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Orthostatic hypotension
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A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
CLLerinOz
Administrator
in
CLL Support
2 years ago
Suitable drugs for hypertension
I am due to see my GP on Wednesday and I know we will be having a conversation about my raised blood pressure (in the region of 159/70). I already know calcium channel blockers are not good for RLS and I cannot take beta blockers which make my heart go much too slow. Could any of you good folk give
I am due to see my GP on Wednesday and I know we will be having a conversation about my raised blood pressure (in the region of 159/70). I already know calcium channel blockers are not good for RLS and I cannot take beta blockers which make my heart go much too slow. Could any of you good folk give
Jelbea
in
Restless Legs Syndrome
2 years ago
dislocated shoulder and rls
I recently dislocated my shoulder. Since that happened, i noticed my rls got worse and now i get it during the day. No new meds. Could the dislocation have anything to do with this?
I recently dislocated my shoulder. Since that happened, i noticed my rls got worse and now i get it during the day. No new meds. Could the dislocation have anything to do with this?
lorri214
in
Restless Legs Syndrome
2 years ago
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Solgar Hawthorn Berry Capsules ? Has anybody taken these ?
Does anybody take any of these capsules? I would really like to hear from people, as to how the capsules helped them and how they got on with them ? I recently started to take the Solgar 484mg Berry Powder . They stopped my symptoms immediately. Ie:- Palpitations, (mostly in the night), occasional fast
Does anybody take any of these capsules? I would really like to hear from people, as to how the capsules helped them and how they got on with them ? I recently started to take the Solgar 484mg Berry Powder . They stopped my symptoms immediately. Ie:- Palpitations, (mostly in the night), occasional fast
C70rol
in
Thyroid UK
2 years ago
My Neuromodulation Neurorehab Stack.
I contracted Covid that month and my PD symptoms went crazy, severe tremor all over my body,
orthostatic
hypotension
passing out, I couldn’t walk more than a few steps. I had to stop working and was essentially bed ridden. I wanted to share the things that are helping me get my life back.
I contracted Covid that month and my PD symptoms went crazy, severe tremor all over my body,
orthostatic
hypotension
passing out, I couldn’t walk more than a few steps. I had to stop working and was essentially bed ridden. I wanted to share the things that are helping me get my life back.
House2
in
Cure Parkinson's
2 years ago
elevated BP in 26 year old male
my son recently had an appointment with his gastroenterologist. While there his BP was taken with a wrist BP machine his results were 151/90.. he was alarmed … Dr said nothing…. He was at this office a month ago and his BP was 135/83…. Dr said nothing. He is concerned… he is normal weight, exercises
my son recently had an appointment with his gastroenterologist. While there his BP was taken with a wrist BP machine his results were 151/90.. he was alarmed … Dr said nothing…. He was at this office a month ago and his BP was 135/83…. Dr said nothing. He is concerned… he is normal weight, exercises
Run333
in
High Blood Pressure Support
2 years ago
just wondering
just wondering If Cirrhosis secondary to NASH with portal hypertension is de compensated or compensated I understand that varices and Ascites are normally present with de compensated but does having the portal hypertension make a difference ?
just wondering If Cirrhosis secondary to NASH with portal hypertension is de compensated or compensated I understand that varices and Ascites are normally present with de compensated but does having the portal hypertension make a difference ?
Liver007123
in
British Liver Trust
2 years ago
Etoricoxib?
Finally got to see rheumatologist on 8 Dec for the urgent appointment requested by my GP in June (!) He took a detailed history and did a thorough examination (I didn’t realize how much everything was hurting until he prodded all the muscles round my joints - been quite sore since.) His conclusion
Finally got to see rheumatologist on 8 Dec for the urgent appointment requested by my GP in June (!) He took a detailed history and did a thorough examination (I didn’t realize how much everything was hurting until he prodded all the muscles round my joints - been quite sore since.) His conclusion
Lyra42
in
PMRGCAuk
2 years ago
All regular use sublingual opioid medications etc how to protect your teeth.
REGULAR use of sublingual medications, from opioids to Valium etc I break mine into tiny pin head size pieces with a pill cutter. I know 200 mcg Temgesic or 2 mg of Buprenorphine looks very small, however I have followed this process for over 3 years now. - Reasons - Absorption in seconds - Better
REGULAR use of sublingual medications, from opioids to Valium etc I break mine into tiny pin head size pieces with a pill cutter. I know 200 mcg Temgesic or 2 mg of Buprenorphine looks very small, however I have followed this process for over 3 years now. - Reasons - Absorption in seconds - Better
Shumbah
in
Restless Legs Syndrome
2 years ago
Valium alternatives
So while in hospital for my barrage of tests etc I was taking high doses of slow K and slow Mag morning and night (magnesium and potassium) and Thiamine (high dose in the morning) and Valium in the morning and at night. The supplements I’ll get a clearer picture of from my nephrologist that originally
So while in hospital for my barrage of tests etc I was taking high doses of slow K and slow Mag morning and night (magnesium and potassium) and Thiamine (high dose in the morning) and Valium in the morning and at night. The supplements I’ll get a clearer picture of from my nephrologist that originally
JHvanN
in
British Liver Trust
2 years ago
New England Journal of Medicine tweets video about implanted spinal neurostimulator for MSA to treat orthostatic hypotension
"Patients with multiple-system atrophy often have debilitating
orthostatic
hypotension
. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?
