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Just need some support
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Turtlepower88
in
Parents of Children with Kidney Disease
2 years ago
Mucus is the cause of disease
If you don't want to end up on dialysis, read the mucusless diet healing system. Mucus forming foods is the cause of nearly all disease. There's also a Facebook support group.
If you don't want to end up on dialysis, read the mucusless diet healing system. Mucus forming foods is the cause of nearly all disease. There's also a Facebook support group.
shaun8
in
Kidney Disease
2 years ago
9 year old daughter on PD dialysis after covid killed her kidneys.
Hello, does anyone else have a child on PD Dialysis covid killed my daughters kidney function & we are on PD Dialysis waiting for a transplant in 5-6 months time. It would be great to chat to someone else who is dealing with a PD Dialysis we are 7 days a week 9 hours a night. Its exhausting emotionally
Hello, does anyone else have a child on PD Dialysis covid killed my daughters kidney function & we are on PD Dialysis waiting for a transplant in 5-6 months time. It would be great to chat to someone else who is dealing with a PD Dialysis we are 7 days a week 9 hours a night. Its exhausting emotionally
Mand0816
in
Kidney Dialysis
2 years ago
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Dandelion Tea Good or Bad?
Has anyone used Organic Dandelion Tea? It's supposed to be good for detox of kidneys and liver. I'm stage 5 CKD, not on dialysis, take BP meds and on waitlist for kidney. I want to try this, but not sure if I should. I've read it can be good and sometimes also bad for CKD.
Has anyone used Organic Dandelion Tea? It's supposed to be good for detox of kidneys and liver. I'm stage 5 CKD, not on dialysis, take BP meds and on waitlist for kidney. I want to try this, but not sure if I should. I've read it can be good and sometimes also bad for CKD.
Hawaiilover
in
Kidney Disease
2 years ago
Help with recovering from ICU
Help with support about seeing the room you was in ICU Hi. I was ICU for about 7 weeks and most of it I was in Coma. I have terrible memories of it and wanted to speak to someone about it. I am going through the hospital support but it’s very slow moving. I do want to clear my head but I feel that it
Help with support about seeing the room you was in ICU Hi. I was ICU for about 7 weeks and most of it I was in Coma. I have terrible memories of it and wanted to speak to someone about it. I am going through the hospital support but it’s very slow moving. I do want to clear my head but I feel that it
IA2022
in
ICUsteps
2 years ago
How do you diet when you have CKD?
Hey guys. My dad is on his 3rd year of Hemodialysis. CKD stage 5. He's a 50 years old obese and is getting worse. It's like the dialysis isn't helping his body to get rid of his fluid intake. That is however, it is very difficult for him to limit his water intake to 1 liter per day because we live in
Hey guys. My dad is on his 3rd year of Hemodialysis. CKD stage 5. He's a 50 years old obese and is getting worse. It's like the dialysis isn't helping his body to get rid of his fluid intake. That is however, it is very difficult for him to limit his water intake to 1 liter per day because we live in
acaellapes
in
Kidney Disease
2 years ago
Creatinine vs. CystatinC eGFR
I saw my nephro yesterday and asked for a cystatin C test. Now I've got two eGFRs. One is 25 and one is 36. Which is most accurate? All the articles I've found go over my head. I found one that said the margin of error for both tests was high. My eGFR based on creatinine rose from my low of 5 to
I saw my nephro yesterday and asked for a cystatin C test. Now I've got two eGFRs. One is 25 and one is 36. Which is most accurate? All the articles I've found go over my head. I found one that said the margin of error for both tests was high. My eGFR based on creatinine rose from my low of 5 to
barbara55109
in
Kidney Disease
2 years ago
Does anyone else have a horseshoe kidney?
Is there anyone else on this site or does anyone even know anyone who has a horseshoe kidney? There are no support groups or even doctors who have a clue. I am not a candidate for transplant due to the way this is formed. They said once I go on dialysis I am pretty much numbered as short timing it.
Is there anyone else on this site or does anyone even know anyone who has a horseshoe kidney? There are no support groups or even doctors who have a clue. I am not a candidate for transplant due to the way this is formed. They said once I go on dialysis I am pretty much numbered as short timing it.
dreamwalker1016
in
Kidney Disease
2 years ago
Still here.
I have been to my appointment this afternoon and I am still a bit shellshocked. My ultrasound showed as clear but the biopsy showed really bad damage to my left kidney. He wasn't sure what was causing it but it wasn't diabetes - it is either kidney infections or high blood pressure. My water sample showed
I have been to my appointment this afternoon and I am still a bit shellshocked. My ultrasound showed as clear but the biopsy showed really bad damage to my left kidney. He wasn't sure what was causing it but it wasn't diabetes - it is either kidney infections or high blood pressure. My water sample showed
fartikins
in
Kidney Disease
2 years ago
Can't Relax
Hi I feel so stressed right now. I am going through a tough time right now. I can feel the tension in my body. I just can't switch off. Before dialysis I would have a really hot long bath with lavender oil but I can't even do that. Is there any relaxation treatments or techniques suitable for me as I
Hi I feel so stressed right now. I am going through a tough time right now. I can feel the tension in my body. I just can't switch off. Before dialysis I would have a really hot long bath with lavender oil but I can't even do that. Is there any relaxation treatments or techniques suitable for me as I
Dora86
in
Kidney Disease
2 years ago
My story. I had CKD 3 then Kidney failure went on dialysis over 5 years then a friend donated his kidney and I received a transplant 2020.
