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More surgery....
So I finally got to see the endometriosis specialist again after screaming and shouting yet again, they told me they will finally take out my overies away and put me on prostap injections up until this surgery I really hope it helps, this is my last resort it's been years of pain pills injections and
So I finally got to see the endometriosis specialist again after screaming and shouting yet again, they told me they will finally take out my overies away and put me on prostap injections up until this surgery I really hope it helps, this is my last resort it's been years of pain pills injections and
Bubblepoppy
in
Endometriosis UK
1 year ago
Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
11 months ago
Pattern Glare
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Nackapan
in
Pernicious Anaemia Society
11 months ago
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Bit of a Vent
(Warning: I mention infertility a bit) Hi everyone, My suspected endometriosis has been getting worse and worse, especially after I’ve been put on the implant. I had to go to A&E for the doctor to tell me he didn’t even think morphine would help with my pain… I’ve had to take so many sick days from
(Warning: I mention infertility a bit) Hi everyone, My suspected endometriosis has been getting worse and worse, especially after I’ve been put on the implant. I had to go to A&E for the doctor to tell me he didn’t even think morphine would help with my pain… I’ve had to take so many sick days from
VioletCoffee
in
Endometriosis UK
1 year ago
Nerve pain, constant over 3 weeks
I believe I have posted my history with regard to this recent episode of severe pain, over 3 weeks now, every day, front thigh, groin, coming from nerve pain, L2 disc, nerve impingement on nerver root, pain in back, but also redirecting to front thigh, has brought me to tears, no painkillers have worked
I believe I have posted my history with regard to this recent episode of severe pain, over 3 weeks now, every day, front thigh, groin, coming from nerve pain, L2 disc, nerve impingement on nerver root, pain in back, but also redirecting to front thigh, has brought me to tears, no painkillers have worked
arvine
in
Pain Concern
1 year ago
curious!
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Curry_girl
in
PMRGCAuk
11 months ago
Rant time
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Gulfstream_Maggie
in
Fibromyalgia Action UK
11 months ago
tapering, on methotrexate, additional painkillers
I am tapering down prednisone, under specialist advise, at 6mg for one month, alternate 5mg/6mg, then 5 mg over a three month period. I still have pain and have told him so but he wants to try this tapering regime. I’m also on weekly 10mg of methotrexate (on this for three months). I have to trust
I am tapering down prednisone, under specialist advise, at 6mg for one month, alternate 5mg/6mg, then 5 mg over a three month period. I still have pain and have told him so but he wants to try this tapering regime. I’m also on weekly 10mg of methotrexate (on this for three months). I have to trust
Kathryn1818
in
PMRGCAuk
1 year ago
safe pain killers
Good morning, Just a quick question, I have terrible neck pain , I really need to take something as I have an echocardiogram this afternoon and really want to be more comfortable, can I ask if any pain killers are safe with cirrohsis (I know I have not been officially diagnosed, but due to scans and
Good morning, Just a quick question, I have terrible neck pain , I really need to take something as I have an echocardiogram this afternoon and really want to be more comfortable, can I ask if any pain killers are safe with cirrohsis (I know I have not been officially diagnosed, but due to scans and
Sophia1968
in
British Liver Trust
1 year ago
Any coming back from this?
Here’s a summary of my father’s situation since he was diagnosed last year in May 2022. I used all of his clinical reports to create this, but you can see my previous posts as well. He’s only 60 years old today - 59 at the time of diagnosis. May 2022: Diagnosed with high burden prostate cancer (Gleason
Here’s a summary of my father’s situation since he was diagnosed last year in May 2022. I used all of his clinical reports to create this, but you can see my previous posts as well. He’s only 60 years old today - 59 at the time of diagnosis. May 2022: Diagnosed with high burden prostate cancer (Gleason
Worriedson9
in
Advanced Prostate Cancer
1 year ago
Terrified I have PBC
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
Kelpop1
in
PBC Foundation
11 months ago
2 years post-thyroidectomy - Struggling with Tirosint and finding the right dose
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Sophie4506
in
Thyroid UK
11 months ago
Hydroxychloroquine
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
Ex is going to the Netherlands next week. I'm stuck in what help i should get. I have dissosiated and headache
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Against_the_current
in
Anxiety and Depression Support
3 days ago
Possible endo/rejected referrals
Hi everyone. I'm new here but wondered whether anyone has had a similar experience to me. A few years ago I was on the contraceptive pill, when I noticed that my periods were getting later and later. I used to get the normal bleed during the seven day break of not taking the pill, but then I started
Hi everyone. I'm new here but wondered whether anyone has had a similar experience to me. A few years ago I was on the contraceptive pill, when I noticed that my periods were getting later and later. I used to get the normal bleed during the seven day break of not taking the pill, but then I started
CitizenErased
in
Endometriosis UK
1 year ago
Serious Dry Eyes
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
MaryAZ
in
My MSAA Community
11 months ago
advise required
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
Lucydog
in
Glaucoma UK
11 months ago
Ganfort Preservative Free Eye Drop Side Effects
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
RonOng5267
in
Glaucoma UK
11 months ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
9 months ago
EMDR THERAPY
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
kanzler1987
in
Anxiety and Depression Support
1 month ago
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