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The great Pred debate
Yes we all want to come off them and yes Rhumi's are totally focused on getting us off them. However, it is my understanding that people who've had an organ transplant will be on Pred for life. Sooo, if you have a kernackered auto immune system, maybe you'll be on Preds for life. If Rhumi could come
Yes we all want to come off them and yes Rhumi's are totally focused on getting us off them. However, it is my understanding that people who've had an organ transplant will be on Pred for life. Sooo, if you have a kernackered auto immune system, maybe you'll be on Preds for life. If Rhumi could come
RevSmallwood
in
PMRGCAuk
4 years ago
Impact of Vasectomy on the Development and Progression of PCa: Preclinical Evidence
New study below [1]. A post on the possible influence of vasectomy on PCa development might seem like navel gazing at this point, but the subject continues to interest me. When the first "bad news" about vasectomy was published long ago, the reaction was unexpected. Rather than warn men about to be
New study below [1]. A post on the possible influence of vasectomy on PCa development might seem like navel gazing at this point, but the subject continues to interest me. When the first "bad news" about vasectomy was published long ago, the reaction was unexpected. Rather than warn men about to be
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Right side, upper back pain for 4 weeks
Hello everyone, I have not posted in such a long time. I hope everyone is doing well under the circumstances. About 4 weeks ago I developed pain on my upper back but right side where the ribs are. The last 2 weeks it has been horrendous to the point I have been bedridden. The GP had prescribed a few
Hello everyone, I have not posted in such a long time. I hope everyone is doing well under the circumstances. About 4 weeks ago I developed pain on my upper back but right side where the ribs are. The last 2 weeks it has been horrendous to the point I have been bedridden. The GP had prescribed a few
Jahida
in
British Liver Trust
4 years ago
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MDS and AML
Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis and having over a dozen blood tests abd no referrals earlier we have had the awful news this week that my partner has both MDS and AML and goes into hospital today for 4/5 weeks of chemo with view to stem
Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis and having over a dozen blood tests abd no referrals earlier we have had the awful news this week that my partner has both MDS and AML and goes into hospital today for 4/5 weeks of chemo with view to stem
sportydad
in
Leukaemia Support
4 years ago
I get heavy after the day is it normal?
I got my kidney transplant in July 2020 and know I'm getting rocking nr on my scale I go from 84 kg to 88 kg in a day and sometimes it resets when I sleep because I urinate most in the night is this normal?
I got my kidney transplant in July 2020 and know I'm getting rocking nr on my scale I go from 84 kg to 88 kg in a day and sometimes it resets when I sleep because I urinate most in the night is this normal?
mrkh09
in
Kidney Transplant
4 years ago
Arthritis and Kidney Transplant
Does anyonesuffer from terrible arthritis, what if anything do you take for the pain?
Does anyonesuffer from terrible arthritis, what if anything do you take for the pain?
1transplant
in
Kidney Transplant
4 years ago
I WANT TO KNOW IF ANYONE ELSE HAS HAS BEEN DENIED A KIDNEY TRANSPLANT JUST BECAUSE THEY WERE TREATED BY RADIATION FOR STAGE 1 colon cancer.
I need answers for my question.
I need answers for my question.
VokMe
in
Kidney Transplant
4 years ago
Invitation to see a presentation about fictional and real-life cardiac devices :)
Hi everyone. As many of you know, I'm living the dream and doing a PhD about literary representations of chronic heart disease. I have recorded a presentation about a little bit of my recent research, looking at the fictional cardiac devices of Peter Bunzl's children's novel Cogheart, and how these relate
Hi everyone. As many of you know, I'm living the dream and doing a PhD about literary representations of chronic heart disease. I have recorded a presentation about a little bit of my recent research, looking at the fictional cardiac devices of Peter Bunzl's children's novel Cogheart, and how these relate
laura_dropstitch
Heart Star
in
British Heart Foundation
4 years ago
Ntpobnp blood test
Hi all. I had a bone marrow transplant 2 years ago. It put stress on my heart. Last week i had a echocardiogram which has come back good!!! Though my bnp level is 600... i am 38. So too high. My consultant is not worried though. Does this sound right?? Does a high bnp always mean heart failure? Back
Hi all. I had a bone marrow transplant 2 years ago. It put stress on my heart. Last week i had a echocardiogram which has come back good!!! Though my bnp level is 600... i am 38. So too high. My consultant is not worried though. Does this sound right?? Does a high bnp always mean heart failure? Back
Jalola
in
British Heart Foundation
4 years ago
Always need to urinate
I am 16 months post kidney transplant. I always have the need to urinate and this is affecting my life in many ways. I cannot hold my urine there is too much pain and there is always this urge to go. Sometimes I even have to go every 30 minutes. I got tested for urine infection and it was negative
I am 16 months post kidney transplant. I always have the need to urinate and this is affecting my life in many ways. I cannot hold my urine there is too much pain and there is always this urge to go. Sometimes I even have to go every 30 minutes. I got tested for urine infection and it was negative
Tahmed251
in
Kidney Transplant
4 years ago
Transplant and mental health
I'm waiting on a heart transplant and been put on entresto aling with all my other meds but find my mental health deteriorating as though feeling better but due to lack of sleeping not got any quality of life help!!!
