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being redundant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
spencoid2
in
Advanced Prostate Cancer
5 months ago
Palliative care survey for less survivable cancer patients & loved ones (UK)
š£ The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
š£ The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
Hello everyone!
My name is Michaella and I am the new Volunteer Coordinator for LUPUS UK. Before joining the wonderful lupus family I worked in offices carrying out various administrative roles. Then in 2018, I went on to begin a degree in Midwifery and while I love supporting women and their families, in recent months
My name is Michaella and I am the new Volunteer Coordinator for LUPUS UK. Before joining the wonderful lupus family I worked in offices carrying out various administrative roles. Then in 2018, I went on to begin a degree in Midwifery and while I love supporting women and their families, in recent months
michaellasmith
Administrator
in
LUPUS UK
10 months ago
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Pulsed Field Ablation underwhelming in trial
PFA has been the big hope in AF ablations. The results of a trial have however been underwhelming according to John Mandrola: https://www.medscape.com/viewarticle/995898 In the trial of 600 patients with AF who were split evenly between PFA and conventional RF, PFA was non-inferior but not superior
PFA has been the big hope in AF ablations. The results of a trial have however been underwhelming according to John Mandrola: https://www.medscape.com/viewarticle/995898 In the trial of 600 patients with AF who were split evenly between PFA and conventional RF, PFA was non-inferior but not superior
MarkS
in
AF Association
8 months ago
Cortisol testing
Morning team :) I have very low cortisol. Had the saliva test last year and the 9am blood test. Wondering this year which is the best all round test to do. Is the urine test the most accurate in peoples opinions and experiences? I have according to Medichecks, adrenal gland dysfunction. I have had
Morning team :) I have very low cortisol. Had the saliva test last year and the 9am blood test. Wondering this year which is the best all round test to do. Is the urine test the most accurate in peoples opinions and experiences? I have according to Medichecks, adrenal gland dysfunction. I have had
smilingjane
in
Thyroid UK
8 months ago
INVOLVEMENT OPPORTUNITY - Research (UK)
One of the NIHR liver partnership research teams in the UK is working on a study to encourage patients with a diagnosis of liver disease to regularly attend for cancer screening. There are many things that make this difficult for people, particularly if they are homeless or vulnerable. The researchers
One of the NIHR liver partnership research teams in the UK is working on a study to encourage patients with a diagnosis of liver disease to regularly attend for cancer screening. There are many things that make this difficult for people, particularly if they are homeless or vulnerable. The researchers
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
Blood clots in calf
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought Iād just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought Iād just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Susiemac1321
in
NRAS
8 months ago
Vitamin B12 deficiency in over 16s: diagnosis and management
Draft of NICE B12 deficiency guidelines has been put online. [i]
Vitamin B12 deficiency in over 16s: diagnosis and management
[/i] [i]In development [GID-NG10176] Expected publication date: 16 January 2024 [/i] https://www.nice.org.uk/guidance/indevelopment/gid-ng10176/documents There is a thread
Draft of NICE B12 deficiency guidelines has been put online. [i]
Vitamin B12 deficiency in over 16s: diagnosis and management
[/i] [i]In development [GID-NG10176] Expected publication date: 16 January 2024 [/i] https://www.nice.org.uk/guidance/indevelopment/gid-ng10176/documents There is a thread
helvella
Thyroid UK
in
Thyroid UK
10 months ago
flecainide question
Thank you everyone for the goodwill and empathy of this community. Iāve had two ablations (cryoablation, and RF). After a year living symptom free, AF episodes have recurred. However, following , two reversions to NSR via Flecainide and Bisoprolol as a āpill in the pocketā intervention, itās not
Thank you everyone for the goodwill and empathy of this community. Iāve had two ablations (cryoablation, and RF). After a year living symptom free, AF episodes have recurred. However, following , two reversions to NSR via Flecainide and Bisoprolol as a āpill in the pocketā intervention, itās not
Waverto
in
AF Association
5 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram mustāve been listening šš¼ as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. Iāve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram mustāve been listening šš¼ as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. Iāve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
