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Fear for my brother
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
Nibblet
in
Lung Conditions Community Forum
6 years ago
Single lung transplant
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
bigjo
in
Lung Conditions Community Forum
6 years ago
4 Months Post Kidney Transplant
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
charlen24
in
Kidney Transplant Patient Support
6 years ago
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O-CHOP
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
kstan8
in
Non Hodgkin's Lymphoma Friends
6 years ago
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
C3G - Knowing the Signs and Symptoms
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
TWO TREES AT CHRISTMAS (A CHRISTMAS WISH)
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
lupusinflight
in
LUPUS UK
6 years ago
Consultation at Stanford
So today has been somewhat emotional. Met with Doctor Mooney and went over my health history. He suggests I advance forward with testing and qualifications for double lung transplant as per my portfolio of lung information suggests. He wants me back within a week or so, as soon as insurance gives authorization
So today has been somewhat emotional. Met with Doctor Mooney and went over my health history. He suggests I advance forward with testing and qualifications for double lung transplant as per my portfolio of lung information suggests. He wants me back within a week or so, as soon as insurance gives authorization
Rhonda2121
in
Lung Conditions Community Forum
6 years ago
Heart transplant information for a foreiner in UK
HI my cousin is 38 years old from Honduras .Sshe really needs a heart trasplant but there is not an option to do this in Honduras. She was operated when she was a baby in USA for a congenital heart problem . Now we are desperate for her to be seen and somehow see if she can get into a transplant list
HI my cousin is 38 years old from Honduras .Sshe really needs a heart trasplant but there is not an option to do this in Honduras. She was operated when she was a baby in USA for a congenital heart problem . Now we are desperate for her to be seen and somehow see if she can get into a transplant list
Kleb68
in
British Heart Foundation
6 years ago
Stem cell transplant appointment for post PV MF
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
tracey13
in
MPN Voice
6 years ago
Lindar1961
Morning everyone! I don’t post much but wanted to share that my husband is going through two days of testing to see if he is strong enough for a liver transplant. We are hoping that they don’t find cancer outside of the liver so we can get on the list. He has NASH. We are in the United States.
Morning everyone! I don’t post much but wanted to share that my husband is going through two days of testing to see if he is strong enough for a liver transplant. We are hoping that they don’t find cancer outside of the liver so we can get on the list. He has NASH. We are in the United States.
Lindar1961
in
British Liver Trust
6 years ago
Life insurance for heart transplantee
I have had a heart transplant and my term life insurance has run out. Has any heart transplanted patient been able to get term life insurance. If so could you give me some names of sympathetic insurers? Regards Grovehall
I have had a heart transplant and my term life insurance has run out. Has any heart transplanted patient been able to get term life insurance. If so could you give me some names of sympathetic insurers? Regards Grovehall
Grovehall
in
British Heart Foundation
6 years ago
Can a Canadian get on the list for heart transplant in the U.K.?
My sister is dying in Canada and needs a heart transplant. She is 60 and just had her heart become an issue and suddenly has no time left in her life. If she dies now it would truly be tragic. She's never even left Canada. At least she would see British Soil before she's gone. Please can anyone help
My sister is dying in Canada and needs a heart transplant. She is 60 and just had her heart become an issue and suddenly has no time left in her life. If she dies now it would truly be tragic. She's never even left Canada. At least she would see British Soil before she's gone. Please can anyone help
Debbie-1
in
British Heart Foundation
6 years ago
Lung transplant
Lung transplant Hi guys and gals my name is Dawn I m with harefield hospital and hoping to get put on lung transplant list I just waiting for the angio they said everything else it ok although I’m high risk cos of previous illnesses. Would welcome any advice I’m doing all the training they told me at
Lung transplant Hi guys and gals my name is Dawn I m with harefield hospital and hoping to get put on lung transplant list I just waiting for the angio they said everything else it ok although I’m high risk cos of previous illnesses. Would welcome any advice I’m doing all the training they told me at
Survivor23
in
LUPUS UK
6 years ago
Undiagnose d liver failure lead to probable endometrical canser
Hello. It's awfull. It is like nightmare. I can't believe that all this is happening to me. I have already been sick for 8 months . At the end of march I took antibiotics for 7 days. One week later I stopped taking them I developed acute liver failure. My symtoms were intense pain, nausea, sharp weakness
Hello. It's awfull. It is like nightmare. I can't believe that all this is happening to me. I have already been sick for 8 months . At the end of march I took antibiotics for 7 days. One week later I stopped taking them I developed acute liver failure. My symtoms were intense pain, nausea, sharp weakness
svetla-na
in
British Liver Trust
6 years ago
Sickle Cell News
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
sicklecellnews
in
Sickle Cell Society
6 years ago
Noncompaction cardiomyopathy
Have just found this forum and am so pleased to read all the positive comments regarding this condition. I was diagnosed a year ago and understand my condition of noncompaction is very rare and was just wondering if anyone else has this diagnoses.I was critical I'll this time last year and my only chance
Have just found this forum and am so pleased to read all the positive comments regarding this condition. I was diagnosed a year ago and understand my condition of noncompaction is very rare and was just wondering if anyone else has this diagnoses.I was critical I'll this time last year and my only chance
Colsey
in
British Heart Foundation
6 years ago
Some questions answered 😌
It has been a really long time that I've shared anything on this site. I read others posts, & sometimes I'll even comment on them. There are a few of you whom I message back & forth with. I found out where my PBC came from. Not the cause of it but where I got it through the family. Since 2012, when
It has been a really long time that I've shared anything on this site. I read others posts, & sometimes I'll even comment on them. There are a few of you whom I message back & forth with. I found out where my PBC came from. Not the cause of it but where I got it through the family. Since 2012, when
Shulsey
in
PBC Foundation
6 years ago
Completed lung transplant assessment ...
Hello All, My mother and I have just completed a lung transplant assessment with Papworth. It was definitely jam packed with tests and they wanted to paint a realistic sobering picture of life post transplant and possible complications... The end result is that my mother needs to have an angiogram before
Hello All, My mother and I have just completed a lung transplant assessment with Papworth. It was definitely jam packed with tests and they wanted to paint a realistic sobering picture of life post transplant and possible complications... The end result is that my mother needs to have an angiogram before
Queenbean
in
Lung Conditions Community Forum
6 years ago
Protect HIV-AIDS Drugs for those who are on Medicare
Cancer ABCs has Launch a National Petition to Protect HIV-AIDS, Cancer, Antidepressant, Psych, Seizure,
Organ
and
Transplant
Rejection Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you.
Cancer ABCs has Launch a National Petition to Protect HIV-AIDS, Cancer, Antidepressant, Psych, Seizure,
Organ
and
Transplant
Rejection Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you.
JoelT
in
HIV Partners
6 years ago
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