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Colorado QoL
Hey all you QoL posters smelling the flowers in California and Hawaii, we’re still enjoying winter here in Colorado! Every day I ski is the best day of my life! Being in the mountains makes my spirit soar, and communing with the trees and the snow and the wind makes me feel part of something timeless
Hey all you QoL posters smelling the flowers in California and Hawaii, we’re still enjoying winter here in Colorado! Every day I ski is the best day of my life! Being in the mountains makes my spirit soar, and communing with the trees and the snow and the wind makes me feel part of something timeless
TeleGuy
in
Advanced Prostate Cancer
1 year ago
proactive
any tips on how to cover my head if I do lose my hair with chemo , I’m not a hat person , so what are your opinions on scarfs , wigs etc or just show it all x
any tips on how to cover my head if I do lose my hair with chemo , I’m not a hat person , so what are your opinions on scarfs , wigs etc or just show it all x
Cazy1010
in
My Ovacome
1 year ago
Worrying study on long-term ADT (esp Enza)
I just came across a study (2019 International Journal of Pharmacology) that suggests that long-term use of ADT can cause neuroendicrine differentiation, leading to rapid spread and more aggressive spread. (the article was actually about the use of propanalol to counteract the effect of NED, but the
I just came across a study (2019 International Journal of Pharmacology) that suggests that long-term use of ADT can cause neuroendicrine differentiation, leading to rapid spread and more aggressive spread. (the article was actually about the use of propanalol to counteract the effect of NED, but the
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
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Chemo Side Effects
I was diagnosed with primary peritoneal carcinoma in January 2018. I had four chemos consisting of carboplatin and taxol. Then, I had debulking surgery followed by four more chemos. My CA 125 had dropped to between 3 and 6 for almost five years. However, this past October, the cancer returned and was
I was diagnosed with primary peritoneal carcinoma in January 2018. I had four chemos consisting of carboplatin and taxol. Then, I had debulking surgery followed by four more chemos. My CA 125 had dropped to between 3 and 6 for almost five years. However, this past October, the cancer returned and was
purfekt10
in
My Ovacome
1 year ago
Chemotherapy before surgery.
Hi I am new to the forum and just about to start my journey with OC. I am having 3 chemo sessions before surgery as they said I might of needed extensive bowel surgery if I had surgery first. Has anyone had some chemo before surgery and how it effected you going in to surgery. I feel very frightened
Hi I am new to the forum and just about to start my journey with OC. I am having 3 chemo sessions before surgery as they said I might of needed extensive bowel surgery if I had surgery first. Has anyone had some chemo before surgery and how it effected you going in to surgery. I feel very frightened
Hidden
in
My Ovacome
1 year ago
Radical Prostatectomy
on the pathology report it states as follows Excerpt from pathology report: VIII. SEMINAL VESICLE INVASION: Cannot be assessed The seminal vessels were removed but pathologists said cannot be assessed Surgeon, Pathologist and Medical Oncologist we spoke to state because they were shrunk or scarred
on the pathology report it states as follows Excerpt from pathology report: VIII. SEMINAL VESICLE INVASION: Cannot be assessed The seminal vessels were removed but pathologists said cannot be assessed Surgeon, Pathologist and Medical Oncologist we spoke to state because they were shrunk or scarred
Shorehousejam
in
Advanced Prostate Cancer
1 year ago
lungs again .
my step-daughter-in-law had cancer 50 years ago . her mother and sister both had the same gene and died with it before her breast cancer developed, soshe had both her breasts removed and still worried too much , so much so that they removed her uterus as reassurance . she has been well since ,then
my step-daughter-in-law had cancer 50 years ago . her mother and sister both had the same gene and died with it before her breast cancer developed, soshe had both her breasts removed and still worried too much , so much so that they removed her uterus as reassurance . she has been well since ,then
Jaybird19
in
Lung Conditions Community Forum
1 year ago
Hi ladies results are in
Hi , results are 2a serous found in right overy (apparently started in fallopian tube) and small amount on right overy so chemotherapy here we come !!!!! Nothing found on omentom or peritoneum x
Hi , results are 2a serous found in right overy (apparently started in fallopian tube) and small amount on right overy so chemotherapy here we come !!!!! Nothing found on omentom or peritoneum x
Cazy1010
in
My Ovacome
1 year ago
ET/Jak2 postive
Hello! I was recently diagnosed with ET. I had not had bloodwork done in 15 years but just decided maybe I should and my platelets came back 600. They rechecked again 2 weeks later and they were 617. So, I was referred to a hematologist. After more bloodwork there, they found I was also Jak2 positive
Hello! I was recently diagnosed with ET. I had not had bloodwork done in 15 years but just decided maybe I should and my platelets came back 600. They rechecked again 2 weeks later and they were 617. So, I was referred to a hematologist. After more bloodwork there, they found I was also Jak2 positive
Highplatelets
in
MPN Voice
1 year ago
Recently diagnosed- Stage 4 at 45 yrs old.
Hey all! I’m an active 45 year old Australian, dad of 10 and 12 year old, living in Vermont USA, and I just recently got diagnosed with stage 4 prostate cancer. Mets to lymph nodes, several vertebrea, hip, rib etc. Gleason 9 and a relatively low PSA at 6.7 which is unusual. Apparently the sign
Hey all! I’m an active 45 year old Australian, dad of 10 and 12 year old, living in Vermont USA, and I just recently got diagnosed with stage 4 prostate cancer. Mets to lymph nodes, several vertebrea, hip, rib etc. Gleason 9 and a relatively low PSA at 6.7 which is unusual. Apparently the sign
dochelem
in
Advanced Prostate Cancer
1 year ago
Octavia2018
I was diagnosed in December 22 with stage 2 lung cancer had upper left lobe removed through the VATS operation went well nothing in lymph nodes so I do feel really lucky starting chemo in 2 weeks as the cancer was 43 mm
I was diagnosed in December 22 with stage 2 lung cancer had upper left lobe removed through the VATS operation went well nothing in lymph nodes so I do feel really lucky starting chemo in 2 weeks as the cancer was 43 mm
Hidden
in
The Roy Castle Lung Cancer Foundation
1 year ago
TURP Prior to Radiation: Opinions?
