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In Liver transplantation
In Liver transplantation
Alialt
in
British Liver Trust
6 years ago
Waiting for a kidney transplant in Washington, DC
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Kidney4elinga
in
Kidney Transplant
6 years ago
New in fight with ALD
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
MonaStoica
in
Leukodystrophy Support
6 years ago
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Just needed some time to process things
Was away to see my consultant last week.. He told me that copd has taken 63% of my lung capacity only 37% is ok ..😢 just discovered I have Bronchiectasis to .. 😡 A lung transplant maybe on the cards but at a later date as I’m still to young and fit for it just now..😩 He sent me for a blood test
Was away to see my consultant last week.. He told me that copd has taken 63% of my lung capacity only 37% is ok ..😢 just discovered I have Bronchiectasis to .. 😡 A lung transplant maybe on the cards but at a later date as I’m still to young and fit for it just now..😩 He sent me for a blood test
Candyred
in
Lung Conditions Community Forum
6 years ago
1 year Post liver transplant seeking communication with other 1 year post transplant recipients.
I am 1 year post liver transplant. Feeling great and very strong too. Only issues is from the immune suppressant therapy. I am having anxiety and high blood pressure. I focus on good and am doing great. I have edema and swelling in legs and feet and the swelling can cause pain when standing or long
I am 1 year post liver transplant. Feeling great and very strong too. Only issues is from the immune suppressant therapy. I am having anxiety and high blood pressure. I focus on good and am doing great. I have edema and swelling in legs and feet and the swelling can cause pain when standing or long
meme7
in
Power2Save Transplant Community
6 years ago
I have SVT and i have anxiety/ptsd
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
Armyguy
in
Anxiety Support
6 years ago
Immune Suppressant Side Effects
Hello, I am 15 months post liver transplant and have managed to get down to 125mg of Ciclosporin a day. I have been plagued with fatigue, a little depression and anxiety, occasionally painful joints but mostly a brain fog type feeling and ringing in my ears. This week I have been put on 500mg of Mycophenolate
Hello, I am 15 months post liver transplant and have managed to get down to 125mg of Ciclosporin a day. I have been plagued with fatigue, a little depression and anxiety, occasionally painful joints but mostly a brain fog type feeling and ringing in my ears. This week I have been put on 500mg of Mycophenolate
AndyEssex
in
British Liver Trust
6 years ago
Pets for people with kidney disease
I recently went in for a kidney transplant evaluation and the social worker told me that I am only allowed to have 3 cats (and I am no longer allowed to clean their litter box) and that I need to get rid of my birds now or I can't get the transplant but that even if I didn't need a transplant she said
I recently went in for a kidney transplant evaluation and the social worker told me that I am only allowed to have 3 cats (and I am no longer allowed to clean their litter box) and that I need to get rid of my birds now or I can't get the transplant but that even if I didn't need a transplant she said
Mindy73
in
Kidney Disease
6 years ago
Curious
Well first off, I hope everyone had a great thanksgiving yesterday! But I have some questions for those of you who had a kidney transplant.. when you got the call to head to the hospital, how did you feel? What kind of stuff did you pack? How long where you in the hospital for? How did you feel afterwards
Well first off, I hope everyone had a great thanksgiving yesterday! But I have some questions for those of you who had a kidney transplant.. when you got the call to head to the hospital, how did you feel? What kind of stuff did you pack? How long where you in the hospital for? How did you feel afterwards
Hidden
in
Kidney Disease
6 years ago
Bone Marrow Transplant Failed
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
Beauxman
in
Advanced Prostate Cancer
6 years ago
Transplant Insurance Coverage
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
TaffyTwoshoes27
in
Kidney Disease
6 years ago
Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Hello
Hi I'm Ruder. Had a heart transplant in 2013 after 15 years of familial dilated cardiomyopathy. I am doing great and just completed a 3 week holiday in the US.
Hi I'm Ruder. Had a heart transplant in 2013 after 15 years of familial dilated cardiomyopathy. I am doing great and just completed a 3 week holiday in the US.
Ruder1
in
British Heart Foundation
6 years ago
My back problems.
Hello again all. After my good news yesterday I have just received a phone call from my GP that is a bit of a downer. You will recall (that is all of you that have read my posts) that I have been suffering quite badly with my back. I had a back x ray 2 days ago and apparently I have two fractures of
Hello again all. After my good news yesterday I have just received a phone call from my GP that is a bit of a downer. You will recall (that is all of you that have read my posts) that I have been suffering quite badly with my back. I had a back x ray 2 days ago and apparently I have two fractures of
alfredthegreat
in
British Liver Trust
6 years ago
Standards of Care as defined by UMN doctors
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
fightald
Administrator
in
Parents of ALD Newborns
6 years ago
Liver Transplantees - Say Hello
This is really for those of you who have been fortunate enough to have received a life changing Liver Transplant. I personally had my transplant on the 1st October 2016. I, as for most people, was so humbled and gratefully for everyone's support and help all through the whole life saving experience
This is really for those of you who have been fortunate enough to have received a life changing Liver Transplant. I personally had my transplant on the 1st October 2016. I, as for most people, was so humbled and gratefully for everyone's support and help all through the whole life saving experience
Hidden
in
British Liver Trust
6 years ago
Hallucination after liver transplant
Hello everyone, My father had his LT 5 days ago, now he’s hallucinating and shouting he doesn’t recognize us sometimes! Like he live in the past and he calls for people don’t exist !! I am so worried, I don’t get it !! Is it permanent ?? The doctor still don’t do a thing abut It !! Why is that ?
Hello everyone, My father had his LT 5 days ago, now he’s hallucinating and shouting he doesn’t recognize us sometimes! Like he live in the past and he calls for people don’t exist !! I am so worried, I don’t get it !! Is it permanent ?? The doctor still don’t do a thing abut It !! Why is that ?
Lilies1
in
British Liver Trust
6 years ago
Post op double lung
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Deanh
in
Lung Conditions Community Forum
6 years ago
Questions about high risk donors
I'm relatively new to posting here. Have been a lurker for a few months just doing a lot reading. The knowledge and support here is incredible. Has anyone who is currently on the wait list for a liver transplant or who has undergone a liver transplant had a liver offer that cam from a high risk donor
I'm relatively new to posting here. Have been a lurker for a few months just doing a lot reading. The knowledge and support here is incredible. Has anyone who is currently on the wait list for a liver transplant or who has undergone a liver transplant had a liver offer that cam from a high risk donor
IAintNoMensaBut
in
British Liver Trust
6 years ago
Love Your Liver - Wrexham
Last Tuesday, I had a wonderful day out at my old stomping ground of Wrexham. Some of you may know that the British Liver Trust's, "Love Your Liver" roadshow shall be visiting the town on the 20th November. I went over there to promote the event, and to raise awareness. 12-years ago, having been thrown
Last Tuesday, I had a wonderful day out at my old stomping ground of Wrexham. Some of you may know that the British Liver Trust's, "Love Your Liver" roadshow shall be visiting the town on the 20th November. I went over there to promote the event, and to raise awareness. 12-years ago, having been thrown
Hidden
in
British Liver Trust
6 years ago
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