me what blood tests I should be asking for . I have PA and atrophic gastritis and not had any tests for about 5 years. I think my iron might be low but wondering what else I should get checked . I’m in Portugal so not sure if they know much about PA and requires blood tests.
lifegems
in
Pernicious Anaemia Society
2 years ago
Advice please - thyroid, vitamins, ferritin. Dr only wants to give statins?
My sister's surgery only seem interested in giving her statins, but I'm concerned about some of her other results instead. Please can someone else give their views? I wonder if I'm right or not. She's just 60 and has been on levo for about 30 years. Sorry, results are a bit long! Serum FT4 –
normal
My sister's surgery only seem interested in giving her statins, but I'm concerned about some of her other results instead. Please can someone else give their views? I wonder if I'm right or not. She's just 60 and has been on levo for about 30 years. Sorry, results are a bit long! Serum FT4 –
normal
TaraJR
in
Thyroid UK
2 years ago
MCV & MCH
I have posted a chart of my MCV & MCH as I have recently got copies of blood tests. As you can see most of the mch have been flagged. Looking at getting MMA and Homocysteine tests as my last Active B12 66.1 pmol/L (25.1 - 165 pmol). Need to be tested for PA as well.
I have posted a chart of my MCV & MCH as I have recently got copies of blood tests. As you can see most of the mch have been flagged. Looking at getting MMA and Homocysteine tests as my last Active B12 66.1 pmol/L (25.1 - 165 pmol). Need to be tested for PA as well.
diamondgirl9022
in
Pernicious Anaemia Society
2 years ago
Gilbert’s Syndrome
I have suffered with
pernicious
anaemia
for over 40 years and a few years ago after a routine blood test I was told I had Gilbert’s syndrome. Nothing to worry about said the doctor, same interests as we get for our B12 deficiency. No symptoms they said but there are many!
I have suffered with
pernicious
anaemia
for over 40 years and a few years ago after a routine blood test I was told I had Gilbert’s syndrome. Nothing to worry about said the doctor, same interests as we get for our B12 deficiency. No symptoms they said but there are many!
Hedgehogs15
in
Pernicious Anaemia Society
2 years ago
IRON results help please
Last year thanks to some good advice from radd and others, I was able to have an iron infusion which really improved my life. A year on, I have had the full iron panel again and my iron has dropped back to 22 from 33, and my ferritin is still way high. My GP has summoned me by email as he has
Last year thanks to some good advice from radd and others, I was able to have an iron infusion which really improved my life. A year on, I have had the full iron panel again and my iron has dropped back to 22 from 33, and my ferritin is still way high. My GP has summoned me by email as he has
Daffers123
in
Thyroid UK
2 years ago
Where to buy?
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
Polo22
in
Pernicious Anaemia Society
2 years ago
starting acalabrutinib while waiting for pirtobrutinib to be FDA approved
Venetoclax stopped working after 3 years and my husband has been on idealisib for several months. It isn’t working. His labs yesterday were terrible. Platelets the lowest they have ever been at 36. White blood count continues to double and it at 113 and hemoglobin is 8.8. A few weeks ago they ran
Venetoclax stopped working after 3 years and my husband has been on idealisib for several months. It isn’t working. His labs yesterday were terrible. Platelets the lowest they have ever been at 36. White blood count continues to double and it at 113 and hemoglobin is 8.8. A few weeks ago they ran
KLWC
in
CLL Support
2 years ago
helvella - Vade Mecum for Thyroid
Anaemia
Society Pharmaceutical Services Negotiating Committee PubMed Radiopaedia Scottish Medicines Consortium Specialist Pharmacy Service Statpearls The Internet Pathology Laboratory for Medical Education The James Lind Library The Pituitary Foundation The Thyroid Trust Thyroid Eye Disease
Anaemia
Society Pharmaceutical Services Negotiating Committee PubMed Radiopaedia Scottish Medicines Consortium Specialist Pharmacy Service Statpearls The Internet Pathology Laboratory for Medical Education The James Lind Library The Pituitary Foundation The Thyroid Trust Thyroid Eye Disease
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Don't trust everything you read on the internet
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Pickle500
in
Pernicious Anaemia Society
2 years ago
PAS Newsletter Available & A Question
PAS has issued a new newsletter: https://
pernicious
-
anaemia
-society.us8.list-manage.com/track/click?u=69ba73620e4221e32b449418b&id=389c9703aa&e=354e5b791b I have a question though.
PAS has issued a new newsletter: https://
pernicious
-
anaemia
-society.us8.list-manage.com/track/click?u=69ba73620e4221e32b449418b&id=389c9703aa&e=354e5b791b I have a question though.