1 month ago
gobsmacked
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
Hidden
in
Restless Legs Syndrome
8 months ago
Advice please on paroxysmal afib
Hi all, I was diagnosed with lone AF in 2020. I think most of you are familiar with my story.My episodes (very symptomatic) were about every 4 months lasting up to 36 hours before reverting back to NSR. I have started to have them more frequently so went for an ablation which was scheduled for this week
Hi all, I was diagnosed with lone AF in 2020. I think most of you are familiar with my story.My episodes (very symptomatic) were about every 4 months lasting up to 36 hours before reverting back to NSR. I have started to have them more frequently so went for an ablation which was scheduled for this week
Karendeena
in
AF Association
5 months ago
Palpitations worse after ablation
Good evening everyone, Iām really struggling after my catheter ablation 10 days ago. The palpitations and ectopics Iām experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know itās early days
Good evening everyone, Iām really struggling after my catheter ablation 10 days ago. The palpitations and ectopics Iām experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know itās early days
Carolx
in
AF Association
5 months ago
Elevated Cholesterol
Hello, Just had my cholesterol results back and they are quite elevated. Just wondering whether anyone else has elevated Cholesterol and just taking Aspirin watch and wait? Fortunately my Triglycerides are good. I tried Atorvastatin in 2018 but had to stop after 6m due to severe muscle aches. No
Hello, Just had my cholesterol results back and they are quite elevated. Just wondering whether anyone else has elevated Cholesterol and just taking Aspirin watch and wait? Fortunately my Triglycerides are good. I tried Atorvastatin in 2018 but had to stop after 6m due to severe muscle aches. No
Carol0925
in
MPN Voice
5 months ago
microscopic blood in urine.
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasnāt interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasnāt interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Elliehca
in
Pelvic Pain Support Network
8 months ago
An opera written for/by and performed by PWP!
Hi all I'm posting this as a bit of light relief. If you like this kind of thing I think it might be therapeutic and empowering to watch it - for enjoyment, like I've seen art or poetry by PWP posted here before. Here in the UK singing for Parkinson's is becoming a bigger and bigger thing. My local
Hi all I'm posting this as a bit of light relief. If you like this kind of thing I think it might be therapeutic and empowering to watch it - for enjoyment, like I've seen art or poetry by PWP posted here before. Here in the UK singing for Parkinson's is becoming a bigger and bigger thing. My local
Smokeypurple
in
Cure Parkinson's
8 months ago
from Consumer Lab
Counterfeit supplements are being sold on Amazon and reports of this have been increasing lately. For example, in April 2023, two supplement companies, NOW Foods and Fungi Perfecti, separately reported counterfeit versions of their products sold on Amazon. Fungi Perfecti discovered 23 different sellers
Counterfeit supplements are being sold on Amazon and reports of this have been increasing lately. For example, in April 2023, two supplement companies, NOW Foods and Fungi Perfecti, separately reported counterfeit versions of their products sold on Amazon. Fungi Perfecti discovered 23 different sellers
MBAnderson
in
Cure Parkinson's
8 months ago
U.S. Gov't to Negotiate Prices for Ibrutinib
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
michaeledward
in
CLL Support
8 months ago
Liver Biopsy Negative can it still be PBC?
I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA with a titer of 1:320 so my primary doctor sent me to a gastroenterologist. He thought I just had fatty liver but did more bloodwork and scheduled me for an ultrasound, He called when the labs came back and said he wanted tod
I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA with a titer of 1:320 so my primary doctor sent me to a gastroenterologist. He thought I just had fatty liver but did more bloodwork and scheduled me for an ultrasound, He called when the labs came back and said he wanted tod
Needmercy
in
PBC Foundation
8 months ago
2nd Liver Biopsy result
My 2nd liver biopsy states I have advanced bridging fibrosis with a score of 4/6. Which I think means F3. My previous fibroscan was F2 (9.2kpa). I'm not seeing my consultant for 13 weeks. I know I'm not supposed to post test results but I would love to hear from anyone at F3 & how they are coping with
My 2nd liver biopsy states I have advanced bridging fibrosis with a score of 4/6. Which I think means F3. My previous fibroscan was F2 (9.2kpa). I'm not seeing my consultant for 13 weeks. I know I'm not supposed to post test results but I would love to hear from anyone at F3 & how they are coping with
Bigbluemonkey
in
British Liver Trust
1 month ago
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