I was asked for my story. I am afraid my entire story is too long for a website loI I have a tethered spinal cord from birth but was not caught til I was 25. Had two surgeries that did nerve damage. I caused a neurogenic bladder which refluxed into my kidneys for years and was not caught. Long story
I was asked for my story. I am afraid my entire story is too long for a website loI I have a tethered spinal cord from birth but was not caught til I was 25. Had two surgeries that did nerve damage. I caused a neurogenic bladder which refluxed into my kidneys for years and was not caught. Long story
ESRDRLS
in
Kidney Transplant
2 years ago
Transplant and keeping Medicare after esrd Medicare runs out.
I found posts that were very helpful about being on the esrd Medicare then receiving a transplant. After 36 months they say you lose Medicare if you are not 65. I will be 62. I heard that once notified of Medicare ending you can stay on Medicare under a transplant Medicare. Please does anyone know
I found posts that were very helpful about being on the esrd Medicare then receiving a transplant. After 36 months they say you lose Medicare if you are not 65. I will be 62. I heard that once notified of Medicare ending you can stay on Medicare under a transplant Medicare. Please does anyone know
ESRDRLS
in
Kidney Transplant
2 years ago
Introduction: I'm new here
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Kanjee18
in
Vasculitis UK
2 years ago
Regrets
I received my transplant on 11/30/2021. I've had so many issues with it since. Between constantly feeling like crazy and not having any energy my care team doesn't give me individualized care. It's like they are working off a check list. I'm ready to have them take this kidney out and go back to dialysis
I received my transplant on 11/30/2021. I've had so many issues with it since. Between constantly feeling like crazy and not having any energy my care team doesn't give me individualized care. It's like they are working off a check list. I'm ready to have them take this kidney out and go back to dialysis
Bk-Tony
in
Kidney Transplant
2 years ago
Help with poor appetite
I have had kidney disease for a while now and I'm also on dialysis. I have never had a good appetite but now I feel like I'm hitting a new low. I just don't enjoy food anymore, I wouldn't eat if I didn't have to. The portion sizes I have are tiny. I have lost 3kg in 3 years. I need to put weight on before
I have had kidney disease for a while now and I'm also on dialysis. I have never had a good appetite but now I feel like I'm hitting a new low. I just don't enjoy food anymore, I wouldn't eat if I didn't have to. The portion sizes I have are tiny. I have lost 3kg in 3 years. I need to put weight on before
Dora86
in
Kidney Disease
2 years ago
Terrible headache after dialysis
I get a terrible headache in forehead immediately after hemodialysis. Lasts for about 5 hours. Dr says take tylenol...does not help...blood pressure checked...not there..Does anyone know what I can take to make this headache go away? Thank you in advance!
I get a terrible headache in forehead immediately after hemodialysis. Lasts for about 5 hours. Dr says take tylenol...does not help...blood pressure checked...not there..Does anyone know what I can take to make this headache go away? Thank you in advance!
Eddie2149
in
Dialysis Support
2 years ago
Positive crossmatch ?
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
MAK88
in
Kidney Disease
2 years ago
Living with Meningitis effects
Hi, I need to vent. I am 30 years old and at the age of 12 I was taken poorly with Meningitis and septecimia. I spent most of my teenage years in hospital. I was in a coma for. Number of weeks and went into kidney failure. I required dialysis and was tube fed, first through my nose and then through
Hi, I need to vent. I am 30 years old and at the age of 12 I was taken poorly with Meningitis and septecimia. I spent most of my teenage years in hospital. I was in a coma for. Number of weeks and went into kidney failure. I required dialysis and was tube fed, first through my nose and then through
CR1109
in
Meningitis Now
2 years ago
Choices for dialysis
I'm new here. Recently diagnosed with stage 5 kidney failure so trying to decide on which type of dialysis will be best for me. I live on an island 15 miles off the Maine coast. No dialysis clinics or facilities on the island which is only accessible by an hour and 15 minutes ferry ride. Closest facilities
I'm new here. Recently diagnosed with stage 5 kidney failure so trying to decide on which type of dialysis will be best for me. I live on an island 15 miles off the Maine coast. No dialysis clinics or facilities on the island which is only accessible by an hour and 15 minutes ferry ride. Closest facilities
Zephyr22
in
Kidney Disease
2 years ago
Night sweats and Dialysis?
Hey everyone. I've been experiencing crazy sweating while I sleep. Some nights, it even wakes me up. Is anyone aware of a link between dialysis and night sweats? Has/Is anyone else experiencing this?
Hey everyone. I've been experiencing crazy sweating while I sleep. Some nights, it even wakes me up. Is anyone aware of a link between dialysis and night sweats? Has/Is anyone else experiencing this?
Kirkconnell
in
Kidney Dialysis
2 years ago
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