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Blood in Urine
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Tonyliv
in
Advanced Prostate Cancer
6 months ago
Prostate Biopsy / Ibrutinib
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
Dyba
in
CLL Support
4 months ago
No indication for Docetaxel ?
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
CarlosBrasil
in
Advanced Prostate Cancer
7 months ago
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New trial in the West Midlands seeks to diagnose early-stage ovarian cancer
Good morning everyone This post is to let you know about the SONATA trial which is looking at whether taking two blood tests together (CA125 and HE4), and using a calculation called ROMA, would diagnose ovarian cancer earlier. The researchers hope that the tests used in the SONATA trial will mean
Good morning everyone This post is to let you know about the SONATA trial which is looking at whether taking two blood tests together (CA125 and HE4), and using a calculation called ROMA, would diagnose ovarian cancer earlier. The researchers hope that the tests used in the SONATA trial will mean
OvacomeSupport
My Ovacome Team
in
My Ovacome
7 months ago
First Post for husband and need advice please
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
MikeLa08
in
Prostate Cancer Network
4 months ago
radiation or no radiation
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
Peppertree602
in
Advanced Prostate Cancer
4 months ago
Dry frizzy hair due to MBC medication,
I’ve been on Ibrance and Faslodex for 4-1/2 years. Although I’m thankful that the meds have helped me so far, I would like to know if anyone has found a good shampoo and conditioner to help with dry, straight and frizzy hair, My old shiny and wavy hair changed significantly since start of MBC drugs
I’ve been on Ibrance and Faslodex for 4-1/2 years. Although I’m thankful that the meds have helped me so far, I would like to know if anyone has found a good shampoo and conditioner to help with dry, straight and frizzy hair, My old shiny and wavy hair changed significantly since start of MBC drugs
mspti8383
in
SHARE Metastatic Breast Cancer
4 months ago
prostate metastasis
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
Myshadowgirl1
in
Advanced Prostate Cancer
7 months ago
Dustasteride (avodart)
My doc has prescribed this drug for benign prostatic hyperplasia. I need help with urinary frequency, urgency, and frequent night time urination. It is too early to tell if the drug is helping. It can three to six months to have the desired effect of reducing prostate swelling. I am posting because
My doc has prescribed this drug for benign prostatic hyperplasia. I need help with urinary frequency, urgency, and frequent night time urination. It is too early to tell if the drug is helping. It can three to six months to have the desired effect of reducing prostate swelling. I am posting because
Parrsboro
in
Sensitive Issues for Men
4 months ago
Allergic reaction to Doxil, my first ever chemo infusion
Hi everyone, Has anyone experienced an allergic reaction to Doxil? Almost three years ago, I was diagnosed with stage 4 MBC. After being on hormone therapy for over two years, mostly IBrance and Letrozole, and then oral chemo for six months, my most recent petscan showed the cancer is still spreading
Hi everyone, Has anyone experienced an allergic reaction to Doxil? Almost three years ago, I was diagnosed with stage 4 MBC. After being on hormone therapy for over two years, mostly IBrance and Letrozole, and then oral chemo for six months, my most recent petscan showed the cancer is still spreading
penpen18
in
SHARE Metastatic Breast Cancer
4 months ago
Mark Buckley
Problem start in May 2023. Diagnosed with prostate cancer in August 2023. Started Bicalutamide 30th August 2023. 1 tablet x daily. Ended 19th September 2023. Started Contiflo XL 24th August 2023. 1 x daily. Ended 22nd September 2023. Hormone Implant called Zoladex LA 10.8mg 6th September 2023,
Problem start in May 2023. Diagnosed with prostate cancer in August 2023. Started Bicalutamide 30th August 2023. 1 tablet x daily. Ended 19th September 2023. Started Contiflo XL 24th August 2023. 1 x daily. Ended 22nd September 2023. Hormone Implant called Zoladex LA 10.8mg 6th September 2023,
whatisontheriver
in
Advanced Prostate Cancer
7 months ago
Update on trametinib (Mekinist) for low grade serous ovarian cancer
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
OvacomeSupport
My Ovacome Team
in
My Ovacome
7 months ago
infusion Side Effects
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
3putt
in
Advanced Prostate Cancer
4 months ago
Zytiga - Lupron
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
Schnab
in
Advanced Prostate Cancer
7 months ago
Doing well on Taxol. TM down by half!
I'm a long timer (20 years on 3/1/24, with bone mets since first diagnosis) and have done extremely well. Lobular bc, E + P + her2neu - at diagnosis. In 2023, it became triple negative and I was on Xeloda for a few months. It stopped working and I've been on Taxol for about 5 or 6 infusions. CA 27
I'm a long timer (20 years on 3/1/24, with bone mets since first diagnosis) and have done extremely well. Lobular bc, E + P + her2neu - at diagnosis. In 2023, it became triple negative and I was on Xeloda for a few months. It stopped working and I've been on Taxol for about 5 or 6 infusions. CA 27
PJBinMI
in
SHARE Metastatic Breast Cancer
4 months ago
Sword of Damocles
Hi, I am a month away from completing my initial treatment (external beam and brachytherapy, followed by 2 years of Lupron, Zytiga, and prednisone). I am not sure what to expect as my oncologist was not effusive in showing me a life I can expect. I expect that withing 3-4 months my psa will tell me
Hi, I am a month away from completing my initial treatment (external beam and brachytherapy, followed by 2 years of Lupron, Zytiga, and prednisone). I am not sure what to expect as my oncologist was not effusive in showing me a life I can expect. I expect that withing 3-4 months my psa will tell me
JayJinxed8112
in
Advanced Prostate Cancer
7 months ago
New to the form
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
Trixie-boo
in
My Ovacome
4 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
4 months ago
confused
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Beaver54
in
My Ovacome
4 months ago
New results soon (hopefully): A Phase 1 Study of FOR46 in Patients With Metastatic Castration-Resistant Prostate Cancer (mCRPC)
Not the latest, but some more insight, since results should be on their way https://clinicaltrials.ucsf.edu/trial/NCT03575819 but they are already working on another CD46-targeted alpha therapy based on YS5, a radioimmunoconjugate. https://jeccr.biomedcentral.com/articles/10.1186/s13046-023-02636
Not the latest, but some more insight, since results should be on their way https://clinicaltrials.ucsf.edu/trial/NCT03575819 but they are already working on another CD46-targeted alpha therapy based on YS5, a radioimmunoconjugate. https://jeccr.biomedcentral.com/articles/10.1186/s13046-023-02636
Maxone73
in
Advanced Prostate Cancer
7 months ago
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