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New diagnosis of hf
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Forrest14
in
British Heart Foundation
1 year ago
wound vac post kidney transplant anyone?
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
LeslieK
in
Kidney Transplant
1 year ago
Black Outs and Assessment for st James Leeds Hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Dobielove
in
British Liver Trust
1 year ago
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1st patient enrolled in global Phase 2 trial of daxdilimab for lupus
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Transplant
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Bellarman
in
British Liver Trust
1 year ago
Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
6 month transplant anniversary!!! Whoo hoo
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Jayhawker
in
Kidney Transplant
1 year ago
10 Year Anniversary
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
StormCl0ud
in
Kidney Dialysis
1 year ago
Successfully treated my Multiple Myeloma and now in remission from both MM and PCA
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
swwags
in
Advanced Prostate Cancer
8 months ago
Need a rant
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a liver transplant because the AF complicates things I'm really upset and scared I really don't know what to do. I've got to have
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a liver transplant because the AF complicates things I'm really upset and scared I really don't know what to do. I've got to have
Corrie12
in
AF Association
1 year ago
Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
8 months ago
after effects of kidney transplant
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
asahdev
in
Kidney Transplant
1 year ago
lung transplant
found this on my computer in box today you have probably seen it too but putting it on here hopefully
found this on my computer in box today you have probably seen it too but putting it on here hopefully
Jaybird19
in
Lung Conditions Community Forum
1 year ago
one month post op
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
Rubyrebe
in
British Liver Trust
1 year ago
Lipstickandcrayons
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Lipstickncrayons
in
Kidney Transplant
1 year ago
F4: cirrhosis
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
TrixieMami
in
Living with Fatty Liver and NASH
1 year ago
kidney transplant recipient.
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
ru7318
in
Kidney Transplant
1 year ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
1 year ago
Transplant and BKV Realities
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
Hidden
in
Kidney Transplant
1 year ago
Famous Kidney Transplant People
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
TaffyTwoshoes27
in
Kidney Transplant
1 year ago
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