Experiences with

Peritoneal cancer

Dear All We have been asked by the National Institute of Health and Care Excellence (NICE) to make a submission as part of their assessment for Mirvetuximab soravtansine for treating folate receptor alpha-positive platinum-resistant advanced epithelial ovarian, fallopian tube or primary peritoneal cancer

My dad had cancer too.

I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor

My Mum was diagnosed in April 2022 with primary peritoneal cancer. She responded well to chemo but has had two recurrences, with chemo working each time at fighting it back.

So a month ago I contacted the GP with bleeding post meno bloating and constipation.As my mum had stage 4 primary peritoneal cancer then ovarian cancer I knew these were suspicious symptoms. So FIT test done, pelvic exam,CA125 Trans vaginal scan and ultrasound plus full blood tests.

Hi everyone, I have stage 4a recurrent peritoneal cancer. I started with ovarian 2.5 years ago, had debulking surgery then 3 different rounds of chemo as the cancer has returned pretty quickly every time. I have had a long 5 month break which has been great.

Hi, I am 75 years old, have CKD and my nephrologist is recommending PD dialysis for me. I'm at the point where it's going to be needed in the future because my kidneys are getting worse but I don't need it right this minute. I also have Parkinson's and that along with carbidopa/levodopa type medication

For the past 3 years, I have been on peritoneal dialysis, but due to an ongoing infection, it is going to be removed. Because of these results, I must return to HD. I am struggling and am not a person to open up much; I am very private, and that is pretty much it.

He is on peritoneal dialysis (has done well on it for 18 months!), and ended up in the hospital with COVID a month ago. It was a long haul, but he has pulled through.

On December 26th, I started receiving Peritoneal Dialysis daily while at home. I healed from the procedure and immediately began learning the ins and outs of dialysis through Davita Home Options. Without their help and constant support, I do not know if I could have done it all on my own!

Hello, I've been on peritoneal dialysis for five years and I feel great. I'm 59 years old, female, African American. I'm very active. I teach four line dance classes every week. I attend another. I attend church regularly, and work in our Good Works minisrty.

I've been on hemodialysis and peritoneal dialysis.

I have experience with being on hemodialysis and peritoneal dialysis. If you're still reading, thank you and I look forward to meeting people as I am feeling kind of alone.

To listen to this podcast, visit: https://hottopicsinkidneyhealth.podbean.com/e/what-is-peritoneal-dialysis/

Hello, My sister went on the kidney transplant list two and a half years ago after being diagnosed with renal failure, and until this past July, was doing Peritoneal Dialysis, which she was doing quite well on.

My spouse is currently receiving peritoneal dialysis and moving forward to the transplant list.

I am on Peritoneal Dialysis and I am diabetic. I treat my RLS with 75mg Pregabalin, I know it's nothing in this forum. The reason I am writing this is because I just experienced something I have never experienced in my 50 years with RLS!

My Mum has primary peritoneal cancer, diagnosed April 2022. It has recurred more than once, but she remains responsive to chemo every time, with the tumours always described as stable post treatment and CA marker consistently around 60- which they weren't worried about .

Hi- I was diagnosed with primary peritoneal cancer in Jan 2024. I had my first chemo last week and reacted to the taxol (paclitaxel) so could only receive bev and carboplatin. I will be switched to taxotere for my next treatment.

In April 2024, I was diagnosed with End-Stage Renal Disease and now rely on peritoneal dialysis (PD) 7 days a week. Dialysis is exhausting and restricts my daily activities . I hold a Masters degree from Purdue and work as a Data engineer in Silicon Valley.