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Protecting our Manhood
OK, I'm going to be open and honest and looking for the same from my fellow compatriots. From what I know, ADT, once it gets going, will physically affect our family jewels. Shrinkage is one of the things that is likely to happen. What is the best way to try and reduce these effects? I see that
OK, I'm going to be open and honest and looking for the same from my fellow compatriots. From what I know, ADT, once it gets going, will physically affect our family jewels. Shrinkage is one of the things that is likely to happen. What is the best way to try and reduce these effects? I see that
CJ1958
in
Prostate Cancer Network
7 months ago
why docs don’t want to prescribe opioids for RLS….😔
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
Kakally
in
Restless Legs Syndrome
11 months ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
7 months ago
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Slow colonic transit
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
Riccar24
in
IBS Network
11 months ago
Operation
Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I am now down to 5mg. I saw my Rumy a few weeks ago who did bloods ect and seems to think my PMR is over! However I’m due to have a hip replacement on the 5th December which I’m so happy about as I’ve been in agony for a long
Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I am now down to 5mg. I saw my Rumy a few weeks ago who did bloods ect and seems to think my PMR is over! However I’m due to have a hip replacement on the 5th December which I’m so happy about as I’ve been in agony for a long
Holycow2
in
PMRGCAuk
9 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
7 months ago
Zoladex Injection
Hi 😊 Please could anyone share their experiences with the zoladex injection? My gynae has suggested going on it for 6 months with the HRT pill, to help with endo symptoms. I know there can be a lot of bad side affects to taking this and I’ve read about a few bad experiences already, but I’d anyone
Hi 😊 Please could anyone share their experiences with the zoladex injection? My gynae has suggested going on it for 6 months with the HRT pill, to help with endo symptoms. I know there can be a lot of bad side affects to taking this and I’ve read about a few bad experiences already, but I’d anyone
Bread95
in
Endometriosis UK
7 months ago
Testosterone Recovery Time after 1 Year of ADT?
I am ending ADT at 1 year. As of today my Testosterone is <0.01. It was 4.3 mg/mL before my first shot. Is there any data on how long it will take a 61 YO to start to see some T come back? Anyone here of a similar age and duration have any words or wisdom on what to expect? My next test will
I am ending ADT at 1 year. As of today my Testosterone is <0.01. It was 4.3 mg/mL before my first shot. Is there any data on how long it will take a 61 YO to start to see some T come back? Anyone here of a similar age and duration have any words or wisdom on what to expect? My next test will
OldVTGuy
in
Prostate Cancer Network
7 months ago
Rising PSA -
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
MPCSUX
in
Advanced Prostate Cancer
7 months ago
sudden drop in thyroid results!!
I recently had some health concerns which are still being investigated, in the meantime a new symptom of swollen face has occurred and I seem to of gained all the weight I just lost. I got some thyroid results today and was shocked to see how they have decreased when I usually have a steady result.
I recently had some health concerns which are still being investigated, in the meantime a new symptom of swollen face has occurred and I seem to of gained all the weight I just lost. I got some thyroid results today and was shocked to see how they have decreased when I usually have a steady result.
Pinky3
in
Thyroid UK
7 months ago
calprotectin levels
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Lo181
in
Bowel Disease Support
9 months ago
Firmagon seems to have stopped suppressing testosterone
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
johnscats
in
Advanced Prostate Cancer
7 months ago
PSA Gone Up
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
toyman79912
in
Advanced Prostate Cancer
7 months ago
What if mri is clear?
Hi, I'm 26 and have always had bad periods as a teenager. Poor health in general but march of this year I started experiencing the most excruciating pain along with weakness, dizziness, nausea, spotting ect. I've been in and out of the hospital all year long with multiple gp appointments and multiple
Hi, I'm 26 and have always had bad periods as a teenager. Poor health in general but march of this year I started experiencing the most excruciating pain along with weakness, dizziness, nausea, spotting ect. I've been in and out of the hospital all year long with multiple gp appointments and multiple
Lavenderpetal
in
Endometriosis UK
9 months ago
PSA holding low after all!!
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
Paulo1968
in
Advanced Prostate Cancer
7 months ago
3 month PSA post RT/ADT, low enough?
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
sptill72
in
Prostate Cancer Network
7 months ago
Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
7 months ago
My Oligometastatic PCa Journey Continues...coming up on year 9!
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
JamesAtlanta
in
Advanced Prostate Cancer
7 months ago
Lupron Question.
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
Professorgary
in
Advanced Prostate Cancer
7 months ago
Clavicular joint pain
Hello you supporting People. I am on Lupron since seven months. I try to be serious about rather heavy weightlifting. In the beginning of my ADT journey my achilles tendons were sore. Then pain moved to anterior knees and lately to my all four clavicular joints and refering to my neck.This is really
Hello you supporting People. I am on Lupron since seven months. I try to be serious about rather heavy weightlifting. In the beginning of my ADT journey my achilles tendons were sore. Then pain moved to anterior knees and lately to my all four clavicular joints and refering to my neck.This is really
Gs-rider
in
Advanced Prostate Cancer
7 months ago
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