RoseFlowerDew
in
Pernicious Anaemia Society
2 years ago
Supplements for iron
I have had the following blood tests: Serum ferritin level 41 ug/L [10.0 - 322.0] Serum folate level 23.5 ug/L [5.4 - 24.0] Should I take some iron tablets to boost my ferritin levels and if so what dosage should I be taking?
I have had the following blood tests: Serum ferritin level 41 ug/L [10.0 - 322.0] Serum folate level 23.5 ug/L [5.4 - 24.0] Should I take some iron tablets to boost my ferritin levels and if so what dosage should I be taking?
Luci20
in
Thyroid UK
2 years ago
ET transforming?
I was diagnosed with ET around 12 years ago. I was on Hydroxy at first but been on Anagrelide for a few years. I’ve been anaemic for a long time, usually iron tablets bring the hg up again but it’s staying low at the moment. Specialist nurse has just called to say consultant wants to do a bmb to check
I was diagnosed with ET around 12 years ago. I was on Hydroxy at first but been on Anagrelide for a few years. I’ve been anaemic for a long time, usually iron tablets bring the hg up again but it’s staying low at the moment. Specialist nurse has just called to say consultant wants to do a bmb to check
lizzziep
in
MPN Voice
2 years ago
levothyroxine/Teva/mannitol
hi everyone.. It’s just come to my notice that Levothyroxine which I’ve been taking for about 25 years or so contains “mannitol “ As I have very bad restless legs for about the same amount of years and getting worse … I was wondering how long mannitol has been in levothyroxine ? Also.. would it affect
hi everyone.. It’s just come to my notice that Levothyroxine which I’ve been taking for about 25 years or so contains “mannitol “ As I have very bad restless legs for about the same amount of years and getting worse … I was wondering how long mannitol has been in levothyroxine ? Also.. would it affect
janland
in
Thyroid UK
2 years ago
Going through my latest results with my GP, bearing in mind I'd been low on Folate, Ferritin etc for years and been told all good.
GP: [i]Vit D is excellent at 100nmol/L[/i] Me: [i]Yes[/i] GP:[i] Folate is good at 10.8 ug/L (3.4 - 12.2)[/i] Me:[i] Yes[/i] GP: [i]B12 is good at 461 ng/L (211 -911)[/i] Me: [i] Mmn[/i] GP: [i]Ferritin is good at 49 ug/L[/i] Me: [i]No it isn't[/i] Before I could say any more...... GP: [
GP: [i]Vit D is excellent at 100nmol/L[/i] Me: [i]Yes[/i] GP:[i] Folate is good at 10.8 ug/L (3.4 - 12.2)[/i] Me:[i] Yes[/i] GP: [i]B12 is good at 461 ng/L (211 -911)[/i] Me: [i] Mmn[/i] GP: [i]Ferritin is good at 49 ug/L[/i] Me: [i]No it isn't[/i] Before I could say any more...... GP: [
nellie237
in
Thyroid UK
2 years ago
B12 injections
My 24 year old daughter have been getting B12 injections for 3 years and feels so much better. She was also low in Folate. She has gone gluten free but can’t bear to get tests for coeliacs disease as she would have to eat foods with gluten for 6 weeks. She was told by GP that she would need injections
My 24 year old daughter have been getting B12 injections for 3 years and feels so much better. She was also low in Folate. She has gone gluten free but can’t bear to get tests for coeliacs disease as she would have to eat foods with gluten for 6 weeks. She was told by GP that she would need injections
JP57
in
Pernicious Anaemia Society
2 years ago
Medichecks - stop b12 for 2 weeks prior to testing
Hi I want to order my dad a full thyroid testing panel +antibodies and vitamins. However,he has previously had low b12 so was taking intramuscular injections until 1 month ago and is now taking the spray. I notice it says to stop taking any b12 for 2 whole weeks before testing. I wondered whether
Hi I want to order my dad a full thyroid testing panel +antibodies and vitamins. However,he has previously had low b12 so was taking intramuscular injections until 1 month ago and is now taking the spray. I notice it says to stop taking any b12 for 2 whole weeks before testing. I wondered whether
Needleandthread44
in
Thyroid UK
2 years ago
Where can I get getethylcobalamin
I am from Ebonyi State of Nigeria. I have been trying to get methylcobalamin to treat my b12 deficiency but haven't seen it around. Cyanocobalamin has not worked. Please can someone help direct me how to get it. I am going through pains now. Please help .
I am from Ebonyi State of Nigeria. I have been trying to get methylcobalamin to treat my b12 deficiency but haven't seen it around. Cyanocobalamin has not worked. Please can someone help direct me how to get it. I am going through pains now. Please help .
Agala
in
Pernicious Anaemia Society
2 years ago
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