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What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
5 months ago
Diabetes cirrhosis and HCC
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
pussycat66
in
British Liver Trust
5 months ago
Celiac and CKD
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
ZenPDX
in
Kidney Dialysis
5 months ago
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No diagnosis but lots of symptoms
I have been diagnosed with hypothyroidism and am only a very low dosage of levothyroxine - which I don't think is managing my symptoms. However, I think that I may have lupus symptoms. I have been diagnosed with dry eyes and suffer badly with discomfort, grittiness, pain and light sensitivity. I have
I have been diagnosed with hypothyroidism and am only a very low dosage of levothyroxine - which I don't think is managing my symptoms. However, I think that I may have lupus symptoms. I have been diagnosed with dry eyes and suffer badly with discomfort, grittiness, pain and light sensitivity. I have
scool
in
LUPUS UK
8 months ago
Garlic and Autoimmune
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
Thick_Blood
in
Hughes Syndrome APS Forum
8 months ago
treatment or no treatment?
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
Reacher2023
in
Advanced Prostate Cancer
5 months ago
6 years post tah bso awaiting surgery for extensive adhesions and endo .
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
endoaftertahbso
in
Endometriosis UK
5 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
5 months ago
Unexplained vertigo
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
sunmoon_
in
LUPUS UK
8 months ago
high alp. Very worried
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
Watersk
in
British Liver Trust
5 months ago
blood results
can you help with my latest result please. As usual come back normal. Levothyroxine reduced 6 months ago from 125 to 100. I have Hashimotos. Sjrogren TSH. 4.6 T4 11.6 serum creatine kinase. 81
can you help with my latest result please. As usual come back normal. Levothyroxine reduced 6 months ago from 125 to 100. I have Hashimotos. Sjrogren TSH. 4.6 T4 11.6 serum creatine kinase. 81
Elaine22
in
Thyroid UK
5 months ago
Liver Palms
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Betsy5
in
British Liver Trust
5 months ago
misdiagnosed cirrhosis?
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
juneblue
in
British Liver Trust
5 months ago
hashimotos and cortisol testing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Sammy333
in
Thyroid UK
6 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
6 months ago
private consultation
so today I had my consultation… I do feel slight disheartened coming away from this appointment. I was told there is a small chance it could be endometriosis however it is more than likely a bowel issue due to my symptoms but they also cross wire with endo symptoms. I haven’t had any findings on scans
so today I had my consultation… I do feel slight disheartened coming away from this appointment. I was told there is a small chance it could be endometriosis however it is more than likely a bowel issue due to my symptoms but they also cross wire with endo symptoms. I haven’t had any findings on scans
Moll2309
in
Endometriosis UK
8 months ago
Whats high PSA? ( when you havent been diagnosed with prostate cancer)
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
Daddysgirl83
in
Advanced Prostate Cancer
6 months ago
PSA level six months Eligard
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
toyman79912
in
Advanced Prostate Cancer
6 months ago
Options After Pluvicto.................
Pluvicto is dropping my PSA, and i will be having my fourth infusion on December 4th, 2023. Has anyone in my situation know what their next option will be ?? What comes after Pluvicto to maintain a low PSA ??
Pluvicto is dropping my PSA, and i will be having my fourth infusion on December 4th, 2023. Has anyone in my situation know what their next option will be ?? What comes after Pluvicto to maintain a low PSA ??
Kian28
in
Advanced Prostate Cancer
6 months ago
duel diagnoses Lupus SLE and Hemochromatosis
Anyone else on here have Lupus SLE and Hemochromatosis.
Anyone else on here have Lupus SLE and Hemochromatosis.
Moxie5
in
LUPUS UK
8 months ago
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