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10 public communities
Pelvic Pain Support Network
19,502 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
MyDirectives: Make your medical wishes known!
66 members
MyDirectives is the first completely digital emergency, critical and advance care planning service that is secure, easy to understand, and free to consumers to use. Apple iPhone users can also download MyDirectives MOBILE for free in the Apple App Store. MyDirectives and MyDirectives MOBILE are services offered by ADVault, Inc., a privately owned U.S. corporation dedicated to ensuring that emergency first responders, doctors, nurses and caregivers always have access to the most important voice in healthcare - yours. MyDirectives helps consumers record their medical treatment wishes, preferences regarding palliative and hospice care, organ donation, and autopsy, and other critical personal information both on the device, and in the format, that is most convenient and comfortable for them. We then work with healthcare providers and payers, to make the directives available.
LSN
5,728 members
Welcome to the Lymphoedema Support Network community. The LSN is a registered charity run by people who live with lymphoedema. Lymphoedema is a build up of fluid resulting in swelling that develops as a result of an impaired lymphatic system. This may be because the lymphatic system has not developed properly or through damage or trauma. It can affect any part of the body but is most commonly seen in an arm or a leg. Although thought to be relatively uncommon, a recent study has estimated that at least 240,000 people in the UK may be affected. Although lymphoedema can't be cured, its main symptoms of swelling and the risk of infection in the affected area can, with treatment, be controlled and often significantly improved. The LSN offers a telephone information and support line, quarterly newletters, a wide range of fact sheets, a website, self management advice and much more.
National Foundation for Transplants
301 members
At the National Foundation for Transplants, our goal is to ensure that transplant patients are given every opportunity to fully enjoy the gift of life. Since 1983, NFT has offered fundraising support and expertise to transplant patients across the country. In that time, we have helped generate nearly $65 million to assist patients in need.
Active Surveillance - Prostate Cancer
645 members
Active Surveillance is about men diagnosed with prostate cancer, trying to maintain the highest quality of life and living long enough to die from something else. We're about supporting each other in a world where overtreatment is the norm and where people just don't understand why men with cancer might want to delay or avoid treatment.
Prostate Cancer Caregivers
873 members
Welcome to caregivers currently caring for loved ones with PCa. Spouses and partners...a safe, caring community for all of us. It's OK to think of "me." You can't help the man you love if you don't take care of yourself, too. Sign up for our newsletter at https://malecare.org/prostate-cancer-newsletter/
Fight Prostate Cancer
2,838 members
This community is no longer actively moderated. Please visit the other prostate cancer community to continue receiving support: healthunlocked.com/advanced-prostate-cancer/posts/138237903/welcome-new-members
Prostate Cancer Network
5,035 members
Newly diagnosed? On Active Surveillance? You've got brothers here! What's next after surgery or radiation? Impotent? Difficulty with Urine Control? Caregiver or Spouse? You are not alone, here. A friendly, safe, informal atmosphere where we can pick each other's brains. Your 24 hour online support group. Our community is run by Malecare Cancer Support. We are men, fighting prostate cancer, together.
SHARE Metastatic Breast Cancer
6,687 members
SHARE Metastatic Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific metastatic breast cancer treatments like Ibrance, Herceptin, Verzenio, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. Other topics in this community include mastectomy and double mastectomy surgeries, stages of metastatic breast cancer, metastatic breast cancer awareness, and more. As a community we have rules. Inappropriate, abusive or irrelevant posts, advertisements, and sexual photographs will removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
Advanced Prostate Cancer
21,426 members
A friendly prostate cancer support group where we can pick each other's brains. Our 24-hour online support group. Talking about advanced prostate cancer is a powerful tool. Malecare Cancer Support runs our community. We are people fighting prostate cancer together.