Newly Diagnosed MSA

[Ruffner]

My husband has been dx by a MDS with probable MSA about a year ago. He is 78. He has had REM sleep disorder for nearly 20 years (it is less of a problem now), and many autonomic issues but his orthostatic hypotension (severe with supine hypertension and standing hypotension) is what got us to the MDS. After many tests to rule out other possibilities and a positive DatScan, he was given his diagnosis of MSA-P. I would like to hear from other people who have been dx with MSA-P and are in early stage. I'm still in denial, hoping it is just Parkinson's disease as I have been diagnosed with PD for 11 years now and it is a manageable disease.

Thanks for listening. EM

[Hidden]

I know its difficult. I went through what i can only describe as a grieving. Denial is just part of that process. The MSA Trust is a good starting point. They have good support and information that will help you come to terms with the diagnosis. What you are feeling ok remember that. Big hugs Sharon x