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How do I manage?
Hi all I first experienced tinnitus in 2020/21. My experience is it only affects my right ear, and can only describe it as sounding high pitched and in morse code. It is not a constant sound, but as I say, is a long beep sound followed by a few short beeps all day long. I had my ears cleaned of earwax
Hi all I first experienced tinnitus in 2020/21. My experience is it only affects my right ear, and can only describe it as sounding high pitched and in morse code. It is not a constant sound, but as I say, is a long beep sound followed by a few short beeps all day long. I had my ears cleaned of earwax
Indiarose00
in
Tinnitus UK
1 year ago
checking T constantly
My tinnitus is bilateral and 24/7. Just started CBT & therapist has set me the task of not “checking” my T by putting my fingers in my ears. I’m struggling not to do this - but unfortunately as I know my T is persistent - it’s a battle - because when I yawn of clench my jaw tightly - I know the T is
My tinnitus is bilateral and 24/7. Just started CBT & therapist has set me the task of not “checking” my T by putting my fingers in my ears. I’m struggling not to do this - but unfortunately as I know my T is persistent - it’s a battle - because when I yawn of clench my jaw tightly - I know the T is
Sassyjax1
in
Tinnitus UK
1 year ago
Hearing Aids?
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic neuroma. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated. Mum is sure that she cannot have a hearing aid due to the surgery but I'm wondering if technology has advanced and if
Hi, My mum had brain surgery back in 1991 for a schwannoma/acoustic neuroma. Her hearing was affected but as she's got older her hearing in that ear has significantly deteriorated. Mum is sure that she cannot have a hearing aid due to the surgery but I'm wondering if technology has advanced and if
Cocacolla
in
Acoustic Neuroma Support
1 year ago
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Inflammatory Pain and T
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
I have had T for over two years now following an attack of vertigo with varying diagnoses of labyrinthitis, bppv or vestibular neuritis, none of which have ever been confirmed.. and after all this time I feel stuck with no sign of reaching habituation.. I had months of complaining of a dullness in my
Shozza1
in
Tinnitus UK
1 year ago
Head Pains
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Pusph
in
PMRGCAuk
1 year ago
Tinnitus and hearing loss in one ear - not sure what to do next
Hi, Looking for a bit more information on my own case of tinnitus and hearing loss - and to see if anyone has had any similar experiences. I'm 37 btw - so unlikely to be related to age. Basically this is what's happened below: April 2023 - ear wax blockage in both ears - so used olive oil drops (as
Hi, Looking for a bit more information on my own case of tinnitus and hearing loss - and to see if anyone has had any similar experiences. I'm 37 btw - so unlikely to be related to age. Basically this is what's happened below: April 2023 - ear wax blockage in both ears - so used olive oil drops (as
DoubleAdvantage
in
Tinnitus UK
1 year ago
Recovering from Tinnitus Spike
Dear Memembers Ive been suffering with Tinnitus after getting Eustachian Tube Dysfunction last October (22) and got first symptoms in November of that year. However my ETD has got much better still might need Ballon dilation. It was infected in my right ear! However seen Audiologists and ENT numerous
Dear Memembers Ive been suffering with Tinnitus after getting Eustachian Tube Dysfunction last October (22) and got first symptoms in November of that year. However my ETD has got much better still might need Ballon dilation. It was infected in my right ear! However seen Audiologists and ENT numerous
WickedMan
in
Tinnitus UK
1 year ago
20 July 2023 Every little bit helps
G'day my ms family. How are YOU today? No, how are YOU really? I know I do not tell my wife every little thing and I know it works the same for her. There is a little apprehension always in the back of your head deep down where people do not see. This is normal. Do not panic. We all
G'day my ms family. How are YOU today? No, how are YOU really? I know I do not tell my wife every little thing and I know it works the same for her. There is a little apprehension always in the back of your head deep down where people do not see. This is normal. Do not panic. We all
RoyceNewton
in
My MSAA Community
1 year ago
Hello acoustic shock
Hello everyone, I was shopping online and bought 3 personal alarms for £10 they are advertised for children to take to school by attaching them to their schoolbag and the elderly to raise the alarm if they fall out of a chair for example. So I bought these alarms and they arrived on the 24th June and
Hello everyone, I was shopping online and bought 3 personal alarms for £10 they are advertised for children to take to school by attaching them to their schoolbag and the elderly to raise the alarm if they fall out of a chair for example. So I bought these alarms and they arrived on the 24th June and
Laura878787
in
Tinnitus UK
1 year ago
Pulsatile tinnitus - some success
Hey I’ve lived with Pulsatile Tinnitus for a few years now. Just recently over the last 6 months or so it was getting increasingly worse. To the point I had a full on emotional breakdown last week I couldn’t fathom having to live another hour like this. I started researching self help as I’m awaiting
Hey I’ve lived with Pulsatile Tinnitus for a few years now. Just recently over the last 6 months or so it was getting increasingly worse. To the point I had a full on emotional breakdown last week I couldn’t fathom having to live another hour like this. I started researching self help as I’m awaiting
PTNewbie
in
Tinnitus UK
1 year ago
New Onset Tinnitus
Hello Everyone I've been suffering from tinnitus for nearly 6 months. It started with a low level tea kettle type sound in one ear which I could tolerate. My hearing is absolutely fine and they are sending me for an MRI to check whether anything physical has caused it. The wait for the MRI has been
Hello Everyone I've been suffering from tinnitus for nearly 6 months. It started with a low level tea kettle type sound in one ear which I could tolerate. My hearing is absolutely fine and they are sending me for an MRI to check whether anything physical has caused it. The wait for the MRI has been
Hidden
in
Tinnitus UK
1 year ago
Bppv episode and pd symptoms
I’ve had pddv vertigo started over ten years ago with episodes every few years. It’s not a serious diagnosis. Crystals in an ear get dislodged causing the room to spin. I received treatment for it but now I have balance problems and my pd symptoms are worse. My MDs expects gradual improvement but for
I’ve had pddv vertigo started over ten years ago with episodes every few years. It’s not a serious diagnosis. Crystals in an ear get dislodged causing the room to spin. I received treatment for it but now I have balance problems and my pd symptoms are worse. My MDs expects gradual improvement but for
Lionore
in
Cure Parkinson's
1 year ago
unilateral tinnitus
hi there I’ve been experiencing a constant vibrating feeling in my right ear. It’s really loud when I’m lying in bed and easier to deal with in the day time. My ear feels blocked and muffled. I have minor ear pain (more like the odd shooting pain) and itchy ears. Can anyone relate?
