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Breast cancer and UCTD
Has anyone had breast cancer and ctd???I have just had mastectomy early stage BC No positive nodes so no further treatment apart from aromatase inhibitors. No blood tests or scans done for further involvement. However ongoing and unexplained abdo swelling and pains which are not acknowledged or diagnosed
Has anyone had breast cancer and ctd???I have just had mastectomy early stage BC No positive nodes so no further treatment apart from aromatase inhibitors. No blood tests or scans done for further involvement. However ongoing and unexplained abdo swelling and pains which are not acknowledged or diagnosed
Narni21
in
LUPUS UK
1 month ago
Pain on one side of hip and leg
Hi all , My father who was diagnosed with metastatic Gleason 10 , mets to bones, PCa in Feb. 2024 and currently on ADT(Abiraterone + Lupron) had experienced leg and hip pain on left side suddenly day before yesterday (21st Aug . 2024). His last PSA was 2.96 in Jun 2024(initially diagnosed at 79.5 PSA
Hi all , My father who was diagnosed with metastatic Gleason 10 , mets to bones, PCa in Feb. 2024 and currently on ADT(Abiraterone + Lupron) had experienced leg and hip pain on left side suddenly day before yesterday (21st Aug . 2024). His last PSA was 2.96 in Jun 2024(initially diagnosed at 79.5 PSA
jeetu_g27
in
Advanced Prostate Cancer
1 month ago
Phase 1 for Personalized mRNA Cancer Vaccine Program EVM16
”EVM16 contains neoantigens with high immunogenicity potential that are predicted based on the unique tumor mutations of each patient by Everest’s proprietary neoantigen prediction algorithm. “ Let’s hope in some good preliminary results!! It’s for solid tumors I hope it will be tested on prostate
”EVM16 contains neoantigens with high immunogenicity potential that are predicted based on the unique tumor mutations of each patient by Everest’s proprietary neoantigen prediction algorithm. “ Let’s hope in some good preliminary results!! It’s for solid tumors I hope it will be tested on prostate
Maxone73
in
Advanced Prostate Cancer
1 month ago
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SalllyJones
My husband was diagnosed in Jan. 2022 by his Urologist for Stage 3b Highly Aggressive (label they gave it) prostate cancer, Gleason score of 8, into seminal vessicles, but no mets seen on PET Scan. Received Lupron for 18 months and Casodex 50mg was initiated immediately and continued once a day
My husband was diagnosed in Jan. 2022 by his Urologist for Stage 3b Highly Aggressive (label they gave it) prostate cancer, Gleason score of 8, into seminal vessicles, but no mets seen on PET Scan. Received Lupron for 18 months and Casodex 50mg was initiated immediately and continued once a day
SallyJones
in
Advanced Prostate Cancer
6 months ago
CT Scan
Just got results from CT scan that oncologist ordered as my CA125 has been rising steadily. I’m so worried because Scan showed a small amount of ascites in pelvic area but no tumor growth. Just wondering if anyone else has had this happen and if it meant definite reoccurrence. Waiting to hear from doctor
Just got results from CT scan that oncologist ordered as my CA125 has been rising steadily. I’m so worried because Scan showed a small amount of ascites in pelvic area but no tumor growth. Just wondering if anyone else has had this happen and if it meant definite reoccurrence. Waiting to hear from doctor
Hockeymom52
in
My Ovacome
1 month ago
Precision Drug Olaparib May Be Effective Without Hormone Therapy for Some Men with Biochemically Recurrent Prostate Cancer
Note: there is something better than olaparib that is being tested at the moment, something more precise and less toxic (saruparib) but still this is a very interesting news for people with HRR mutations, especially BRCA 1/2 because they are proving that this approach can work even without a simultaneous
Note: there is something better than olaparib that is being tested at the moment, something more precise and less toxic (saruparib) but still this is a very interesting news for people with HRR mutations, especially BRCA 1/2 because they are proving that this approach can work even without a simultaneous
Maxone73
in
Advanced Prostate Cancer
1 month ago
Started O plus V a few weeks ago. i have a question
