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Experiences with
Organ damage
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Struggling with a diagnosis
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease, apart from a face rash and
organ
damage
, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor.
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease, apart from a face rash and
organ
damage
, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor.
Ryane96
in
Fibromyalgia Action UK
2 years ago
Struggling for a diagnosis
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease ,apart from a face rash and
organ
damage
, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor.
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease ,apart from a face rash and
organ
damage
, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor.
Ryane96
in
NRAS
2 years ago
Sepsis and Covid
I had ET in 2016, the re-diagnosed with MF and atrial fibrilation in 2017, various treatments since, but both stable for the last year, but admitted to hospital in March with Sepsis and then Covid , but discharged after 4 weeks without any apparent
organ
damage
, but I have struggled with weakness,
I had ET in 2016, the re-diagnosed with MF and atrial fibrilation in 2017, various treatments since, but both stable for the last year, but admitted to hospital in March with Sepsis and then Covid , but discharged after 4 weeks without any apparent
organ
damage
, but I have struggled with weakness,
Andrew8
in
MPN Voice
2 years ago
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Symptoms vs. Diagnoses
The brain is an organ - like any other
organ
in the human body it incurs some degree of
damage
. No pill - SSRI, SNRI, atypical etc., will correct any damage; at most it will address the low energy symptom of "depression" but we all know that's not sufficient.
The brain is an organ - like any other
organ
in the human body it incurs some degree of
damage
. No pill - SSRI, SNRI, atypical etc., will correct any damage; at most it will address the low energy symptom of "depression" but we all know that's not sufficient.
lmjt
in
Anxiety and Depression Support
1 year ago
If Putin uses nuclear weapons, how can we treat radiation poisoning?
“It is Pluristem’s goal to provide the different federal agencies access to PLX-R18 that it may be used as a countermeasure both before and after radiation exposure in order to minimize hematological and other
organ
damage
.
“It is Pluristem’s goal to provide the different federal agencies access to PLX-R18 that it may be used as a countermeasure both before and after radiation exposure in order to minimize hematological and other
organ
damage
.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
‘Masked’ cancer drug stealthily trains immune system to kill tumors while sparing healthy tissues, reducing treatment side effects -06/01/22
IL-12 has been shown to be effective at activating T-cells against cancer, but has never been approved for use due to its severe side effects, including
organ
damage
.
IL-12 has been shown to be effective at activating T-cells against cancer, but has never been approved for use due to its severe side effects, including
organ
damage
.
cujoe
in
Fight Prostate Cancer
2 years ago
Arthritis examinations
Ongoing inflammation usually leads to
damage
of the
organ
it is present in ,so surely research should concentrate on how to control body inflammation and why some people have no control over it ending up with varied illness due to it.
Ongoing inflammation usually leads to
damage
of the
organ
it is present in ,so surely research should concentrate on how to control body inflammation and why some people have no control over it ending up with varied illness due to it.
katieoxo60
in
Arthritis Action
2 years ago
Corona virus antivirals eligibility. Differences between UK and Scotland
Scotland https://www.nhsinform.scot/illnesses-and-conditions/infections-and-poisoning/coronavirus-covid-19/coronavirus-covid-19-treatments Down's syndrome Sickle cell disease Patients with a solid cancer Patients with a haematologic malignancy (cancer of the blood) Patients with a renal (kidney
Scotland https://www.nhsinform.scot/illnesses-and-conditions/infections-and-poisoning/coronavirus-covid-19/coronavirus-covid-19-treatments Down's syndrome Sickle cell disease Patients with a solid cancer Patients with a haematologic malignancy (cancer of the blood) Patients with a renal (kidney
BreatheasyBe
in
Lung Conditions Community Forum
2 years ago
What happens after menopause?
I have
organ
dysfunction! I’ll be hard pushed to believe all that accumulative
damage
done over the years will just miraculously disappear? Maybe I’m wrong?
I have
organ
dysfunction! I’ll be hard pushed to believe all that accumulative
damage
done over the years will just miraculously disappear? Maybe I’m wrong?