I'm waiting on a heart transplant and been put on entresto aling with all my other meds but find my mental health deteriorating as though feeling better but due to lack of sleeping not got any quality of life help!!!
Patchthomas
in
British Heart Foundation
4 years ago
Done it!! Feeling like a champ.
Week 9 Run 3 - DONE!! This programme is so amazing. To start just over 2 months ago hardly able to get through 1 minute of running to graduating today is just blowing my mind. It’s such a sense of achievement. The health of my body and my mind is so much improved. As I’ve posted before I’m exactly a
Week 9 Run 3 - DONE!! This programme is so amazing. To start just over 2 months ago hardly able to get through 1 minute of running to graduating today is just blowing my mind. It’s such a sense of achievement. The health of my body and my mind is so much improved. As I’ve posted before I’m exactly a
Dootamie
Graduate
in
Couch to 5K
4 years ago
Car-T and a bone marrow transplant
Is someone in their late 70's and older too old to have Car-T therapy or a bone marrow transplant?
Is someone in their late 70's and older too old to have Car-T therapy or a bone marrow transplant?
Bmarbler
in
CLL Support
4 years ago
Severe Sweating After My Kidney Transplant 3 Years Ago.
Oct 31 will be my 3-year kidney anniversary. I take 4mg of Envarsus (Tacro) and 5mg of Prednisone daily. I am doing exceptionally well except for the severe sweating that causes me to change clothing multiple times during the night and day. It happened for a while last year. The doctors did a number
Oct 31 will be my 3-year kidney anniversary. I take 4mg of Envarsus (Tacro) and 5mg of Prednisone daily. I am doing exceptionally well except for the severe sweating that causes me to change clothing multiple times during the night and day. It happened for a while last year. The doctors did a number
kidneytransplan
in
Kidney Transplant
4 years ago
Kidney failure following liver transplant
I'm now 7 weeks post transplant and my liver is working perfectly, but at clinic this week my kidney blood tests were elevated to moderate (stage 3) kidney failure. Is this common following a transplant and is it something that will improve or continue to be a concern or get worse? P.s. I am diabetic
I'm now 7 weeks post transplant and my liver is working perfectly, but at clinic this week my kidney blood tests were elevated to moderate (stage 3) kidney failure. Is this common following a transplant and is it something that will improve or continue to be a concern or get worse? P.s. I am diabetic
TJB7
in
British Liver Trust
4 years ago
One more to go 👍💪
I’m planning on doing my graduation run on Sunday morning. I really can’t believe I’ve got this far. Tomorrow is exactly a year since I had my kidney transplant donated by my twin sister. This time last year I couldn’t walk the length of myself and now I’ve run 5k for both of my last runs. The gradual
I’m planning on doing my graduation run on Sunday morning. I really can’t believe I’ve got this far. Tomorrow is exactly a year since I had my kidney transplant donated by my twin sister. This time last year I couldn’t walk the length of myself and now I’ve run 5k for both of my last runs. The gradual
Dootamie
Graduate
in
Couch to 5K
4 years ago
Brain Inflammation
Last week I completed the MIN-102 trial which concluded with an MRI. The next day I received a call from the neurologist saying there are changes from the last MRI (9/19) and what is brain inflammation. She felt it urgent enough to prompt a video visit with me and my neurologist. I got the radiologist
Last week I completed the MIN-102 trial which concluded with an MRI. The next day I received a call from the neurologist saying there are changes from the last MRI (9/19) and what is brain inflammation. She felt it urgent enough to prompt a video visit with me and my neurologist. I got the radiologist
SongStream
in
AMN EASIER
4 years ago
Kidney transplant- COVID
Hi, i am a kidney transplant patient, and have past Diabetes 2, We stay in very remote place in Nepal. Can someone suggest home isolation and treatment options if we catch Covid, as covid is very prevalent in our area.
Hi, i am a kidney transplant patient, and have past Diabetes 2, We stay in very remote place in Nepal. Can someone suggest home isolation and treatment options if we catch Covid, as covid is very prevalent in our area.
rungta
in
Kidney Transplant
4 years ago
Would you recommend the use of sauna for someone with CKD or Kidney transplant? Any good experience?
I have been reading a lot about the benefits of infrared sauna in general about health(cardiovascular, inflammation, cognitive, hormonal). Some studies mention benefits to the kidney function (http://europepmc.org/article/MED/17267744). Before buying one I would like to know if anyone had positive results
I have been reading a lot about the benefits of infrared sauna in general about health(cardiovascular, inflammation, cognitive, hormonal). Some studies mention benefits to the kidney function (http://europepmc.org/article/MED/17267744). Before buying one I would like to know if anyone had positive results
Healthy_Lat
in
Early CKD Support
4 years ago
Kidney Beam. A free exercise platform for kidney peeps!
Hi All, Sharing this with you - all are welcome to join and sign up. It is funded up until November by Kidney Research UK and in collaboration with the renal physio team at Kings College Hospital in London. With a number of renal researchers and renal centres involved, we are really keen to get this
Hi All, Sharing this with you - all are welcome to join and sign up. It is funded up until November by Kidney Research UK and in collaboration with the renal physio team at Kings College Hospital in London. With a number of renal researchers and renal centres involved, we are really keen to get this
WhollyAligned
in
Kidney Transplant Patient Support
4 years ago
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