Search
Search
About
Log in
Join
Experiences with
Organ damage
Posts
Communities
244 public posts
Filter results
Mycophenolate trial?
Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH. I understand the drop is commonly used for people receiving organ transplants and in the diffuse cutaneous form of Sac, but the trial
Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH. I understand the drop is commonly used for people receiving organ transplants and in the diffuse cutaneous form of Sac, but the trial
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Carola Vinuesa's discovery 'paved the way for the development of novel lupus treatments'
They found that mice exhibited signs of autoimmunity similar to those seen in the patient, including the presence of self-reactive antibodies, immune activation, and severe
organ
damage
.
They found that mice exhibited signs of autoimmunity similar to those seen in the patient, including the presence of self-reactive antibodies, immune activation, and severe
organ
damage
.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Scientists using cells to hopefully grow "mini livers"
Exciting and hopeful stuff. https://www.thenationalnews.com/health/2022/11/14/scientists-look-to-grow-mini-livers-for-patients-with-
organ
-
damage
/
Exciting and hopeful stuff. https://www.thenationalnews.com/health/2022/11/14/scientists-look-to-grow-mini-livers-for-patients-with-
organ
-
damage
/
muffins7
in
British Liver Trust
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
COMORBIDITY
Hi all, does anyone with sickle cell anaemia have complications with
organ
damage
due to sickle cell? I was diagnosed with kidney failure due to sickle cell complications. They tried saving my kidney with medications and diet but it eventually failed.
Hi all, does anyone with sickle cell anaemia have complications with
organ
damage
due to sickle cell? I was diagnosed with kidney failure due to sickle cell complications. They tried saving my kidney with medications and diet but it eventually failed.
Imaanforever
in
Living with Sickle Cell Disease
2 years ago
Anti Covid treatments for the Immuno-compromised
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
RogerPinner
in
CLL Support
2 years ago
Alcoholism
Fortunately not deep enough to cause any internal
organ
damage
. I needed a few stitches though. I have been to see the local AA, but they only advised me to pray to God, but I am agnostic, so they refused to help me.
Fortunately not deep enough to cause any internal
organ
damage
. I needed a few stitches though. I have been to see the local AA, but they only advised me to pray to God, but I am agnostic, so they refused to help me.
patez
in
Drink Free
1 year ago
PIP assessment
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
GEMMA1991
in
British Liver Trust
2 years ago
long read: asking for community help deciding next steps -- worsening RLS/PLMD, medications, Neurologist, no sleep, HRT
[u] I’m tired of fighting [/u]and I now have [u]permanent
damage
in some joints, one
organ
[/u]that’s left me using an ambulatory wheelchair. No matter how I explain or [u]show the clinic letter from Prof Walker - I’ve been accused of drug seeking or having a chronic pain condition.
[u] I’m tired of fighting [/u]and I now have [u]permanent
damage
in some joints, one
organ
[/u]that’s left me using an ambulatory wheelchair. No matter how I explain or [u]show the clinic letter from Prof Walker - I’ve been accused of drug seeking or having a chronic pain condition.
HappyGreenBean
in
Restless Legs Syndrome
10 days ago
Covid Tests for Vulnerable People
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
AndrewT
in
Vasculitis UK
2 years ago
Covid Self Tests, For Vulnerable Folk.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold Organ Transplant Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site. I found this out after 'Chasing My Tail', for about forty minutes.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold Organ Transplant Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site. I found this out after 'Chasing My Tail', for about forty minutes.
AndrewT
in
Kidney Transplant
2 years ago
4 of 5 treatments for covid in immunocompromised being removed in NHS
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
Harvist
in
CLL Support
2 years ago
Encephalopathy (HE), a visit to an ancient brain
It was a clear emergency and I'm fortunate to have suffered no long term
damage
to either
organ
. I credit my wife for acting when I was not capable of much rational thought. As I've had time to reflect on the experience I realize that I also had my first experience with encephalopathy.
It was a clear emergency and I'm fortunate to have suffered no long term
damage
to either
organ
. I credit my wife for acting when I was not capable of much rational thought. As I've had time to reflect on the experience I realize that I also had my first experience with encephalopathy.
nash2
Partner
in
Living with Fatty Liver and NASH
8 months ago
T3 dangers
Hello,I have been reading about the dangers if
organ
damage
on long term T3 and also long term thyroxine. Does anyone have information about this. thanks
Hello,I have been reading about the dangers if
organ
damage
on long term T3 and also long term thyroxine. Does anyone have information about this. thanks
Betty4479
in
Thyroid UK
2 years ago
Insulin Resistance, Parkinson's Disease, Consequences And What To Do About It
damage
!
damage
!
chartist
in
Cure Parkinson's
2 years ago
Kidney Donor who now had CKD stage 3a
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
nichama74
in
Kidney Disease
2 years ago
Study Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
cesces
in
Advanced Prostate Cancer
2 years ago
2022 Emerging Leaders Prize Awarded to 3 Researchers in UK
She leads an international program called TARGET LUPUS, which seeks to develop a new “treat-to-target”-based approach to patient management, promoting early aggressive treatment to prevent
organ
damage
, reduce side effects, and improve survival.
She leads an international program called TARGET LUPUS, which seeks to develop a new “treat-to-target”-based approach to patient management, promoting early aggressive treatment to prevent
organ
damage
, reduce side effects, and improve survival.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Rapamycin
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
MDI55
in
MPN Voice
2 years ago
Read this before you get your spleen removed
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
SurferDude
in
ITP Support Association
2 years ago
Possible brain lymphoma
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Springbunny
in
British Liver Trust
2 years ago
1
2
3
...
13
Next page
10
Filter results
Clear filters
Posted in
All communities
LUpus Patients Understanding and Support
30 results
Lung Conditions Community Forum
21 results
CLL Support
18 results
View top 10 communities
Sort by
Most Relevant
Newest