Experiences with

Peritoneal cancer

Dear All We have been asked by the National Institute of Health and Care Excellence (NICE) to make a submission as part of their assessment for Mirvetuximab soravtansine for treating folate receptor alpha-positive platinum-resistant advanced epithelial ovarian, fallopian tube or primary peritoneal cancer

Hi everyone I've just undergone a few tests and ultrasound as I had bloating,bleeding and constipation.I was concerned as My mum had stage 4 primary peritoneal cancer yrs ago treated as ovarian. She knew it would return and had debulking and chemotherapy the second time.

I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor

My Mum was diagnosed in April 2022 with primary peritoneal cancer. She responded well to chemo but has had two recurrences, with chemo working each time at fighting it back.

So a month ago I contacted the GP with bleeding post meno bloating and constipation.As my mum had stage 4 primary peritoneal cancer then ovarian cancer I knew these were suspicious symptoms. So FIT test done, pelvic exam,CA125 Trans vaginal scan and ultrasound plus full blood tests.

Hi everyone, I have stage 4a recurrent peritoneal cancer. I started with ovarian 2.5 years ago, had debulking surgery then 3 different rounds of chemo as the cancer has returned pretty quickly every time. I have had a long 5 month break which has been great.

Hi, I am 75 years old, have CKD and my nephrologist is recommending PD dialysis for me. I'm at the point where it's going to be needed in the future because my kidneys are getting worse but I don't need it right this minute. I also have Parkinson's and that along with carbidopa/levodopa type medication

Hello everyone, today I am writing in search of some light and cure for my sanity. I am 22 years old, I was diagnosed with CKD in 2021. For the past 3 years, I have been on peritoneal dialysis, but due to an ongoing infection, it is going to be removed. Because of these results, I must return to HD.

My son and I are caretakers for my ex-husband. He is on peritoneal dialysis (has done well on it for 18 months!), and ended up in the hospital with COVID a month ago. It was a long haul, but he has pulled through. However, he is now significantly weaker than he was before Covid, so he will need to

My name is Alexa and today, I would like to share my story! In November of 2015, I was diagnosed with IgA Nephropathy at Birmingham’s Children’s Hospital. To say my little 14-year-old world was turned upside down would be an understatement. Throughout the past decade, I have carried this kidney disease

Hello, I've been on peritoneal dialysis for five years and I feel great. I'm 59 years old, female, African American. I'm very active. I teach four line dance classes every week. I attend another. I attend church regularly, and work in our Good Works minisrty. Although I do not drink, my husband and

Hello! My name is Tracy and while I have an EXTENSIVE medical history, I'm really wondering if anyone else struggles with chronically low magnesium. I actually have to have a 3+ hour magnesium infusion every Tuesday. My transplant is from my mom, 30 years on January 4th, 2025. I'm 52 and was diagnosed

Hi, Everybooty!My name is Tracy and I have a living donor transplant (from my mommy who is 82 and pretty healthy) that will be 30 years old on January 4, 2025. I'm 52 years old and my kidneys failed due to having Systemic Lupus Erythematosis that I was diagnosed with in November 1987 and my kidneys failed

What is peritoneal dialysis and who can benefit from it? Today, Britney Dickerson, dialysis patient, and Jenny Wilson, Davita's regional director of home dialysis in New York City, are here to break it down. To listen to this podcast, visit: https://hottopicsinkidneyhealth.podbean.com/e/what-is-peritoneal-dialysis

Hello, My sister went on the kidney transplant list two and a half years ago after being diagnosed with renal failure, and until this past July, was doing Peritoneal Dialysis, which she was doing quite well on. However, starting in the new year this year, she had three minor strokes, and after the last

My spouse is currently receiving peritoneal dialysis and moving forward to the transplant list.

I don't post much because my RLS isn't too bad most nights.I tried adding that both my kidneys have failed because of catching Covid for the second time and already I have a number of health issues. I am on Peritoneal Dialysis and I am diabetic. I treat my RLS with 75mg Pregabalin, I know it's nothing

Hi- I was diagnosed with primary peritoneal cancer in Jan 2024. I had my first chemo last week and reacted to the taxol (paclitaxel) so could only receive bev and carboplatin. I will be switched to taxotere for my next treatment.

My Mum has primary peritoneal cancer, diagnosed April 2022. It has recurred more than once, but she remains responsive to chemo every time, with the tumours always described as stable post treatment and CA marker consistently around 60- which they weren't worried about .

My name is Deepti and I am 35 years old . In April 2024, I was diagnosed with End-Stage Renal Disease and now rely on peritoneal dialysis (PD) 7 days a week. Dialysis is exhausting and restricts my daily activities . I hold a Masters degree from Purdue and work as a Data engineer in Silicon Valley