I feel great after a few infusions and am starting pills next week. My bloodwork was normal for the first time in 10 years. I seem to be nervous about everything. My lymph nodes were down and now I feel a little one back. Should I be concerned or is this what happens. I go back next weeks for infusions
I feel great after a few infusions and am starting pills next week. My bloodwork was normal for the first time in 10 years. I seem to be nervous about everything. My lymph nodes were down and now I feel a little one back. Should I be concerned or is this what happens. I go back next weeks for infusions
elm1
in
CLL Support
1 month ago
Update on my liver cancer
I have just had a telephone call from my Liver Consultant. He gave me an update from first being told I would receive radiotherapy, this has now changed. I have to have a repeat CT scan and an MRI scan. Once I have these they are now looking at operating on the part of the liver where the cancer is
I have just had a telephone call from my Liver Consultant. He gave me an update from first being told I would receive radiotherapy, this has now changed. I have to have a repeat CT scan and an MRI scan. Once I have these they are now looking at operating on the part of the liver where the cancer is
Mick1414
in
British Liver Trust
1 month ago
Doxil plus Avastin
Mom (71 yrs) is put on Doxil and Avastin as other treatment failed to response in last one year. Do anybody have any experience to share. I am worried about side effects. Any feedback would he greatly appreciated.
Mom (71 yrs) is put on Doxil and Avastin as other treatment failed to response in last one year. Do anybody have any experience to share. I am worried about side effects. Any feedback would he greatly appreciated.
msuspartan
in
My Ovacome
1 month ago
How does one distinguish cancer related pain vs musculoskeletal pain due to ADT ?
I am on Orgovyx since 2 months and added Xtandi 3 weeks ago. Been getting musculoskeletal pains , mostly around late evening. Not too much - moderate kinds. My question is are there any pointers which can help distinguish which pains are due to ADT and which may be due to the cancer itself ?
I am on Orgovyx since 2 months and added Xtandi 3 weeks ago. Been getting musculoskeletal pains , mostly around late evening. Not too much - moderate kinds. My question is are there any pointers which can help distinguish which pains are due to ADT and which may be due to the cancer itself ?
Simpson80
in
Advanced Prostate Cancer
1 month ago
Update
Diagnosed 2019 Gleason 9 PSA 13.3 Docataxal Radio therapy presently on ADT still training intensely and making gains just had a PSA bump from 0.03 to 0.316 they told me not to worry but you how we are I am having a good run fatigue and minor urinary issues as expected still at work and giving my all
Diagnosed 2019 Gleason 9 PSA 13.3 Docataxal Radio therapy presently on ADT still training intensely and making gains just had a PSA bump from 0.03 to 0.316 they told me not to worry but you how we are I am having a good run fatigue and minor urinary issues as expected still at work and giving my all
Bodysculpture
in
Advanced Prostate Cancer
1 month ago
24681
hi I,haven’t posted anything in a while, but I read all the posts everyday. My journey with cancer recurrence started in 2020. I've been going thru a lot of treatments, I began with ibrance and faslodex, then Afinitor and aromasin, that stopped because I got pneumonitis, the dr then switched me to
hi I,haven’t posted anything in a while, but I read all the posts everyday. My journey with cancer recurrence started in 2020. I've been going thru a lot of treatments, I began with ibrance and faslodex, then Afinitor and aromasin, that stopped because I got pneumonitis, the dr then switched me to
24681
in
SHARE Metastatic Breast Cancer
1 month ago
Mushrooms use in PCa
Hello. we are new to this disease and just looking for answers. My husband is 68 and diagnosed with Advanced Prostate Cancer. I am a RN. We are both retired healthcare workers for 2 yrs. He has tumor in prostate and in 2 lymph nodes, he is High Risk genetics. Gleason score was 7, 8, 9 in 7 of 12 biopsy
Hello. we are new to this disease and just looking for answers. My husband is 68 and diagnosed with Advanced Prostate Cancer. I am a RN. We are both retired healthcare workers for 2 yrs. He has tumor in prostate and in 2 lymph nodes, he is High Risk genetics. Gleason score was 7, 8, 9 in 7 of 12 biopsy
SweetHomeAlaNana
in
Advanced Prostate Cancer
1 month ago
Hysterectomy at 45?!?!