Heloo85
in
Endometriosis UK
2 years ago
FDA approves new COVID-19 antibody drug to protect most vulnerable from coronavirus
FDA approves new COVID-19 antibody drug to protect most vulnerable from coronavirus AstraZeneca’s Evusheld okayed for those 12 and older who didn’t respond adequately to vaccines or who have history of severe allergic reactions to shots WASHINGTON — Federal health officials on Wednesday authorized
FDA approves new COVID-19 antibody drug to protect most vulnerable from coronavirus AstraZeneca’s Evusheld okayed for those 12 and older who didn’t respond adequately to vaccines or who have history of severe allergic reactions to shots WASHINGTON — Federal health officials on Wednesday authorized
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Digestive symptoms with high atypical anca
I spoke with rheumatologist and he stated that the mpo value is the one to closely monitor since those are the antibodies that put us most at risk for
organ
damage
and complications, rather than overall atypical anca.
I spoke with rheumatologist and he stated that the mpo value is the one to closely monitor since those are the antibodies that put us most at risk for
organ
damage
and complications, rather than overall atypical anca.
Sybennett
in
Vasculitis UK
3 years ago
Poop may not be magical? Microbiome Prescription Blog discusses FMT results
http://blog.microbiomeprescription.com/2021/11/26/before-donor-after-fmt-analysis/ I'm still pro poop. Just sharing. Is FMT Worth the Risk? FMT is effectively an organ transplant. Like organ transplants, there are significant risks of rejection and no way to undo it once it happens. From correspondence
http://blog.microbiomeprescription.com/2021/11/26/before-donor-after-fmt-analysis/ I'm still pro poop. Just sharing. Is FMT Worth the Risk? FMT is effectively an organ transplant. Like organ transplants, there are significant risks of rejection and no way to undo it once it happens. From correspondence
Bolt_Upright
in
Cure Parkinson's
3 years ago
New, targeted therapy inhibits specific immune cells associated with lupus nephritis
Many different types of immune cells are involved in the mechanisms underlying target
organ
damage
in lupus and other autoimmune conditions. One of these important cell types is T-cells, which affect the kidney by interacting and binding with other cells, much like a key inserts into a lock.
Many different types of immune cells are involved in the mechanisms underlying target
organ
damage
in lupus and other autoimmune conditions. One of these important cell types is T-cells, which affect the kidney by interacting and binding with other cells, much like a key inserts into a lock.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Re: Vaccine efficacy
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Jay986
in
British Liver Trust
3 years ago
FRUSTRATED ON INACTIVE LIST
I am very frustrated with my Transplant Hospital (I need to vent or get guidance if anyone has a suggestion). I have completed all of my THIRD two-year re-evaluation with the multiple tests required. The Transplant hospital insisted I get a special Heart Cath procedure because they found a little “blip
I am very frustrated with my Transplant Hospital (I need to vent or get guidance if anyone has a suggestion). I have completed all of my THIRD two-year re-evaluation with the multiple tests required. The Transplant hospital insisted I get a special Heart Cath procedure because they found a little “blip
TaffyTwoshoes27
in
Kidney Transplant
3 years ago
Well, I have sarcoidosis folks
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
Missbrenda21
in
Lung Conditions Community Forum
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Help for high functioning drinkers???
We did numerous tests and remarkably there was no
organ
damage
so I carried on up until this current stage. My mother and her parents are the same so I was doomed from the start, it’s starting to feel like a generational curse.
We did numerous tests and remarkably there was no
organ
damage
so I carried on up until this current stage. My mother and her parents are the same so I was doomed from the start, it’s starting to feel like a generational curse.
Shapeshifting
in
Drink Free
3 years ago
Who should receive a 3rd COVID-19 dose according to the CDC
I just received this email from Tufts Medical Center in Boston, Massachusetts and it's another confirmation as to who is really immunocompromised. I hope this helps some members of this forum who are on higher doses of Pred. "Patient Update - Dear Tufts Medical Center and Tufts Children’s Hospital Community
I just received this email from Tufts Medical Center in Boston, Massachusetts and it's another confirmation as to who is really immunocompromised. I hope this helps some members of this forum who are on higher doses of Pred. "Patient Update - Dear Tufts Medical Center and Tufts Children’s Hospital Community
kulina
in
PMRGCAuk
3 years ago
3RD COVID VACCINE SHOT TO BE APPROVED WITHIN DAYS
My post on getting a third shot on my own, without approval from the government, has had very wide readership on this site. It should be so, because it is perhaps one of the bigger concerns we all should have right now. Now the good news is that the government here in the US is about to approve a third
My post on getting a third shot on my own, without approval from the government, has had very wide readership on this site. It should be so, because it is perhaps one of the bigger concerns we all should have right now. Now the good news is that the government here in the US is about to approve a third
wizzard166
in
CLL Support
3 years ago
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