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27 years off dialysis
In 1995 almost died from meningococcal sepsis. Was hospitalised over 6 months requiring wound care, debridement, skin grafts, amputations of fingers and toes. The resulting kidney damage classified as meningococcal Waterhouse Fridericksen syndrome. The treatment was dialysis to remove the bacteria
In 1995 almost died from meningococcal sepsis. Was hospitalised over 6 months requiring wound care, debridement, skin grafts, amputations of fingers and toes. The resulting kidney damage classified as meningococcal Waterhouse Fridericksen syndrome. The treatment was dialysis to remove the bacteria
chicablue
in
Kidney Disease
2 years ago
Stage 5 symptoms just before dialysis begins
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
RonZone
in
Kidney Disease
2 years ago
Having a bit of a trying time.
Hello - the last few days have been not so good - no energy or motivation and this morning I had my breakfast and felt so sick afterwards I had to go back to bed. It has been slowly going downhill for a few days now.My biggest worry is that this all points to kidney function and the dialysis question
Hello - the last few days have been not so good - no energy or motivation and this morning I had my breakfast and felt so sick afterwards I had to go back to bed. It has been slowly going downhill for a few days now.My biggest worry is that this all points to kidney function and the dialysis question
fartikins
in
Kidney Disease
2 years ago
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Preemptive transplant
For those of you with preemptive transplants, did you get started as soon as you could? My last lab was in Mar and I was at 22%. I've been dropping now for months and have labs due end of May where I think they'll be at 20% or lower. Other than being tired I feel ok and have started back working out
For those of you with preemptive transplants, did you get started as soon as you could? My last lab was in Mar and I was at 22%. I've been dropping now for months and have labs due end of May where I think they'll be at 20% or lower. Other than being tired I feel ok and have started back working out
horsie63
in
Kidney Transplant
2 years ago
Leg pain in dialysis patients
I am on twice a week dialysis and experiencing continuous leg pain and weakness. I am taking multivitamins, iron supplements but not much relief. Any idea how to tackle this pain?
I am on twice a week dialysis and experiencing continuous leg pain and weakness. I am taking multivitamins, iron supplements but not much relief. Any idea how to tackle this pain?
ashok5085
in
Kidney Dialysis
2 years ago
73 year old patient w/o transport to dialysis
I am a Care Navigator and a nurse I support has a client who is Stage 3, ESRD. He doesn't have transportation to his dialysis. Does anyone on this blog live in Shelton, Washington or near there? I'm trying to find resources for him. We had $1,000 we were able to spend getting him to his dialysis
I am a Care Navigator and a nurse I support has a client who is Stage 3, ESRD. He doesn't have transportation to his dialysis. Does anyone on this blog live in Shelton, Washington or near there? I'm trying to find resources for him. We had $1,000 we were able to spend getting him to his dialysis
patientadvocate
in
Kidney Dialysis
2 years ago
Painkillers for Drain Pain
Last night I suffered excruciating drain pain through all 8 hours of dialysis this has never happened to me before. All day my stomach has felt tender and tight. I never ever take painkillers for anything but last night was horrible. Does anyone know if painkillers would help or I am open to any other
Last night I suffered excruciating drain pain through all 8 hours of dialysis this has never happened to me before. All day my stomach has felt tender and tight. I never ever take painkillers for anything but last night was horrible. Does anyone know if painkillers would help or I am open to any other
Dora86
in
Kidney Dialysis
2 years ago
Magnesium supplements
Hello - what are other peoples views on taking magnesium supplements. I have read conflicting information on this subject. I have invested in Lee Hull,s book and it states that magnesium is good for the heart as it helps to prevent calcification especially if you are on dialysis. On the other hand I
Hello - what are other peoples views on taking magnesium supplements. I have read conflicting information on this subject. I have invested in Lee Hull,s book and it states that magnesium is good for the heart as it helps to prevent calcification especially if you are on dialysis. On the other hand I
fartikins
in
Kidney Disease
2 years ago
Acute anxiety issues during dialysis
Has anyone here experienced acute, physiological anxiety symptoms during dialysis - symptoms which appear suddenly as if from nowhere about 20-60 minutes into session, and do not seem linked to emotional / mental state? Symptoms so intense and distressing that they may require modifying or even immediately
Has anyone here experienced acute, physiological anxiety symptoms during dialysis - symptoms which appear suddenly as if from nowhere about 20-60 minutes into session, and do not seem linked to emotional / mental state? Symptoms so intense and distressing that they may require modifying or even immediately
WimWalther
in
Kidney Dialysis
2 years ago
Best protein supplement powder on dialysis
Hi Just wanted to check which protein supplement powder is best for dialysis patients. I have been using Nephro HP powder. Any better alternative?
