Hello all, I have been feeling ill for months now. As I write, it is August 2022, I was diagnosed with low iron stores, ferritin of 13 ug/l in March this year. I have been on tablets for the past 6 months or so. Although recently I have been experiencing, headaches, vomiting, weakness, dizzyness to name a few. I have been in contact with a Dr. K of the iron clinic Cambridge. He suggests that I may have pernicious anemia, there are some people in my family tree who have had it before, all passed away now.
I have an appointment with Dr K for an iron infusion and for him to show me how to self inject B12, but this is 4 weeks away. I honestly feel like I am living every day as it comes. Any advice?
Thank you
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ae0200
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So glad you’ve found a helpful and knowledgeable doctor, ae0200, who will help with self injection 😊
Many of us here buy B12 for self injection from reliable pharmacies in Germany, after having difficulty getting a diagnosis or find once every three months is not enough. Once you get over the initial nervousness, it is very easy and becomes part of a routine. More information available on the forum if you decide you don’t want to wait another four weeks?
I also have other family members, who’ve had gene testing showing difficulty in absorbing B12 and other vitamins.
Am finding Solar Brewer’s Yeast B12 with other B vitamins, seems to give an extra boost to energy, etc. at the moment.
Hi. I’m sure he will get you sorted. I was I’ll too & went to see him. He listens attentively to everything you say & puts you at ease. He will def put you on the road to recovery. All the best.
Sounds like you've found a decent GP that has an understanding of the nature of PA and not jumping to conclusions which is also important. It is known that PA has a hereditary component. When I was first diagnosed I had never heard of PA but since then I've looked back at my family history and found all my male line died from this disease.
If you are interested in supporting research into this area you may want to consider joining the Autoimmune Registry. Take a look at:
Two pieces of advice I usually give to UK forum members are
1) Always get copies of or access to all blood test results.
Always check for yourself even if you're told everything is normal.
2) Get hold of the local guidelines on management of B12 deficiency for your area.
Local guidelines on treatment/diagnosis of B12 deficiency are likely to change in next year or so as CCGs (Clinical Commissioning Groups) have been replaced by Integrated Care Systems.
Read blog post below if you want to know why I suggest reading the local guidelines for your area.
If you click on "project documents" then on "consultation comments and responses" it gives a good insight into current issues around diagnosis and treatment.
Links to forum threads where I left detailed replies with lots of B12 deficiency info eg causes and symptoms, more UK B12 documents, B12 books, B12 websites and B12 articles and a few hints on dealing with unhelpful GPs.
Some links may have details that could be upsetting.
hi, just got an email with this which is why I’m replying so quick. Dr Klein was amazing, he’s such a kind and understanding Dr. If you Google the Cambridge iron clinic there are quite a few positive reviews about him.
thank you ae0200 I sent him my ferritin results and he was super quick to respond and helpful. The cost is high hence the question! But I guess that’s the cost of someone who knows what they’re doing.
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