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Pancreas transplant
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Finally got the Diagnosis!
Hello everyone. I am around here for 2 months now. I must say, it has been a horrible 2 months. Lots of nightmares, unnecessary operations... But today here I am again, writing to you from Copenhagen. I actually moved despite every negative development regarding my disease. I would like to start with
Hello everyone. I am around here for 2 months now. I must say, it has been a horrible 2 months. Lots of nightmares, unnecessary operations... But today here I am again, writing to you from Copenhagen. I actually moved despite every negative development regarding my disease. I would like to start with
tas1kubra
in
Kidney Disease
2 years ago
Covid
Hi can anyone help and share their Covid experience , symptoms /duration and treatment anytime after kidney transplant ? Be much appreciated Thank you
Hi can anyone help and share their Covid experience , symptoms /duration and treatment anytime after kidney transplant ? Be much appreciated Thank you
Taconeo
in
Kidney Transplant Patient Support
2 years ago
Covid after Kidney Transplant
Hi can anyone help and share their Covid experience , symptoms /duration and treatment after kidney transplant ? Be much appreciated Thank you
Hi can anyone help and share their Covid experience , symptoms /duration and treatment after kidney transplant ? Be much appreciated Thank you
Taconeo
in
Kidney Transplant
2 years ago
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Agitation awaiting liver transplant
My husband and I are constantly arguing over the smallest things. He becomes very agitated and verbally abusive. He has compensated cirrhosis and HCC. He is currently awaiting a liver transplant. Our marriage is in tatters.
My husband and I are constantly arguing over the smallest things. He becomes very agitated and verbally abusive. He has compensated cirrhosis and HCC. He is currently awaiting a liver transplant. Our marriage is in tatters.
dimplykidlet
in
British Liver Trust
2 years ago
Visit with new Hem/Onc Dr went well!
Hi Friends, I had my first visit with my new local doctor. He is Associate Head of Stem Cell Transplant Dept with Ochsner in Louisiana. He does not treat any cancers other than blood. He listened and verbalized understanding that my previous Dr’s were not a fit for me. He reviewed my BMB from Vanderbilt
Hi Friends, I had my first visit with my new local doctor. He is Associate Head of Stem Cell Transplant Dept with Ochsner in Louisiana. He does not treat any cancers other than blood. He listened and verbalized understanding that my previous Dr’s were not a fit for me. He reviewed my BMB from Vanderbilt
Wewo01
in
MPN Voice
2 years ago
Liver Transplant Pre / Post op
Just found out I need a liver transplant in two years. Non drinker, liver disease undiagnosed for 20 years but it looks like its finally packing up. Does anyone live in the Cardiff / South Wales area who may have been through this process so I can get a handle on what I've got coming my way. Only found
Just found out I need a liver transplant in two years. Non drinker, liver disease undiagnosed for 20 years but it looks like its finally packing up. Does anyone live in the Cardiff / South Wales area who may have been through this process so I can get a handle on what I've got coming my way. Only found
Chrisjohnsy
in
British Liver Trust
2 years ago
Kidney transplant medication side effects
Hi Everyone... hope you are all off to a great summer. I've been going through testing to see if I can be put on the kidney transplant list. They do SO many tests! Whew! My gfr fluctuates between 11-13 and has gone to this number fairly quickly. After meeting with the pharmacy side of a transplant
Hi Everyone... hope you are all off to a great summer. I've been going through testing to see if I can be put on the kidney transplant list. They do SO many tests! Whew! My gfr fluctuates between 11-13 and has gone to this number fairly quickly. After meeting with the pharmacy side of a transplant
Highgfr
in
Kidney Disease
2 years ago
Ureteral stricture after transplant with no success after attempting stent and ballooning
Hello:) I just had my third kidney transplant in December. I had multiple pre transplant day long meetings to decide the best option for me having a third transplant and it was decided my fiance would donate and we would do paired exchange as a live donor and planned transplant would be for the best
Hello:) I just had my third kidney transplant in December. I had multiple pre transplant day long meetings to decide the best option for me having a third transplant and it was decided my fiance would donate and we would do paired exchange as a live donor and planned transplant would be for the best
Calebzztop
in
Kidney Transplant
2 years ago
Teeth
I've recently read that teeth are looked at prior to a liver transplant is this the case and what happens if your teeth are in bad shape 😬
I've recently read that teeth are looked at prior to a liver transplant is this the case and what happens if your teeth are in bad shape 😬
Lippy42
in
British Liver Trust
2 years ago
Stopping Prednisone
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
peregrin
in
Kidney Transplant
2 years ago
help with drinking 2 to 3 litres of water a day.
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
Kraskie1915
in
CLL Support
2 years ago
ET progression to MF - anxiety issues
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
SRH55
in
MPN Voice
2 years ago
Looking for other mommas!
My son received a kidney transplant in February. Since then he has had such terrible awful behavior, and I am more than burned out. Any other mommas out there with any experience/advice!?
My son received a kidney transplant in February. Since then he has had such terrible awful behavior, and I am more than burned out. Any other mommas out there with any experience/advice!?
Kdown212
in
Kidney Transplant
2 years ago
Prednisolone, can it be down to 3/4 of 5mg?
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Lily2019
in
Kidney Transplant
2 years ago
problem
Hi I was wondering if anyone has had a liver transplant and have problems with there heart .
Hi I was wondering if anyone has had a liver transplant and have problems with there heart .
Petrina_gmfc
in
British Liver Trust
2 years ago
Transplant Waitlist Survey
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
KelliC_NKF
in
Kidney Transplant
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
KelliC_NKF
in
Kidney Disease
2 years ago
Feet pain post kidney transplant
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
Ski573
in
Kidney Transplant
2 years ago
Just when it's now safe to go out, a note of caution.
I first posted this up two years ago as a timely reminder. All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through
I first posted this up two years ago as a timely reminder. All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through
Richard-Allen
in
British Liver Trust
2 years ago
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