hi there I’ve been experiencing a constant vibrating feeling in my right ear. It’s really loud when I’m lying in bed and easier to deal with in the day time. My ear feels blocked and muffled. I have minor ear pain (more like the odd shooting pain) and itchy ears. Can anyone relate?
Hornsey123
in
Tinnitus UK
1 year ago
endo coming back after a year
Has anyone ever had 2 laparoscopies for removal of endo twice within a year/18 months? I’m due another surgery exactly a year on due to symptoms returning but I’m nervous
Has anyone ever had 2 laparoscopies for removal of endo twice within a year/18 months? I’m due another surgery exactly a year on due to symptoms returning but I’m nervous
5M9H
in
Endometriosis UK
1 year ago
Itchy ear
Hi all I have too much itchy in my left ear. Which one is a big hole inside. I can’t use any ears drops because of the hole .antihistamine ointment doesn’t work. recently dr gave me fexofenadine hydrochloride tablets 120mg . it’s not work. dr referred me to ENT again but I don’t know when I get appointment
Hi all I have too much itchy in my left ear. Which one is a big hole inside. I can’t use any ears drops because of the hole .antihistamine ointment doesn’t work. recently dr gave me fexofenadine hydrochloride tablets 120mg . it’s not work. dr referred me to ENT again but I don’t know when I get appointment
sun_1234
in
Tinnitus UK
1 year ago
London based audiologists
I am new to this group. I recently had a sudden onset of Tinnitus around 4 weeks ago. A high pitched tone that is constantly present, and as like many others, it is worse in the nights and mornings. Getting out into the drone of traffic etc helps mask it but it returns as soon as I am in a quiet space
I am new to this group. I recently had a sudden onset of Tinnitus around 4 weeks ago. A high pitched tone that is constantly present, and as like many others, it is worse in the nights and mornings. Getting out into the drone of traffic etc helps mask it but it returns as soon as I am in a quiet space
SoundCollector
in
Tinnitus UK
1 year ago
new GCA patient
61 year old Caucasian female live inChicago Metro. Sudden onset on severe headaches , jaw pain , Ear pain , neck pain in April’23. Diagnosed with GCA after temporal biopsy. Started on 60 mg of pred for 6 weeks. Now on 35 mg with weekly Acterma shot. Feel good during day- regularly exercise , stay
61 year old Caucasian female live inChicago Metro. Sudden onset on severe headaches , jaw pain , Ear pain , neck pain in April’23. Diagnosed with GCA after temporal biopsy. Started on 60 mg of pred for 6 weeks. Now on 35 mg with weekly Acterma shot. Feel good during day- regularly exercise , stay
Birdfriend
in
PMRGCAuk
1 year ago
Bowel inflammation - any link to PMR/GCA?
I have had problems with diarrhoea for several years now. I have had bad reactions in the past to sertraline (antidepressant) and amoxillin, with constant diarrhoea for several months. However my calprotectin levels (measuring gut inflammation) were normal. Since diagnosis I have been getting frequent
I have had problems with diarrhoea for several years now. I have had bad reactions in the past to sertraline (antidepressant) and amoxillin, with constant diarrhoea for several months. However my calprotectin levels (measuring gut inflammation) were normal. Since diagnosis I have been getting frequent
Broseley
in
PMRGCAuk
8 months ago
How I recover from tinnitus spikes
My tinnitus advice - I have tinnitus in both ears and been through extended periods of severe tinnitus, now my left ear is almost inaudible and the right is mild/ moderate (audionotch tuner on 9550Hz at 1% volume and computer volume at 26 except the tinnitus is not as pronounced or as piercing as the
My tinnitus advice - I have tinnitus in both ears and been through extended periods of severe tinnitus, now my left ear is almost inaudible and the right is mild/ moderate (audionotch tuner on 9550Hz at 1% volume and computer volume at 26 except the tinnitus is not as pronounced or as piercing as the
Kipp3
in
Tinnitus UK
1 year ago
Could this be PMR.?
I haven’t posted any thing for months but lately I’ve been feeling quite grim. My GCA after about 3 years seems to be in remission and all seemed relatively well except for what my (sadly , retired) Gp described as my ‘knackered back’. Now I have pain everywhere- hips, neck, elbows and ankles. Even
I haven’t posted any thing for months but lately I’ve been feeling quite grim. My GCA after about 3 years seems to be in remission and all seemed relatively well except for what my (sadly , retired) Gp described as my ‘knackered back’. Now I have pain everywhere- hips, neck, elbows and ankles. Even
Jane-s
in
PMRGCAuk
1 year ago
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