Experiences with
Organ damage244 public posts
Stopping glucocorticoid therapy not tied to flare-up risk, data show
Nevertheless, data showed that both glucocorticoid thresholds provided similar protection against flare-ups, irreversible organ damage, and mortality.
Records on 300m patient interactions with NHS stolen in Russian hack
This is much more than just a simple update, it is a major development in the Synnovis hack case.
[i]Records on 300m patient interactions with NHS stolen in Russian hack[/i]
[i]Exclusive: health service scrambling to set up helpline after Qilin gang put stolen data into public domain overnight
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So my sister has just found that she has haemochromatosis...
Further tests
If blood tests show that you have haemochromatosis, you may need to have some further tests to check if the condition has caused any damage, particularly damage to your liver.
Rejoining the world - An update on my cancer experience as a patient with cirrhosis
I suffered no organ damage from the calcium event. Lots of tests and lots of drugs later, I'm happy to report that my cancer is in remission and I'm going to be in a maintenance program from now on.
91% of lupus patients report using steroids to manage symptoms
The primary goal in treating lupus is to mitigate the autoimmune response that causes the disorder, manage its symptoms, and prevent organ damage.
Disease remission achieved in SLE with dual-target CAR T-cell therapy
Its goal is to deplete B-cells, lower autoantibody levels, ease lupus symptoms, and prevent organ damage.
Conducted in China, the small Phase 1 study (NCT04162353/NCT05474885) included 13 SLE patients, 11 of whom had LN with active disease and had failed multiple lines of therapy.
Bonita219 we hardly knew ya, a visit with the angel of death
For most people age and increasing organ damage brings pain and a greater awareness of that long-hidden reality.
I got a letter recently from a nurse with a note that said Bonita has passed. She asked me to send you this and said you would understand. The letter held 3 wrinkled one dollar bills.
Organ damage in SLE is linked to cognitive dysfunction
damage and cognitive dysfunction
The researchers recruited 89 SLE patients between October 2018 and February 2020. Participants had a median age of 45 and a median disease duration of 15 years.
IFN-1 levels before treatment may be biomarker of SLE activity: Study
Patients who went on to develop organ damage had higher IFN-1 activity before treatment compared with those who did not. Organ damage also was associated with the use of methylprednisolone pulse therapy or intravenous (into-the-vein) cyclophosphamide (IVCY) pulse therapy.