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recently diagnosed with 3.5cm acoustic neuroma
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Longtallsally22
in
Acoustic Neuroma Support
6 days ago
FDA approved Inavolisib for PIK3 mutation
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
Godbeforme
in
SHARE Metastatic Breast Cancer
7 days ago
Seeking guidance with different Prostate Cancer biopsy results
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
Larry954
in
Prostate Cancer Network
7 days ago
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18F-flotufolastat PET alters treatment approach for nearly 90% of patients with recurrent prostate cancer
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
Maxone73
in
Advanced Prostate Cancer
6 months ago
First post
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
Mokoia
in
CLL Support
7 days ago
lynparza
my dad failed zytiga and xtandi- he has a somatic BRCa 2 mutation and they are switching him To lynpraza- I am a nervous wreck and just wondering if anyone has a positive experience with a parp - he’s 81 some normal heart issues that are stable- he has bone mets and the last two Years they were stable
my dad failed zytiga and xtandi- he has a somatic BRCa 2 mutation and they are switching him To lynpraza- I am a nervous wreck and just wondering if anyone has a positive experience with a parp - he’s 81 some normal heart issues that are stable- he has bone mets and the last two Years they were stable
Chris52981
in
Advanced Prostate Cancer
7 days ago
Pet scan shows stage 4
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
Cp014
in
Advanced Prostate Cancer
7 days ago
Pet scan shows stage 4
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
Cp014
in
Advanced Prostate Cancer
7 days ago
estrogen cream
Hi! I’m wondering if any of you ladies have tried estrogen vaginal cream? My oncologist said it’s safe at the percent (I think .01? 1?) prescribed for menopausal women … apparently a study tenderly concluded that women with breast cancer are safe to use this medication to help with the symptoms of lack
Hi! I’m wondering if any of you ladies have tried estrogen vaginal cream? My oncologist said it’s safe at the percent (I think .01? 1?) prescribed for menopausal women … apparently a study tenderly concluded that women with breast cancer are safe to use this medication to help with the symptoms of lack
TwithBC
in
SHARE Metastatic Breast Cancer
8 days ago
Meta analysis of Eastern Cooperative Oncology Group(ECOG) PS predicts OS regardless of category, previous chemotherapy, and mPC population
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
”Overall, 75 studies, comprising 32,298 patients, were included. Most studies (72/75) included patients with mCRPC. Higher ECOG PS was associated with a significant increase in mortality risk, with the highest estimate observed among patients with mCRPC with an ECOG PS of ≥2 versus <2 (hazard ratio [
Graham49
in
Advanced Prostate Cancer
4 months ago
8 years and counting.
well 8 years ago I got the sad face from my doctor. 50/50 chance of 5 years. Now as my wife would say I’m past my expectations date. On top of that just had hip surgery on both hips. Went in for one hip, left hip ball worn out, but x rays showed that the cancer had eaten all the way across the femur
well 8 years ago I got the sad face from my doctor. 50/50 chance of 5 years. Now as my wife would say I’m past my expectations date. On top of that just had hip surgery on both hips. Went in for one hip, left hip ball worn out, but x rays showed that the cancer had eaten all the way across the femur
larry_dammit
in
Advanced Prostate Cancer
8 days ago
Phase 1 Clinical Trial of AGX101, a novel TM4SF1-Directed Antibody-Drug Conjugate for the Treatment of Solid Tumors
A new and hopefully potent ADC. Antibody-drug conjugates, not only for prostate cancer, are a hot topic now, so they should get better and better as competition rises. https://www.biospace.com/angiex-announces-first-patient-dosed-in-phase-1-clinical-trial-of-agx101-a-novel-tm4sf1-directed-antibody-drug-conjugate-for-the-treatment-of-solid-tumors
A new and hopefully potent ADC. Antibody-drug conjugates, not only for prostate cancer, are a hot topic now, so they should get better and better as competition rises. https://www.biospace.com/angiex-announces-first-patient-dosed-in-phase-1-clinical-trial-of-agx101-a-novel-tm4sf1-directed-antibody-drug-conjugate-for-the-treatment-of-solid-tumors
Maxone73
in
Advanced Prostate Cancer
8 days ago
3rd Biopsy
Hi All, I had my 3rd liver bI iopsy last Monday, This was in a matter of weeks. When I saw my liver consultant he told me I had liver cancer with a 3cm lesion. He is hoping to start me on radiotherapy once he gets the result from my 3rd liver biopsy. I have the attitude to fight this terrible disease
Hi All, I had my 3rd liver bI iopsy last Monday, This was in a matter of weeks. When I saw my liver consultant he told me I had liver cancer with a 3cm lesion. He is hoping to start me on radiotherapy once he gets the result from my 3rd liver biopsy. I have the attitude to fight this terrible disease
Mick1414
in
British Liver Trust
9 days ago
Stage four ….