63yo, Gleason 4+4, PSA 0.055, 2 measurable mets in pelvic lymph nodes-right iliac chain I finished a round of 6 chemo treatments in mid-February. I'm currently on Lupron and Nubeqa. My last PSA was 0.055. I decided to take a break before I start radiation in August or September to do some travel and
63yo, Gleason 4+4, PSA 0.055, 2 measurable mets in pelvic lymph nodes-right iliac chain I finished a round of 6 chemo treatments in mid-February. I'm currently on Lupron and Nubeqa. My last PSA was 0.055. I decided to take a break before I start radiation in August or September to do some travel and
Peeffervescence
in
Advanced Prostate Cancer
1 year ago
prostate cancer
started treatment at John Hopkins in 2008 with Dr Walsh (best in world) Gleason 9.9 with prostate removed. Continue at UAB and cancer center (Georgia) with great treatment’s radiation and chemotherapy through 2021 when all doctors and teams retired or moved to other locations. Used Lynparza and Xtandi
started treatment at John Hopkins in 2008 with Dr Walsh (best in world) Gleason 9.9 with prostate removed. Continue at UAB and cancer center (Georgia) with great treatment’s radiation and chemotherapy through 2021 when all doctors and teams retired or moved to other locations. Used Lynparza and Xtandi
Oren1
in
Advanced Prostate Cancer
1 year ago
xeloda.
hey ladies ! I’m going to start xeloda in a couple of days. My mbc has progressed in bones and now a spot on the liver. Any info for me for people that are on it? They are stopping the fulvesterant which was all I was on and he really wants to do chemo but I want to try this first. The dose is high
hey ladies ! I’m going to start xeloda in a couple of days. My mbc has progressed in bones and now a spot on the liver. Any info for me for people that are on it? They are stopping the fulvesterant which was all I was on and he really wants to do chemo but I want to try this first. The dose is high
Eliactida1955
in
SHARE Metastatic Breast Cancer
1 year ago
Severe Thigh Pain
I was diagnosed for CLL 12 months ago and had 6 courses of FCR Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period. Is it normal to
I was diagnosed for CLL 12 months ago and had 6 courses of FCR Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period. Is it normal to
Hrdy
in
CLL Support
1 year ago
Patient survey on treatment after chemotherapy
Hello All This is to let you know about a survey we are undertaking to help us understand your experience of the different therapies/cancer drugs that are prescribed after chemotherapy has finished. If you are over 18, are being treated in the UK and have been diagnosed with advanced high grade serous
Hello All This is to let you know about a survey we are undertaking to help us understand your experience of the different therapies/cancer drugs that are prescribed after chemotherapy has finished. If you are over 18, are being treated in the UK and have been diagnosed with advanced high grade serous
TheOvacomeTeam
Partner
in
My Ovacome
1 year ago
have anyone taken part in the serena 6 trial and can tell me how they got on
I have stage 4 metastatic breast cancer (liver and bones) iv done 6 cycles of Ec chemotherapy and I’m due to start letrazole and abmeciclib on April 21st Does anyone here have this and how did you find it My bones have all healed and iv been told I’m stable re my cancer After 6 months I have been
I have stage 4 metastatic breast cancer (liver and bones) iv done 6 cycles of Ec chemotherapy and I’m due to start letrazole and abmeciclib on April 21st Does anyone here have this and how did you find it My bones have all healed and iv been told I’m stable re my cancer After 6 months I have been
Sharonpat
in
SHARE Metastatic Breast Cancer
1 year ago
Severe RLS - a big Thankyou
I want to record a great big thankyou to those of you who responded to my previous post. I had between 40 and 50 alerts and very many replies in support of what I was trying to say😁 - and only one adverse comment😒. I would really have liked to answer each one of you personally but unfortunately I
I want to record a great big thankyou to those of you who responded to my previous post. I had between 40 and 50 alerts and very many replies in support of what I was trying to say😁 - and only one adverse comment😒. I would really have liked to answer each one of you personally but unfortunately I
Jelbea
in
Restless Legs Syndrome
1 year ago
Niraparib and peripheral neuropathy
Hi, I have peritonea serious stage 3c. I have been on Niraparib for 10 months and had very few side effects until I started with muscle pains in my thighs at night. My oncologist asked if I had any pains in my shoulders or arms which I didn't at the time. I now have and noticed that my fingers are tingling
Hi, I have peritonea serious stage 3c. I have been on Niraparib for 10 months and had very few side effects until I started with muscle pains in my thighs at night. My oncologist asked if I had any pains in my shoulders or arms which I didn't at the time. I now have and noticed that my fingers are tingling
babs1120
in
My Ovacome
1 year ago
Carbo/Caelyx Cocktail
Hi I've got Stage3c OC have had debunking, chemo recurrence after 4 years and now one year after its reappeared. Consultant wants me on carbonation and calyx whereas before was carbonation taxon. Just wondered if anyone had been on this regime and do you have any tips please.Thankyou
Hi I've got Stage3c OC have had debunking, chemo recurrence after 4 years and now one year after its reappeared. Consultant wants me on carbonation and calyx whereas before was carbonation taxon. Just wondered if anyone had been on this regime and do you have any tips please.Thankyou
Fizzgirl
in
My Ovacome
1 year ago
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