"Patients with multiple-system atrophy often have debilitating
orthostatic
hypotension
. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?
Rhyothemis
in
Multiple System Atrophy Trust
2 years ago
losartan potassium 50mg
morning everyone, i went to the doctors aweek ago as i felt dilight headed and dizzy and felt palatations the dr said do a bp chart for 4 weeks and take these this medication . losartan 50mg . im doing the chart on my bp . but iv not taken the meditaction as yet as i dont think its blood preasue
morning everyone, i went to the doctors aweek ago as i felt dilight headed and dizzy and felt palatations the dr said do a bp chart for 4 weeks and take these this medication . losartan 50mg . im doing the chart on my bp . but iv not taken the meditaction as yet as i dont think its blood preasue
Mrshappyme
in
High Blood Pressure Support
2 years ago
Blood pressure post vaccine
Hi I don't know if this is related or just coincidence but has anyone noticed a rise in BP after covid vaccination? I had my 5th one on Saturday and BP raised. I normally have quite good BP.
Hi I don't know if this is related or just coincidence but has anyone noticed a rise in BP after covid vaccination? I had my 5th one on Saturday and BP raised. I normally have quite good BP.
Aztec632
in
British Liver Trust
2 years ago
Hello
Just got back out of the psychiatric hospital for the 3rd time in 2 years. Take 4mg ropinorole at night. Had RLS since the age of 12, I am 46. I am new to this forum but have been a member of the old Nightwalker board in the early 2000's . Don't know if still exists. Weaning down again, but doing
Just got back out of the psychiatric hospital for the 3rd time in 2 years. Take 4mg ropinorole at night. Had RLS since the age of 12, I am 46. I am new to this forum but have been a member of the old Nightwalker board in the early 2000's . Don't know if still exists. Weaning down again, but doing
discgolfrules
in
Restless Legs Syndrome
2 years ago
Newly Diagnosed MSA
He has had REM sleep disorder for nearly 20 years (it is less of a problem now), and many autonomic issues but his
orthostatic
hypotension
(severe with supine hypertension and standing hypotension) is what got us to the MDS.
He has had REM sleep disorder for nearly 20 years (it is less of a problem now), and many autonomic issues but his
orthostatic
hypotension
(severe with supine hypertension and standing hypotension) is what got us to the MDS.
Ruffner
in
Multiple System Atrophy Trust
2 years ago
Cisplatin based chemotherapy and neck irradiation for cancer has caused Parkinsonism/MSA symptoms in my husband and no diagnosis yet. Help.
Now, he struggles with severe
orthostatic
hypotension
; dizziness when standing up and labile blood pressure when sleeping. It’s hard to determine why his swallowing is getting worse, even more so than from his surgeries which interfered with his swallowing mechanism.
Now, he struggles with severe
orthostatic
hypotension
; dizziness when standing up and labile blood pressure when sleeping. It’s hard to determine why his swallowing is getting worse, even more so than from his surgeries which interfered with his swallowing mechanism.
Jillian100
in
Multiple System Atrophy Trust
2 years ago
Not losing weight - help!!
Hello All, I started exercising about 1 month ago. Mostly weights but have now started adding cardio. I haven’t even lost 1lb in weight. I’ve lost about 2 inches off my waist. My shoulders, arms & legs are clearly taking on shape…I just haven’t lost any weight. I am diabetic & take metformin & gliclazide
Hello All, I started exercising about 1 month ago. Mostly weights but have now started adding cardio. I haven’t even lost 1lb in weight. I’ve lost about 2 inches off my waist. My shoulders, arms & legs are clearly taking on shape…I just haven’t lost any weight. I am diabetic & take metformin & gliclazide
Rickyg83
in
Weight Loss Support
2 years ago
High blood pressure
I am a 45 year old woman. I discovered I had high BP when I had to go to hospital for heavy bleeding. It read 230/180 which was a surprise to me, actually I was very afraid. Doctor prescribed losartan 50mg at first then 100mg. Ally bloods came back normal.It has come down to a better reading of 140
I am a 45 year old woman. I discovered I had high BP when I had to go to hospital for heavy bleeding. It read 230/180 which was a surprise to me, actually I was very afraid. Doctor prescribed losartan 50mg at first then 100mg. Ally bloods came back normal.It has come down to a better reading of 140
Tiffan-future123
in
High Blood Pressure Support
2 years ago
Happy Easter all 😊 any info on orthostatic hypotension out there please
Morning, it’s a beautiful day here in Bristol and I hope you are all having a good day 😊 Just had a letter from NHS that says I have
Orthostatic
hypotension
with runs of supraventricular tachycardia, I know I walk like a drunken sailor sometimes and my heart beats crazy ……..but any imput out there because
Morning, it’s a beautiful day here in Bristol and I hope you are all having a good day 😊 Just had a letter from NHS that says I have
Orthostatic
hypotension
with runs of supraventricular tachycardia, I know I walk like a drunken sailor sometimes and my heart beats crazy ……..but any imput out there because
Hazel1010
in
AF Association
2 years ago
portal hypertension.
Could anyone tell me what stage liver disease I'm at to have portal hypertension & gastric & oesophagus varices. Thank you.
Could anyone tell me what stage liver disease I'm at to have portal hypertension & gastric & oesophagus varices. Thank you.
Chichi58
in
British Liver Trust
2 years ago
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