hi all, I am just about to turn 45 years old and I have had endo since I was 20. 5 laparoscopies over the years, hormone treatment, several pills and I’ve just had my coil removed as I still had periods etc every month. I am at my wits end now, but I’m wondering if a hysterectomy at 45 is a good idea
hi all, I am just about to turn 45 years old and I have had endo since I was 20. 5 laparoscopies over the years, hormone treatment, several pills and I’ve just had my coil removed as I still had periods etc every month. I am at my wits end now, but I’m wondering if a hysterectomy at 45 is a good idea
Rabbit79
in
Endometriosis UK
1 month ago
Diagnosed with Richters
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
Louie_CC
in
CLL Support
1 month ago
Pain on my thigh and fatigue
Dear all,I've been diagnosed with advanced prostate cancer since 2021 they're metastasis on lymph nodes around my prostate and both of my lungs, I got lupron and x-geva injection every 3 months, plus x-tandi pills (3 pills daily), I've been experiencing fatigue, and both of my legs pain especially on
Dear all,I've been diagnosed with advanced prostate cancer since 2021 they're metastasis on lymph nodes around my prostate and both of my lungs, I got lupron and x-geva injection every 3 months, plus x-tandi pills (3 pills daily), I've been experiencing fatigue, and both of my legs pain especially on
Pat1956
in
Advanced Prostate Cancer
1 month ago
Mind/Emotion/Body connection
Hi, folks. I haven't been on this site for quite awhile, as I was (justly or not) put off by so much negative reaction to the concept that there is, science based truth that there is indeed a mind/heart (emotion)/body connection. And that we are not powerless or have no control over our diagnosis other
Hi, folks. I haven't been on this site for quite awhile, as I was (justly or not) put off by so much negative reaction to the concept that there is, science based truth that there is indeed a mind/heart (emotion)/body connection. And that we are not powerless or have no control over our diagnosis other
ybird
in
CLL Support
1 month ago
Soy and Organic Green Tea?
I am new and thanks for these informative posts. After 6 years clear of Stage 1 breast cancer, I have metastatic breast cancer in my bones, none in lymph nodes. I have no pain and I have been on Ibrance 125 three weeks on, one week off And Letrozole 25 daily for a year. All good with monthly blood
I am new and thanks for these informative posts. After 6 years clear of Stage 1 breast cancer, I have metastatic breast cancer in my bones, none in lymph nodes. I have no pain and I have been on Ibrance 125 three weeks on, one week off And Letrozole 25 daily for a year. All good with monthly blood
1S2M3S
in
SHARE Metastatic Breast Cancer
1 month ago
bone met
Had a PSMA scan that showed 2 Mets, one to lymph node, the other to a rib. Well there is no cure for me now. The met were radiated about a month ago but my side where rib is still sore. I assume the cancer is growing. They decided to not use ADT. I know that I am at the end. So getting my affairs in
Had a PSMA scan that showed 2 Mets, one to lymph node, the other to a rib. Well there is no cure for me now. The met were radiated about a month ago but my side where rib is still sore. I assume the cancer is growing. They decided to not use ADT. I know that I am at the end. So getting my affairs in
Howard53545
in
Advanced Prostate Cancer
1 month ago
Help with Results
I just updated my Bio and just received my PSMA Gallium scan results. Appointment is tomorrow to review but from what I see even with a low PSA of 0.052 a lymph node lit up which is rare. Is this correct and given this my guess SOC is whole pelvic adjuvant radiation and higher dose to lymph nodes or?
I just updated my Bio and just received my PSMA Gallium scan results. Appointment is tomorrow to review but from what I see even with a low PSA of 0.052 a lymph node lit up which is rare. Is this correct and given this my guess SOC is whole pelvic adjuvant radiation and higher dose to lymph nodes or?
Peppertree602
in
Advanced Prostate Cancer
6 months ago
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