I had chemoradiation for oesophogeal cancer in late 2023, not seen as suitable for operation. Now have metastases to ureter ( not v usual) and am about to start more Folfox with Nivolumab for three months. Seems the prognosis depends on how well I respond to this treatment. Anyone with similar
I had chemoradiation for oesophogeal cancer in late 2023, not seen as suitable for operation. Now have metastases to ureter ( not v usual) and am about to start more Folfox with Nivolumab for three months. Seems the prognosis depends on how well I respond to this treatment. Anyone with similar
Vitex
in
Oesophageal & Gastric Cancer
9 days ago
I know things have changed, just curious
12 years ago when I was diagnosed my biopsy came back at 4+4 =8. I was 62 yrs old at the time. I subsequently had surgery and they found the cancer was contained and I was downgraded to 4+3 = 7. I then went six years until I needed SRT, and have now gone 6 more years and my PSA is easing upwards again
12 years ago when I was diagnosed my biopsy came back at 4+4 =8. I was 62 yrs old at the time. I subsequently had surgery and they found the cancer was contained and I was downgraded to 4+3 = 7. I then went six years until I needed SRT, and have now gone 6 more years and my PSA is easing upwards again
fourputt
in
Prostate Cancer Network
9 days ago
Update to recent post "At 0.033 lesion identified by Pylarify PSMA PET"
Continuing on my patient-directed path of precision medicine investigation, scheduling second opinion of this imaging finding, an appropriate liver MRI and lesion biopsy. Note, it is possible this lesion is not prostate cancer, it may be something else of concern, maybe benign. Wish to share I remain
Continuing on my patient-directed path of precision medicine investigation, scheduling second opinion of this imaging finding, an appropriate liver MRI and lesion biopsy. Note, it is possible this lesion is not prostate cancer, it may be something else of concern, maybe benign. Wish to share I remain
NanoMRI
in
Advanced Prostate Cancer
9 days ago
Diagnosed under 55
I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are different and unfortunately so it the overall outlook. The younger men are diagnosed with PCa, the more aggressive the cancer tends to be.
I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are different and unfortunately so it the overall outlook. The younger men are diagnosed with PCa, the more aggressive the cancer tends to be.
Vegasborn
in
Advanced Prostate Cancer
6 months ago
has anyone gone through breast lumps and symptoms of breast cancer
hello All, I'm schedualed thursday for mammogram and sonogram for lumps found in Breast but my question is has anyone gone through this and felt any symptoms like pain. I have not had any until yesterday eve and today. it comes and goes, I'm doing my b12 inj. EOD and wondering if it is just my nerves
hello All, I'm schedualed thursday for mammogram and sonogram for lumps found in Breast but my question is has anyone gone through this and felt any symptoms like pain. I have not had any until yesterday eve and today. it comes and goes, I'm doing my b12 inj. EOD and wondering if it is just my nerves
JesusMercy60
in
Pernicious Anaemia Society
10 days ago
Black Salve
Three months ago my oncologist measured the "met" [ don't know if is cancer] on my chest and ordered a CT scan and a mammogram. Before the tests I applied a Native American med some call "black salve" to the met. It lets you know it's working for about a day and half. The tests came back no cancer.
Three months ago my oncologist measured the "met" [ don't know if is cancer] on my chest and ordered a CT scan and a mammogram. Before the tests I applied a Native American med some call "black salve" to the met. It lets you know it's working for about a day and half. The tests came back no cancer.
agnut
in
Fight Prostate Cancer
11 days ago
olaparib
Just wondering if anyone has experience with olaparib? I now have metastases in my liver as well as bones. I started carboplatin chemo last week after failed docetaxel and carparvotaxel treatments. Olaparib has been mentioned as a possible treatment.
Just wondering if anyone has experience with olaparib? I now have metastases in my liver as well as bones. I started carboplatin chemo last week after failed docetaxel and carparvotaxel treatments. Olaparib has been mentioned as a possible treatment.
Luylu
in
Prostate Cancer Network
11 days ago
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