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I stopped steroids rapidly and all PMR symptoms returned - HELP!
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Megasorearms
in
PMRGCAuk
11 months ago
Osteochondral defect, loose bodies in the knee and Baker's cyst.
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
ijeasike
in
LUPUS UK
11 months ago
Cladribine
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
max011
in
My MSAA Community
5 months ago
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Hope, perhaps?
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
CaffeineCat
in
Endometriosis UK
11 months ago
Pred and painkillers
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Fredddie
in
PMRGCAuk
11 months ago
Webinar: Increased dose of Eylea to extend treatment intervals
A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg
A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg
Carol_MacularSociety
Partner
in
Macular Society
5 months ago
Increased bleeding after first scan…
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
IchigoKeikaku
in
Fertility Network UK
11 months ago
Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
11 months ago
Any practical tools to prevent computer vision syndrome?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
bliinkai
in
Pain Concern
5 months ago
Endo history lesson!!!!
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
valgal76
in
Endometriosis UK
11 months ago
37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
Hidden
in
Functional Neurological Disorder - FND Hope
11 months ago
Recovery time
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Gandalf2
in
Encephalitis International
11 months ago
Ankle Fusion wahey
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
Hidden
in
PMRGCAuk
11 months ago
Do I have PMR?
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
Aqua47
in
PMRGCAuk
6 months ago
hand pain
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
Junny123
in
Gluten Free Guerrillas
11 months ago
post CRR-D procedure
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
honeybubs
in
British Heart Foundation
11 months ago
Journey Ditty
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
cycli
in
PMRGCAuk
11 months ago
Update- any hope for my reconsideration request?zero points for PIP and doesn’t tally with anything I said at interview.
Update: finally finished filling out reconsideration. It’s taken so long and has been making me really anxious. When I got the report from my assessment it seemed to hinge on a paragraph she had copied and pasted for each section stating I had no significant input for pain and mental health. I have provided
Update: finally finished filling out reconsideration. It’s taken so long and has been making me really anxious. When I got the report from my assessment it seemed to hinge on a paragraph she had copied and pasted for each section stating I had no significant input for pain and mental health. I have provided
Brigga
in
Fibromyalgia Action UK
11 months ago
When the drugs don’t work
Where to begin… my poor Mum had her first hip replacement in 2007, but it broke and she had a revision in 2008. Unfortunately she was in more pain than ever, and they were about to write the pain off as psychological but thankfully she got referred to an Orthopaedic Specialist hospital who discovered
Where to begin… my poor Mum had her first hip replacement in 2007, but it broke and she had a revision in 2008. Unfortunately she was in more pain than ever, and they were about to write the pain off as psychological but thankfully she got referred to an Orthopaedic Specialist hospital who discovered
D0n49
in
Arthritis Action
11 months ago
Tramadol versus Buprenorphine Patch.
Just a short post as I’m getting very depressed by constant pain from Severe Spinal Stenosis. I had a Laminectomy which failed (Triple Bypass and Mitral Valve Repair also) now diagnosed with Heart Failure so no “normal” painkillers. Pain Management have advised me to try Tramadol prior to possibly using
Just a short post as I’m getting very depressed by constant pain from Severe Spinal Stenosis. I had a Laminectomy which failed (Triple Bypass and Mitral Valve Repair also) now diagnosed with Heart Failure so no “normal” painkillers. Pain Management have advised me to try Tramadol prior to possibly using
Davewm
in
Pain Concern
11 months ago
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