Hi Just wanted to check which protein supplement powder is best for dialysis patients. I have been using Nephro HP powder. Any better alternative?
ashok5085
in
Kidney Transplant
2 years ago
The Queen is too tired to lift her crown
I'm feeling tired thinking about the next two weeks. I have so much to do and so little time . If you don't hear from me much after this week, it's because of school. I've been tired in general. I'm trying to think if it is no more than usual. Is increased tiredness obvious or will it become more when
I'm feeling tired thinking about the next two weeks. I have so much to do and so little time . If you don't hear from me much after this week, it's because of school. I've been tired in general. I'm trying to think if it is no more than usual. Is increased tiredness obvious or will it become more when
HipHopQueen
in
Kidney Dialysis
2 years ago
Medical ID Bracelet
After transplant or while on dialysis does anyone have a medical ID bracelet? Like the kinds that alert if you have a severe allergy or the like and are not able to communicate? If so, where did you get it?
After transplant or while on dialysis does anyone have a medical ID bracelet? Like the kinds that alert if you have a severe allergy or the like and are not able to communicate? If so, where did you get it?
horsie63
in
Kidney Transplant
2 years ago
8 Activities to Try During Dialysis
Dialysis sessions can take upwards of 12 hours a week. We have some ways to help you pass the time. For more information, visit: https://www.kidney.org/newsletter/8-activities-to-try-during-dialysis
Dialysis sessions can take upwards of 12 hours a week. We have some ways to help you pass the time. For more information, visit: https://www.kidney.org/newsletter/8-activities-to-try-during-dialysis
JackieJ_NKF
Partner
in
Kidney Dialysis
2 years ago
Fistula question
I'm not in dialysis but I have a question.can you shower once it's healed and set or are you stuck washing your self in the sink from then on?
I'm not in dialysis but I have a question.can you shower once it's healed and set or are you stuck washing your self in the sink from then on?
S_dillow
in
Kidney Disease
2 years ago
Dialysis
I am getting my fistula fitted next week for dialysis. I have finally accepted that this is the next step. My gfr is at 9% but I feel the best, I felt in 7 years, since diagnosed 😳😳. Just wondering how people felt physically after starting dialysis? Do you put on weight, have more energy etc. I have
I am getting my fistula fitted next week for dialysis. I have finally accepted that this is the next step. My gfr is at 9% but I feel the best, I felt in 7 years, since diagnosed 😳😳. Just wondering how people felt physically after starting dialysis? Do you put on weight, have more energy etc. I have
Ziggydoodah
in
Kidney Disease
2 years ago
Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
bethedifference
in
Kidney Transplant
2 years ago
Rambler 64
I have opted for
peritoneal
dialysis
when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which helps. Anybody else in this situation?
I have opted for
peritoneal
dialysis
when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which helps. Anybody else in this situation?
Rambler64
in
Restless Legs Syndrome
3 years ago
Am I not taking my Stage 4 CKD seriously enough?
Maybe I'm in denial, I don't know. My "helpful" friend keeps sending me articles and info on Stage 4 CKD. Probably because he's worried about me. Most of the medical articles and others have charts for prognosis based on age and CKD Stage. For Stage 4, over age 55 or 60, they say prognosis of life expectancy
Maybe I'm in denial, I don't know. My "helpful" friend keeps sending me articles and info on Stage 4 CKD. Probably because he's worried about me. Most of the medical articles and others have charts for prognosis based on age and CKD Stage. For Stage 4, over age 55 or 60, they say prognosis of life expectancy
Sophiebun11
in
Kidney Disease
2 years ago
Low kidney function
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
joannieandmike
in
Kidney Dialysis
2 years ago
Low kidney function
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
joannieandmike
in
NRAS
2 years ago
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